ALS Registry Act

A bill to amend the Public Health Service Act to provide for the establishment of an Amyotrophic Lateral Sclerosis Registry.

12/4/2007--Reported to Senate amended. ALS Registry Act -
(Sec. 2) Amends the Public Health Service Act to require the Secretary of Health and Human Services, acting through the Director of the Centers for Disease Control and Prevention (CDC), to:
(1) develop a system to collect data on amyotrophic lateral sclerosis (ALS) and other motor neuron disorders that can be confused with ALS, misdiagnosed as ALS, or progress to ALS; and
(2) establish a national registry for the collection and storage of such data to develop a population-based registry of cases. Requires the Secretary, acting through the Director, to establish the Advisory Committee on the National ALS Registry to review information and make recommendations to the Secretary concerning:
(1) the development and maintenance of the registry;
(2) the type of information to be included;
(3) the manner in which data is to be collected;
(4) the use and availability of such data; and
(5) the collection of information about diseases and disorders that primarily affect motor neurons that are considered essential to furthering the study and cure of ALS. Sets forth reporting requirements. Allows the Secretary, acting through the Director, to award grants to, and enter into contracts and cooperative agreements with, public or private nonprofit entities for the collection, analysis, and reporting of data on ALS and other motor neuron disorders. Requires the Secretary, acting through the Director, to:
(1) identify, build upon, expand, and coordinate among existing data and surveillance systems, surveys, registries, and other federal public health and environmental infrastructure wherever possible; and
(2) provide for research access to ALS data as recommended by the Advisory Committee in a manner that protects personal privacy. Requires the Secretary to ensure that epidemiological and other types of information is made available to the National Institutes of Health (NIH) and the Department of Veterans Affairs (VA). Authorizes appropriations for FY2008-FY2012.
(Sec. 3) Requires the Secretary to report to the appropriate congressional committees on ALS registries, including:
(1) the registries currently under way and future planned registries;
(2) the criteria involved in determining what registries to conduct, defer, or suspend;
(3) the scope of those registries; and
(4) the activities the Secretary undertakes to establish partnerships with research and patient advocacy communities to expand registries.


