Prenatally Diagnosed Condition Awareness Act of 2007

To amend the Public Health Service Act to increase the provision of scientifically sound information and support services to patients receiving a positive test diagnosis for Down syndrome or other prenatally diagnosed conditions.

7/19/2007--Introduced.
Prenatally Diagnosed Condition Awareness Act of 2007 - Amends the Public Health Service Act to require the Secretary of Health and Human Services, acting through either the Director of the National Institutes of Health (NIH), the Director of the Centers for Disease Control and Prevention (CDC), or the Administrator of the Health Resources and Services Administration (HRSA), to authorize and oversee certain activities relating to Down syndrome or other prenatally diagnosed conditions, including the awarding of grants, contracts or cooperative agreements to:
(1) collect, synthesize, and disseminate current scientific information; and
(2) coordinate the provision of, and access to, supportive services for patients affected, which shall include a telephone hotline, an information clearinghouse, peer-support programs, and registries of families willing to adopt children affected by such conditions.
Requires the Secretary, acting through the Director of CDC, to provide assistance to state and local heath departments to integrate the results of prenatal testing into state-based vital statistics and birth defects surveillance programs.
Directs the Secretary to ensure that a provider is only able to participate in activities under this Act if it provides assurances that it will provide a patient receiving a positive result from a prenatal test with certain information, including:
(1) up-to-date scientific information concerning the life expectancy, clinical course, and intellectual and functional development and treatment options for a fetus diagnosed with, or a child born with, such conditions; and
(2) referrals to supportive service providers.
Requires the Government Accountability Office (GAO) to submit a report to Congress concerning the effectiveness of current health care and family support programs serving as resources for the families of children with disabilities.


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Sponsor

• Rep. F. James Sensenbrenner [R, WI-5]
• and 7 Co-Sponsors
  • Rep. Barney Frank [D, MA-4]
  • Rep. Cathy McMorris Rodgers [R, WA-5]
  • Rep. Edward Royce [R, CA-40]
  • Rep. Timothy Ryan [D, OH-17]
  • Rep. Peter Sessions [R, TX-32]
  • Rep. Peter Welch [D, VT-0]
  • Rep. David Weldon [R, FL-15]
  close

Committees

• House Energy and Commerce
• 1 more
  • House Energy and Commerce
  close

Amendments

This bill has no amendments.

Amendments to H.R.3112

Number	Status	Purpose

Bill Status

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Introduced		Voted on by House		Voted on by Senate		Considered By President		Bill Becomes Law
July 19, 2007

Show All Actions (5 actions)Hide Actions

All Bill Actions

• Apr 23, 2008: Forwarded by Subcommittee to Full Committee by Voice Vote .
• Apr 23, 2008: Subcommittee Consideration and Mark-up Session Held.
• Jul 19, 2007: Referred to the Subcommittee on Health.
• Jul 19, 2007: Referred to the House Committee on Energy and Commerce.
• Introduced on Jul 19, 2007.

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Related Bills:

• S.1810

Related Issue Areas:

• Web sites
• Vital statistics
• Telephone
• Telecommunication
• 44 more
• Technology
• Science policy
• Right of privacy
• Quality of life
• Patients' rights
• Medical tests
• Medical statistics
• Medical records
• Medical care
• Maternal health services
• Life expectancy
• Internet
• Imaging systems in medicine
• Hereditary diseases
• Health surveys
• Health policy
• Health information systems
• Health education
• Health counseling
• Grants-in-aid
• Government publicity
• Government paperwork
• Government information
• Genetic counseling
• Fetus
• Family services
• Families
• Epidemiology
• Electronic government information
• Down's syndrome
• Directories
• Data banks
• Congressional reporting requirements
• Congressional investigations
• Congress
• Communication in science
• Communication in medicine
• Civil liberties
• Children
• Child development
• Budgets
• Birth defects
• Adoption
• Medicine

Data from the Congressional Research Service

In the News

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Blog Coverage

September 30, 2007 Bill Seeks Support for Parents of Children with Down Syndrome ...

James Sensenbrenner (R-Wisconsin), Cathy McMorris Rodgers (R-Washington) and Pete Sessions (R-Texas) have introduced a companion bill in the House, HR 3112. (Senator Kennedy's sister Eunice serves as Honorary Chairperson for the Special ...

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Source: The News from "Down" Under

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September 06, 2007 Bioethik-Diskussion Blog: Eine fötale Abweichung wird entdeckt ...

ZZ während im Repräsentantenhaus ist HR 3112: Prenatally bestimmte Bedingung-Bewußtsein Tat von 2007. Der Zweck ist, die öffentliches Gesundheitswesen-Service-Tat zu ändern, um die Bestimmung der wissenschaftlich stichhaltigen ...

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Source: Healthy Treatment

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September 05, 2007 胎児の異常は発見される: 間違って何でも完全な発表とか。

Currently pending in the House of Representative is HR 3112: Prenatally Diagnosed Condition Awareness Act of 2007. The purpose is to amend the Public Health Service Act to increase the provision of scientifically sound information and ...

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Source: Academics

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