Newborn Screening Saves Lives Act of 2008

To amend the Public Health Service Act to establish grant programs to provide for education and outreach on newborn screening and coordinated followup care once newborn screening has been conducted, to reauthorize programs under part A of title XI of such Act, and for other purposes.

10/15/2007--Introduced.
Newborn Screening Saves Lives Act of 2007 - Amends the Public Health Service Act to require the Secretary of Health and Human Services, acting through the Administrator of the Health Resources and Services Administration (HRSA), to award grants to eligible entit more...ies to provide education and training in newborn screening and congenital, genetic, and metabolic disorders to health care professionals and newborn screening laboratory personnel. Adds as a condition for eligibility for grants for screening, counseling, or health care services to newborns and children having, or at risk for, heritable disorders that an entity assure that it has or is implementing guidelines and recommendations of the Advisory Committee on Heritable Disorders in Newborns and Children.
Requires the Advisory Committee on Heritable Disorders in Newborns and Children to:
(1) make recommendations that include the heritable disorders for which all newborns should be screened; and
(2) develop a model decision-matrix for newborn screening program expansion. Requires the Secretary, acting through the Administrator, to:
(1) establish a central clearinghouse for information on newborn screening; and
(2) award grants for newborn screening educational programs and for a system to assess and coordinate treatment relating to congenital, genetic, and metabolic disorders.
Requires the Secretary, acting through the Director of Centers for Disease Control and Prevention (CDC), to provide for:
(1) quality assurance for screening laboratories;
(2) population-based pilot testing for evaluating new screening tools; and
(3) a national contingency plan for newborn screening in the event of a public health emergency.
Requires the Secretary, acting through an Interagency Group, to:
(1) collect, analyze, and make available data on certain heritable disorders;
(2) operate regional centers to conduct applied epidemiological research on interventions to prevent poor health outcomes from such disorders; and
(3) research and promote the prevention of poor health outcomes. Requires the Secretary to establish the Hunter Kelly Newborn Screening Research Program.

Sponsor

• Rep. Lucille Roybal-Allard [D, CA-34]
• and 81 Co-Sponsors
  • Rep. Neil Abercrombie [D, HI-1]
  • Rep. Thomas Allen [D, ME-1]
  • Rep. Michael Arcuri [D, NY-24]
  • Rep. Joe Baca [D, CA-43]
  • Rep. Tammy Baldwin [D, WI-2]
  • Rep. Xavier Becerra [D, CA-31]
  • Rep. Shelley Berkley [D, NV-1]
  • Rep. Robert Berry [D, AR-1]
  • Rep. Frederick Boucher [D, VA-9]
  • Rep. Michael Burgess [R, TX-26]
  • Rep. Shelley Capito [R, WV-2]
  • Rep. Lois Capps [D, CA-23]
  • Rep. Dennis Cardoza [D, CA-18]
  • Rep. Steve Cohen [D, TN-9]
  • Rep. Henry Cuellar [D, TX-28]
  • Rep. Danny Davis [D, IL-7]
  • Rep. Diana DeGette [D, CO-1]
  • Rep. Rosa DeLauro [D, CT-3]
  • Rep. John Duncan [R, TN-2]
  • Rep. Eliot Engel [D, NY-17]
  • Rep. Anna Eshoo [D, CA-14]
  • Rep. Chaka Fattah [D, PA-2]
  • Rep. Bob Filner [D, CA-51]
  • Rep. Vito Fossella [R, NY-13]
  • Rep. Charles Gonzalez [D, TX-20]
  • Rep. Barton Gordon [D, TN-6]
  • Rep. Kay Granger [R, TX-12]
  • Rep. Raymond Green [D, TX-29]
  • Rep. Raul Grijalva [D, AZ-7]
  • Rep. Luis Gutierrez [D, IL-4]
  • Rep. Alcee Hastings [D, FL-23]
  • Rep. Stephanie Herseth Sandlin [D, SD-0]
  • Rep. Brian Higgins [D, NY-27]
  • Rep. Maurice Hinchey [D, NY-22]
  • Rep. Rubén Hinojosa [D, TX-15]
  • Rep. Mazie Hirono [D, HI-2]
  • Rep. Michael Honda [D, CA-15]
  • Rep. Jesse Jackson [D, IL-2]
  • Rep. Henry Johnson [D, GA-4]
  • Rep. Patrick Kennedy [D, RI-1]
  • Rep. Nicholas Lampson [D, TX-22]
  • Rep. James Langevin [D, RI-2]
  • Rep. John Larson [D, CT-1]
  • Rep. Barbara Lee [D, CA-9]
  • Rep. John Lewis [D, GA-5]
  • Rep. Nita Lowey [D, NY-18]
  • Rep. Doris Matsui [D, CA-5]
  • Rep. Carolyn McCarthy [D, NY-4]
  • Rep. John McHugh [R, NY-23]
  • Rep. Michael McNulty [D, NY-21]
  • Rep. Dennis Moore [D, KS-3]
  • Rep. Tim Murphy [R, PA-18]
  • Rep. Grace Napolitano [D, CA-38]
  • Rep. Solomon Ortiz [D, TX-27]
  • Rep. Edward Pastor [D, AZ-4]
  • Rep. Steven Pearce [R, NM-2]
  • Rep. Deborah Pryce [R, OH-15]
  • Rep. James Ramstad [R, MN-3]
  • Rep. Thomas Reynolds [R, NY-26]
  • Rep. Laura Richardson [D, CA-37]
  • Rep. Ciro Rodriguez [D, TX-23]
  • Rep. Steven Rothman [D, NJ-9]
  • Rep. Bobby Rush [D, IL-1]
  • Rep. Timothy Ryan [D, OH-17]
  • Rep. John Salazar [D, CO-3]
  • Rep. Linda Sanchez [D, CA-39]
  • Rep. Loretta Sanchez [D, CA-47]
  • Rep. Janice Schakowsky [D, IL-9]
  • Rep. Adam Schiff [D, CA-29]
  • Rep. José Serrano [D, NY-16]
  • Rep. Christopher Shays [R, CT-4]
  • Rep. Michael Simpson [R, ID-2]
  • Rep. Albio Sires [D, NJ-13]
  • Rep. Hilda Solis [D, CA-32]
  • Rep. John Spratt [D, SC-5]
  • Rep. Fortney Stark [D, CA-13]
  • Rep. Ellen Tauscher [D, CA-10]
  • Rep. Edolphus Towns [D, NY-10]
  • Rep. Nydia Velazquez [D, NY-12]
  • Rep. Debbie Wasserman Schultz [D, FL-20]
  • Rep. Henry Waxman [D, CA-30]
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Committees

