SMA Treatment Acceleration Act

To authorize the Secretary of Health and Human Services to conduct activities to rapidly advance treatments for spinal muscular atrophy, neuromuscular disease, and other pediatric diseases, and for other purposes.

8/2/2007--Introduced.
SMA Treatment Acceleration Act - Requires the Director of the National Institutes of Health (NIH) to upgrade and unify existing spinal muscular atrophy (SMA) clinical trial sites to establish a national clinical trials network for SMA. Requires the Director of NIH to ensure that such network:
(1) conducts coordinated, multisite, clinical trials of pharmacological approaches to the treatment of SMA; and
(2) rapidly and effectively disseminates scientific findings to the field.
Requires the Director of NIH to:
(1) establish an SMA data coordinating center; and
(2) expand and intensify NIH programs with respect to preclinical translation research and medicinal chemistry related to SMA.
Requires the Secretary of Health and Human Services, acting through the Director of the Centers for Disease Control and Prevention (CDC), to enhance and provide ongoing support to the existing SMA patient registry to provide for expanded research on the epidemiology of SMA. Directs the Secretary to ensure the collection and analysis of longitudinal data related to individuals of all ages with SMA.
Requires the Secretary to establish the Spinal Muscular Atrophy Coordinating Committee to:
(1) coordinate activities across NIH and with other federal health programs and activities relating to SMA; and
(2) conduct a study to identify barriers to the development of drugs for treating SMA and similar genetic disorders.
Requires the Director of NIH to establish a trans-National Institutes of Health cooperative research initiative on SMA to ensure the success of the SMA projects led by the National Institute of Neurological Disorders and Stroke. Requires the Secretary to submit recommendations to Congress to improve and expand on incentives provided under the Orphan Drug Act and related statutes to promote SMA drug development.


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Sponsor

• Rep. Patrick Kennedy [D, RI-1]
• and 83 Co-Sponsors
  • Rep. Rodney Alexander [R, LA-5]
  • Rep. Thomas Allen [D, ME-1]
  • Rep. Jason Altmire [D, PA-4]
  • Rep. Brian Baird [D, WA-3]
  • Rep. Tammy Baldwin [D, WI-2]
  • Rep. Timothy Bishop [D, NY-1]
  • Rep. Earl Blumenauer [D, OR-3]
  • Rep. Dan Boren [D, OK-2]
  • Rep. Frederick Boucher [D, VA-9]
  • Rep. George Butterfield [D, NC-1]
  • Rep. Eric Cantor [R, VA-7]
  • Rep. Lois Capps [D, CA-23]
  • Rep. Christopher Carney [D, PA-10]
  • Rep. Kathy Castor [D, FL-11]
  • Rep. Yvette Clarke [D, NY-11]
  • Rep. Jim Cooper [D, TN-5]
  • Rep. Thomas Davis [R, VA-11]
  • Rep. Norman Dicks [D, WA-6]
  • Rep. Thelma Drake [R, VA-2]
  • Rep. Anna Eshoo [D, CA-14]
  • Rep. Michael Ferguson [R, NJ-7]
  • Rep. James Forbes [R, VA-4]
  • Rep. Virgil Goode [R, VA-5]
  • Rep. Robert Goodlatte [R, VA-6]
  • Rep. Barton Gordon [D, TN-6]
  • Rep. Raymond Green [D, TX-29]
  • Rep. Ralph Hall [R, TX-4]
  • Rep. Peter Hoekstra [R, MI-2]
  • Rep. Darlene Hooley [D, OR-5]
  • Rep. Kenny Hulshof [R, MO-9]
  • Rep. Jay Inslee [D, WA-1]
  • Rep. Henry Johnson [D, GA-4]
  • Rep. Dale Kildee [D, MI-5]
  • Rep. Ronald Kind [D, WI-3]
  • Rep. Jack Kingston [R, GA-1]
  • Rep. Mark Kirk [R, IL-10]
  • Rep. John Kuhl [R, NY-29]
  • Rep. James Langevin [D, RI-2]
  • Rep. Zoe Lofgren [D, CA-16]
  • Rep. Nita Lowey [D, NY-18]
  • Rep. Carolyn Maloney [D, NY-14]
  • Rep. Edward Markey [D, MA-7]
  • Rep. James Marshall [D, GA-8]
  • Rep. Michael McCaul [R, TX-10]
  • Rep. John McHugh [R, NY-23]
  • Rep. Mike McIntyre [D, NC-7]
  • Rep. Cathy McMorris Rodgers [R, WA-5]
  • Rep. Michael McNulty [D, NY-21]
  • Rep. Gregory Meeks [D, NY-6]
  • Rep. Candice Miller [R, MI-10]
  • Rep. James Moran [D, VA-8]
  • Rep. Tim Murphy [R, PA-18]
  • Rep. Jerrold Nadler [D, NY-8]
  • Rep. Grace Napolitano [D, CA-38]
  • Rep. Donald Payne [D, NJ-10]
  • Rep. Collin Peterson [D, MN-7]
  • Rep. Charles Pickering [R, MS-3]
  • Rep. Tom Price [R, GA-6]
  • Rep. David Price [D, NC-4]
  • Rep. Deborah Pryce [R, OH-15]
  • Rep. James Ramstad [R, MN-3]
  • Rep. Ileana Ros-Lehtinen [R, FL-18]
  • Rep. Mike Ross [D, AR-4]
  • Rep. Lucille Roybal-Allard [D, CA-34]
  • Rep. Timothy Ryan [D, OH-17]
  • Rep. Robert Scott [D, VA-3]
  • Rep. Joe Sestak [D, PA-7]
  • Rep. Christopher Shays [R, CT-4]
  • Rep. Fortney Stark [D, CA-13]
  • Rep. Clifford Stearns [R, FL-6]
  • Rep. Patrick Tiberi [R, OH-12]
  • Rep. Edolphus Towns [D, NY-10]
  • Rep. Timothy Walberg [R, MI-7]
  • Rep. Debbie Wasserman Schultz [D, FL-20]
  • Rep. Lynn Westmoreland [R, GA-3]
  • Rep. Heather Wilson [R, NM-1]
  • Rep. Charles Wilson [D, OH-6]
  • Rep. Rob Wittman [R, VA-1]
  • Rep. Frank Wolf [R, VA-10]
  • Rep. Lynn Woolsey [D, CA-6]
  • Rep. David Wu [D, OR-1]
  • Rep. Albert Wynn [D, MD-4]
  • Rep. C. W. Bill Young [R, FL-10]
  close