... morehide bill summarySee Full Bill Text

Sponsor

• Sen. Harry Reid [D, NV]
• and 77 Co-Sponsors
  • Sen. Daniel Akaka [D, HI]
  • Sen. John Barrasso [R, WY]
  • Sen. Max Baucus [D, MT]
  • Sen. B. Evan Bayh [D, IN]
  • Sen. Robert Bennett [R, UT]
  • Sen. Joseph Biden [D, DE]
  • Sen. Jeff Bingaman [D, NM]
  • Sen. Barbara Boxer [D, CA]
  • Sen. Sherrod Brown [D, OH]
  • Sen. Samuel Brownback [R, KS]
  • Sen. Jim Bunning [R, KY]
  • Sen. Richard Burr [R, NC]
  • Sen. Maria Cantwell [D, WA]
  • Sen. Benjamin Cardin [D, MD]
  • Sen. Thomas Carper [D, DE]
  • Sen. Robert Casey [D, PA]
  • Sen. C. Saxby Chambliss [R, GA]
  • Sen. Hillary Clinton [D, NY]
  • Sen. Thad Cochran [R, MS]
  • Sen. Norm Coleman [R, MN]
  • Sen. Susan Collins [R, ME]
  • Sen. Kent Conrad [D, ND]
  • Sen. Larry Craig [R, ID]
  • Sen. Michael Crapo [R, ID]
  • Sen. Jim DeMint [R, SC]
  • Sen. Christopher Dodd [D, CT]
  • Sen. Elizabeth Dole [R, NC]
  • Sen. Pete Domenici [R, NM]
  • Sen. Byron Dorgan [D, ND]
  • Sen. Richard Durbin [D, IL]
  • Sen. Dianne Feinstein [D, CA]
  • Sen. Lindsey Graham [R, SC]
  • Sen. Charles Grassley [R, IA]
  • Sen. Charles Hagel [R, NE]
  • Sen. Thomas Harkin [D, IA]
  • Sen. Orrin Hatch [R, UT]
  • Sen. Daniel Inouye [D, HI]
  • Sen. John Isakson [R, GA]
  • Sen. Tim Johnson [D, SD]
  • Sen. John Kerry [D, MA]
  • Sen. Amy Klobuchar [D, MN]
  • Sen. Mary Landrieu [D, LA]
  • Sen. Frank Lautenberg [D, NJ]
  • Sen. Patrick Leahy [D, VT]
  • Sen. Carl Levin [D, MI]
  • Sen. Joseph Lieberman [I, CT]
  • Sen. Blanche Lincoln [D, AR]
  • Sen. Trent Lott [R, MS]
  • Sen. Richard Lugar [R, IN]
  • Sen. Mel Martinez [R, FL]
  • Sen. John McCain [R, AZ]
  • Sen. Claire McCaskill [D, MO]
  • Sen. Robert Menendez [D, NJ]
  • Sen. Barbara Mikulski [D, MD]
  • Sen. Lisa Murkowski [R, AK]
  • Sen. Patty Murray [D, WA]
  • Sen. Bill Nelson [D, FL]
  • Sen. Ben Nelson [D, NE]
  • Sen. Mark Pryor [D, AR]
  • Sen. John Reed [D, RI]
  • Sen. Bernard Sanders [I, VT]
  • Sen. Charles Schumer [D, NY]
  • Sen. Jefferson Sessions [R, AL]
  • Sen. Gordon Smith [R, OR]
  • Sen. Olympia Snowe [R, ME]
  • Sen. Debbie Ann Stabenow [D, MI]
  • Sen. Ted Stevens [R, AK]
  • Sen. John Sununu [R, NH]
  • Sen. Jon Tester [D, MT]
  • Sen. John Thune [R, SD]
  • Sen. David Vitter [R, LA]
  • Sen. George Voinovich [R, OH]
  • Sen. John Warner [R, VA]
  • Sen. Jim Webb [D, VA]
  • Sen. Sheldon Whitehouse [D, RI]
  • Rep. Roger Wicker [R, MS-1]
  • Sen. Ron Wyden [D, OR]
  close

Committees

• Senate Health, Education, Labor, and Pensions

Amendments

This bill has 1 amendments. See All AmendmentsHide All Amendments

Amendments to S.1382

Number	Status	Purpose
S.Amdt.5637	Pass	In the nature of a substitute.

Bill Status

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Introduced		Voted on by Senate		Voted on by House		Considered By President		This Bill Has Become Law
May 14, 2007		September 23, 2008		September 26, 2008		October 08, 2008		October 08, 2008

Latest Vote

September 26, 2008Roll call number 650 in the House
Question: On Motion to Suspend the Rules and Pass: S 1382 To amend the Public Health Service Act to provide for the establishment of an Amyotrophic Lateral Sclerosis Registry
Required percentage of 'Aye' votes: 2/3 (66%)	Percentage of 'aye' votes: 95%	Result: Passed

Democrats Voting 'Aye'