• House Energy and Commerce
• 1 more
  • House Energy and Commerce
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Amendments

This bill has no amendments.

Amendments to H.R.3825

Number	Status	Purpose

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Introduced		Voted on by House		Voted on by Senate		Considered By President		Bill Becomes Law
October 15, 2007

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In the News

April 12, 2008 What Legislature should -- and shouldn't -- do

It is ironic that on April 9, Congress finalized the Newborn Screening Saves Lives Act of 2008 (HR 3825/S. 1858). President Bush is expected to sign it. ...

Source: MiamiHerald.com, FL
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April 08, 2008 UPDATE: Newborn Testing Bill passes House of Representatives

In the House of Representatives, the bill (HR 3825) was sponsored by Representatives Lucille Roybal-Allard (D-CA), Mike Simpson (R-ID), Tom Reynolds (R-NY), ...

Source: WIVB
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April 08, 2008 Pro Football Hall of Fame Member Jim Kelly Urges Congress to ...

In the House of Representatives, the bill (HR 3825) was sponsored by Representatives Lucille Roybal-Allard (D-CA), Mike Simpson (R-ID), Tom Reynolds (R-NY), ...

Source: FOXBusiness
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Blog Coverage

May 14, 2008 Bush Signs Bill To Take All Newborns’ DNA

Brase states that S.1858 and HR 3825, the House version of the bill, will: • Establish a national list of genetic conditions for which newborns and children are to be tested. • Establish protocols for the linking and sharing of genetic ...

Source: ~/~ELIA's~\~ Blog
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May 14, 2008 Bush signs S.1858

This paper outlines five key issues of concern.OverviewIf enacted, S.1858 will nationalize thegenetic testing of all newborn childrenandindirectly their families. The bill and its USHouse companion bill, HR 3825, [...] Read More. ...

Source: Abolish The Federal Reserve - Gold Report-
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May 12, 2008 Has a Brave New World Arrived?

Brase states that S.1858 and HR 3825, the House version of the bill, will: • Establish a national list of genetic conditions for which newborns and children are to be tested. • Establish protocols for the linking and sharing of genetic ...

Source: Introspection of a Plural Wife (at Heart)
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