Committees

• House Energy and Commerce
• 1 more
  • House Energy and Commerce
  close

Amendments

This bill has no amendments.

Amendments to H.R.3334

Number	Status	Purpose

Bill Status

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Introduced		Voted on by House		Voted on by Senate		Considered By President		Bill Becomes Law
August 02, 2007

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All Bill Actions

• Aug 02, 2007: Referred to the Subcommittee on Health.
• Aug 02, 2007: Referred to the House Committee on Energy and Commerce.
• Introduced on Aug 02, 2007.

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Related Bills:

• S.2042

Related Issue Areas:

• Child health
• Science policy
• Pharmaceutical research
• Pediatrics
• 12 more
• Orphan drugs
• Muscular diseases
• Medical research
• Medical care
• Hereditary diseases
• Epidemiology
• Drug therapy
• Congressional reporting requirements
• Congress
• Clinical trials
• Children
• Medicine

Data from the Congressional Research Service

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In the News

September 14, 2007 COMMENTARY: One-in-40 not so big when it's family

I would like to encourage people to support HR 3334, “The SMA Treatment Acceleration Act” that has been introduced in the US House of Representatives. ...

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Source: The Valley Chronicle, CA

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September 07, 2008 The Latest from TechCrunch

No ChaChing For ChaCha Guides. Posted: 07 Sep 2008 03:29 AM PDT. ChaCha used to be a ridiculous human powered web based search engine that’s best use appeared to be for killing time when bored. They raised a boatload of money from Jeff ...

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Source: Info

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July 04, 2008 SMA Treatment Acceleration Act - We need your help!!!

House of Representatives ~ SMA Treatment Acceleration Act HR 3334 Click here to view the House of Representatives version of the proposed Act (HR 3334) Click here to view the current House cosponsors of the proposed Act ...

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Source: Friends of Gwendolyn Strong

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March 25, 2008 An Open Letter to Congress

However, I cannot begin to comprehend why it has taken over six months to act on HR 3334 or S2042. This should be an easy decision! There are no sides or finding middle ground or preserving the interests of special groups in this vote. ...

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Source: A Crusade for Knowledge & Healing

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