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Rep. Neil Abercrombie [D, HI-1]
Rep. Gary Ackerman [D, NY-5]
Rep. Thomas Allen [D, ME-1]
Rep. Jason Altmire [D, PA-4]
Rep. Robert Andrews [D, NJ-1]
Rep. Michael Arcuri [D, NY-24]
Rep. Joe Baca [D, CA-43]
Rep. Brian Baird [D, WA-3]
Rep. Tammy Baldwin [D, WI-2]
Rep. John Barrow [D, GA-12]
Rep. Melissa Bean [D, IL-8]
Rep. Xavier Becerra [D, CA-31]
Rep. Shelley Berkley [D, NV-1]
Rep. Howard Berman [D, CA-28]
Rep. Robert Berry [D, AR-1]
Rep. Sanford Bishop [D, GA-2]
Rep. Timothy Bishop [D, NY-1]
Rep. Earl Blumenauer [D, OR-3]
Rep. Dan Boren [D, OK-2]
Rep. Leonard Boswell [D, IA-3]
Rep. Frederick Boucher [D, VA-9]
Rep. F. Allen Boyd [D, FL-2]
Rep. Nancy Boyda [D, KS-2]
Rep. Robert Brady [D, PA-1]
Rep. Bruce Braley [D, IA-1]
Rep. Corrine Brown [D, FL-3]
Rep. George Butterfield [D, NC-1]
Rep. Lois Capps [D, CA-23]
Rep. Michael Capuano [D, MA-8]
Rep. Dennis Cardoza [D, CA-18]
Rep. Russ Carnahan [D, MO-3]
Rep. Christopher Carney [D, PA-10]
Rep. André Carson [D, IN-7]
Rep. Kathy Castor [D, FL-11]
Rep. Donald Cazayoux [D, LA-6]
Rep. Ben Chandler [D, KY-6]
Rep. Travis Childers [D, MS-1]
Rep. Yvette Clarke [D, NY-11]
Rep. William Clay [D, MO-1]
Rep. Emanuel Cleaver [D, MO-5]
Rep. James Clyburn [D, SC-6]
Rep. Steve Cohen [D, TN-9]
Rep. John Conyers [D, MI-14]
Rep. Jim Cooper [D, TN-5]
Rep. Jerry Costello [D, IL-12]
Rep. Joe Courtney [D, CT-2]
Rep. Robert Cramer [D, AL-5]
Rep. Joseph Crowley [D, NY-7]
Rep. Henry Cuellar [D, TX-28]
Rep. Elijah Cummings [D, MD-7]
Rep. Artur Davis [D, AL-7]
Rep. Danny Davis [D, IL-7]
Rep. Lincoln Davis [D, TN-4]
Rep. Susan Davis [D, CA-53]
Rep. Peter DeFazio [D, OR-4]
Rep. Diana DeGette [D, CO-1]
Rep. William Delahunt [D, MA-10]
Rep. Rosa DeLauro [D, CT-3]
Rep. Norman Dicks [D, WA-6]
Rep. John Dingell [D, MI-15]
Rep. Lloyd Doggett [D, TX-25]
Rep. Joe Donnelly [D, IN-2]
Rep. Michael Doyle [D, PA-14]
Rep. Thomas Edwards [D, TX-17]
Rep. Keith Ellison [D, MN-5]
Rep. Brad Ellsworth [D, IN-8]
Rep. Rahm Emanuel [D, IL-5]
Rep. Eliot Engel [D, NY-17]
Rep. Anna Eshoo [D, CA-14]
Rep. Bob Etheridge [D, NC-2]
Rep. Sam Farr [D, CA-17]
Rep. Chaka Fattah [D, PA-2]
Rep. Bob Filner [D, CA-51]
Rep. Bill Foster [D, IL-14]
Rep. Barney Frank [D, MA-4]
Rep. Gabrielle Giffords [D, AZ-8]
Rep. Kirsten Gillibrand [D, NY-20]
Rep. Charles Gonzalez [D, TX-20]
Rep. Barton Gordon [D, TN-6]
Rep. Raymond Green [D, TX-29]
Rep. Al Green [D, TX-9]
Rep. Raul Grijalva [D, AZ-7]
Rep. Luis Gutierrez [D, IL-4]
Rep. John Hall [D, NY-19]
Rep. Phil Hare [D, IL-17]
Rep. Jane Harman [D, CA-36]
Rep. Alcee Hastings [D, FL-23]
Rep. Stephanie Herseth Sandlin [D, SD-0]
Rep. Brian Higgins [D, NY-27]
Rep. Baron Hill [D, IN-9]
Rep. Maurice Hinchey [D, NY-22]
Rep. Rubén Hinojosa [D, TX-15]
Rep. Mazie Hirono [D, HI-2]
Rep. Paul Hodes [D, NH-2]
Rep. Tim Holden [D, PA-17]
Rep. Rush Holt [D, NJ-12]
Rep. Michael Honda [D, CA-15]
Rep. Darlene Hooley [D, OR-5]
Rep. Steny Hoyer [D, MD-5]
Rep. Jay Inslee [D, WA-1]
Rep. Steve Israel [D, NY-2]
Rep. Jesse Jackson [D, IL-2]
Rep. Sheila Jackson-Lee [D, TX-18]
Rep. William Jefferson [D, LA-2]
Rep. Eddie Johnson [D, TX-30]
Rep. Henry Johnson [D, GA-4]
Rep. Paul Kanjorski [D, PA-11]
Rep. Marcy Kaptur [D, OH-9]
Rep. Patrick Kennedy [D, RI-1]
Rep. Dale Kildee [D, MI-5]
Rep. Carolyn Kilpatrick [D, MI-13]
Rep. Ronald Kind [D, WI-3]
Rep. Ron Klein [D, FL-22]
Rep. Dennis Kucinich [D, OH-10]
Rep. Nicholas Lampson [D, TX-22]
Rep. James Langevin [D, RI-2]
Rep. Rick Larsen [D, WA-2]
Rep. John Larson [D, CT-1]
Rep. Barbara Lee [D, CA-9]
Rep. Sander Levin [D, MI-12]
Rep. John Lewis [D, GA-5]
Rep. Daniel Lipinski [D, IL-3]
Rep. David Loebsack [D, IA-2]
Rep. Zoe Lofgren [D, CA-16]
Rep. Nita Lowey [D, NY-18]
Rep. Stephen Lynch [D, MA-9]
Rep. Tim Mahoney [D, FL-16]
Rep. Carolyn Maloney [D, NY-14]
Rep. Edward Markey [D, MA-7]
Rep. James Marshall [D, GA-8]
Rep. Jim Matheson [D, UT-2]
Rep. Doris Matsui [D, CA-5]
Rep. Betty McCollum [D, MN-4]
Rep. James McDermott [D, WA-7]
Rep. James McGovern [D, MA-3]
Rep. Mike McIntyre [D, NC-7]
Rep. Jerry McNerney [D, CA-11]
Rep. Michael McNulty [D, NY-21]
Rep. Kendrick Meek [D, FL-17]
Rep. Gregory Meeks [D, NY-6]
Rep. Charles Melancon [D, LA-3]
Rep. Michael Michaud [D, ME-2]
Rep. George Miller [D, CA-7]
Rep. R. Bradley Miller [D, NC-13]
Rep. Alan Mollohan [D, WV-1]
Rep. Dennis Moore [D, KS-3]
Rep. Gwen Moore [D, WI-4]
Rep. James Moran [D, VA-8]
Rep. Christopher Murphy [D, CT-5]
Rep. Patrick Murphy [D, PA-8]
Rep. John Murtha [D, PA-12]
Rep. Jerrold Nadler [D, NY-8]
Rep. Richard Neal [D, MA-2]
Rep. James Oberstar [D, MN-8]
Rep. David Obey [D, WI-7]
Rep. John Olver [D, MA-1]
Rep. Solomon Ortiz [D, TX-27]
Rep. Frank Pallone [D, NJ-6]
Rep. William Pascrell [D, NJ-8]
Rep. Edward Pastor [D, AZ-4]
Rep. Ed Perlmutter [D, CO-7]
Rep. Collin Peterson [D, MN-7]
Rep. Earl Pomeroy [D, ND-0]
Rep. David Price [D, NC-4]
Rep. Nick Rahall [D, WV-3]
Rep. Charles Rangel [D, NY-15]
Rep. Silvestre Reyes [D, TX-16]
Rep. Laura Richardson [D, CA-37]
Rep. Ciro Rodriguez [D, TX-23]
Rep. Mike Ross [D, AR-4]
Rep. Steven Rothman [D, NJ-9]
Rep. Lucille Roybal-Allard [D, CA-34]
Rep. C.A. Dutch Ruppersberger [D, MD-2]
Rep. Bobby Rush [D, IL-1]
Rep. Timothy Ryan [D, OH-17]
Rep. John Salazar [D, CO-3]
Rep. Linda Sanchez [D, CA-39]
Rep. Loretta Sanchez [D, CA-47]
Rep. John Sarbanes [D, MD-3]
Rep. Janice Schakowsky [D, IL-9]
Rep. Adam Schiff [D, CA-29]
Rep. Allyson Schwartz [D, PA-13]
Rep. David Scott [D, GA-13]
Rep. Robert Scott [D, VA-3]
Rep. José Serrano [D, NY-16]
Rep. Joe Sestak [D, PA-7]
Rep. Carol Shea-Porter [D, NH-1]
Rep. Brad Sherman [D, CA-27]
Rep. Heath Shuler [D, NC-11]
Rep. Albio Sires [D, NJ-13]
Rep. Ike Skelton [D, MO-4]
Rep. Louise Slaughter [D, NY-28]
Rep. Adam Smith [D, WA-9]
Rep. Victor Snyder [D, AR-2]
Rep. Hilda Solis [D, CA-32]
Rep. Zackary Space [D, OH-18]
Rep. Jackie Speier [D, CA-12]
Rep. John Spratt [D, SC-5]
Rep. Fortney Stark [D, CA-13]
Rep. Bart Stupak [D, MI-1]
Rep. Betty Sutton [D, OH-13]
Rep. John Tanner [D, TN-8]
Rep. Ellen Tauscher [D, CA-10]
Rep. Gene Taylor [D, MS-4]
Rep. Bennie Thompson [D, MS-2]
Rep. C. Michael Thompson [D, CA-1]
Rep. Edolphus Towns [D, NY-10]
Rep. Niki Tsongas [D, MA-5]
Rep. Mark Udall [D, CO-2]
Rep. Tom Udall [D, NM-3]
Rep. Christopher Van Hollen [D, MD-8]
Rep. Nydia Velazquez [D, NY-12]
Rep. Peter Visclosky [D, IN-1]
Rep. Timothy Walz [D, MN-1]
Rep. Debbie Wasserman Schultz [D, FL-20]
Rep. Diane Watson [D, CA-33]
Rep. Melvin Watt [D, NC-12]
Rep. Henry Waxman [D, CA-30]
Rep. Anthony Weiner [D, NY-9]
Rep. Peter Welch [D, VT-0]
Rep. Robert Wexler [D, FL-19]
Rep. Charles Wilson [D, OH-6]
Rep. Lynn Woolsey [D, CA-6]
Rep. David Wu [D, OR-1]
Rep. John Yarmuth [D, KY-3]

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Republicans Voting 'Aye'

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Rep. Robert Aderholt [R, AL-4]
Rep. W. Todd Akin [R, MO-2]
Rep. Rodney Alexander [R, LA-5]
Rep. Michele Bachmann [R, MN-6]
Rep. Spencer Bachus [R, AL-6]
Rep. James Barrett [R, SC-3]
Rep. Roscoe Bartlett [R, MD-6]
Rep. Judy Biggert [R, IL-13]
Rep. Brian Bilbray [R, CA-50]
Rep. Gus Bilirakis [R, FL-9]
Rep. Rob Bishop [R, UT-1]
Rep. Marsha Blackburn [R, TN-7]
Rep. Roy Blunt [R, MO-7]
Rep. John Boehner [R, OH-8]
Rep. Jo Bonner [R, AL-1]
Rep. Mary Bono Mack [R, CA-45]
Rep. John Boozman [R, AR-3]
Rep. Charles Boustany [R, LA-7]
Rep. Kevin Brady [R, TX-8]
Rep. Paul Broun [R, GA-10]
Rep. Henry Brown [R, SC-1]
Rep. Virginia Brown-Waite [R, FL-5]
Rep. Vern Buchanan [R, FL-13]
Rep. Michael Burgess [R, TX-26]
Rep. Dan Burton [R, IN-5]
Rep. Stephen Buyer [R, IN-4]
Rep. David Camp [R, MI-4]
Rep. John Campbell [R, CA-48]
Rep. Christopher Cannon [R, UT-3]
Rep. Eric Cantor [R, VA-7]
Rep. Shelley Capito [R, WV-2]
Rep. John Carter [R, TX-31]
Rep. Michael Castle [R, DE-0]
Rep. Steven Chabot [R, OH-1]
Rep. Howard Coble [R, NC-6]
Rep. Tom Cole [R, OK-4]
Rep. K. Michael Conaway [R, TX-11]
Rep. Ander Crenshaw [R, FL-4]
Rep. John Culberson [R, TX-7]
Rep. Thomas Davis [R, VA-11]
Rep. Geoff Davis [R, KY-4]
Rep. David Davis [R, TN-1]
Rep. Nathan Deal [R, GA-9]
Rep. Charles Dent [R, PA-15]
Rep. Lincoln Diaz-Balart [R, FL-21]
Rep. Mario Diaz-Balart [R, FL-25]
Rep. John Doolittle [R, CA-4]
Rep. Thelma Drake [R, VA-2]
Rep. David Dreier [R, CA-26]
Rep. John Duncan [R, TN-2]
Rep. Vernon Ehlers [R, MI-3]
Rep. Jo Ann Emerson [R, MO-8]
Rep. Philip English [R, PA-3]
Rep. Terry Everett [R, AL-2]
Rep. Mary Fallin [R, OK-5]
Rep. Tom Feeney [R, FL-24]
Rep. Michael Ferguson [R, NJ-7]
Rep. James Forbes [R, VA-4]
Rep. Jeffrey Fortenberry [R, NE-1]
Rep. Vito Fossella [R, NY-13]
Rep. Virginia Foxx [R, NC-5]
Rep. Trent Franks [R, AZ-2]
Rep. Rodney Frelinghuysen [R, NJ-11]
Rep. Elton Gallegly [R, CA-24]
Rep. E. Scott Garrett [R, NJ-5]
Rep. Jim Gerlach [R, PA-6]
Rep. Wayne Gilchrest [R, MD-1]
Rep. John Gingrey [R, GA-11]
Rep. Louis Gohmert [R, TX-1]
Rep. Virgil Goode [R, VA-5]
Rep. Robert Goodlatte [R, VA-6]
Rep. Kay Granger [R, TX-12]
Rep. Samuel Graves [R, MO-6]
Rep. Ralph Hall [R, TX-4]
Rep. Doc Hastings [R, WA-4]
Rep. Robin Hayes [R, NC-8]
Rep. Dean Heller [R, NV-2]
Rep. Jeb Hensarling [R, TX-5]
Rep. Walter Herger [R, CA-2]
Rep. David Hobson [R, OH-7]
Rep. Peter Hoekstra [R, MI-2]
Rep. Kenny Hulshof [R, MO-9]
Rep. Duncan Hunter [R, CA-52]
Rep. Bob Inglis [R, SC-4]
Rep. Darrell Issa [R, CA-49]
Rep. Samuel Johnson [R, TX-3]
Rep. Timothy Johnson [R, IL-15]
Rep. Walter Jones [R, NC-3]
Rep. Jim Jordan [R, OH-4]
Rep. Ric Keller [R, FL-8]
Rep. Peter King [R, NY-3]
Rep. Steve King [R, IA-5]
Rep. Jack Kingston [R, GA-1]
Rep. Mark Kirk [R, IL-10]
Rep. John Kline [R, MN-2]
Rep. Joseph Knollenberg [R, MI-9]
Rep. John Kuhl [R, NY-29]
Rep. Ray LaHood [R, IL-18]
Rep. Doug Lamborn [R, CO-5]
Rep. Thomas Latham [R, IA-4]
Rep. Steven LaTourette [R, OH-14]
Rep. Robert Latta [R, OH-5]
Rep. Jerry Lewis [R, CA-41]
Rep. Ron Lewis [R, KY-2]
Rep. John Linder [R, GA-7]
Rep. Frank LoBiondo [R, NJ-2]
Rep. Frank Lucas [R, OK-3]
Rep. Daniel Lungren [R, CA-3]
Rep. Connie Mack [R, FL-14]
Rep. Donald Manzullo [R, IL-16]
Rep. Kenny Marchant [R, TX-24]
Rep. Kevin McCarthy [R, CA-22]
Rep. Michael McCaul [R, TX-10]
Rep. Thaddeus McCotter [R, MI-11]
Rep. James McCrery [R, LA-4]
Rep. Patrick Mchenry [R, NC-10]
Rep. John McHugh [R, NY-23]
Rep. Howard McKeon [R, CA-25]
Rep. Cathy McMorris Rodgers [R, WA-5]
Rep. John Mica [R, FL-7]
Rep. Candice Miller [R, MI-10]
Rep. Gary Miller [R, CA-42]
Rep. Jeff Miller [R, FL-1]
Rep. Jerry Moran [R, KS-1]
Rep. Tim Murphy [R, PA-18]
Rep. Marilyn Musgrave [R, CO-4]
Rep. Sue Myrick [R, NC-9]
Rep. Randy Neugebauer [R, TX-19]
Rep. Devin Nunes [R, CA-21]
Rep. Steven Pearce [R, NM-2]
Rep. Mike Pence [R, IN-6]
Rep. Thomas Petri [R, WI-6]
Rep. Joseph Pitts [R, PA-16]
Rep. Todd Platts [R, PA-19]
Rep. Ted Poe [R, TX-2]
Rep. Jon Porter [R, NV-3]
Rep. Tom Price [R, GA-6]
Rep. Deborah Pryce [R, OH-15]
Rep. Adam Putnam [R, FL-12]
Rep. George Radanovich [R, CA-19]
Rep. James Ramstad [R, MN-3]
Rep. Ralph Regula [R, OH-16]
Rep. Dennis Rehberg [R, MT-0]
Rep. Dave Reichert [R, WA-8]
Rep. Rick Renzi [R, AZ-1]
Rep. Thomas Reynolds [R, NY-26]
Rep. Harold Rogers [R, KY-5]
Rep. Michael Rogers [R, AL-3]
Rep. Michael Rogers [R, MI-8]
Rep. Dana Rohrabacher [R, CA-46]
Rep. Ileana Ros-Lehtinen [R, FL-18]
Rep. Edward Royce [R, CA-40]
Rep. Paul Ryan [R, WI-1]
Rep. Bill Sali [R, ID-1]
Rep. H. James Saxton [R, NJ-3]
Rep. Steve Scalise [R, LA-1]
Rep. Jean Schmidt [R, OH-2]
Rep. F. James Sensenbrenner [R, WI-5]
Rep. Peter Sessions [R, TX-32]
Rep. John Shadegg [R, AZ-3]
Rep. Christopher Shays [R, CT-4]
Rep. William Shuster [R, PA-9]
Rep. Michael Simpson [R, ID-2]
Rep. Christopher Smith [R, NJ-4]
Rep. Lamar Smith [R, TX-21]
Rep. Adrian Smith [R, NE-3]
Rep. Mark Souder [R, IN-3]
Rep. Clifford Stearns [R, FL-6]
Rep. John Sullivan [R, OK-1]
Rep. Thomas Tancredo [R, CO-6]
Rep. Lee Terry [R, NE-2]
Rep. William Thornberry [R, TX-13]
Rep. Todd Tiahrt [R, KS-4]
Rep. Patrick Tiberi [R, OH-12]
Rep. Michael Turner [R, OH-3]
Rep. Frederick Upton [R, MI-6]
Rep. Timothy Walberg [R, MI-7]
Rep. Greg Walden [R, OR-2]
Rep. James Walsh [R, NY-25]
Rep. Zach Wamp [R, TN-3]
Rep. David Weldon [R, FL-15]
Rep. Lynn Westmoreland [R, GA-3]
Rep. Edward Whitfield [R, KY-1]
Rep. Addison Wilson [R, SC-2]
Rep. Heather Wilson [R, NM-1]
Rep. Rob Wittman [R, VA-1]
Rep. Frank Wolf [R, VA-10]
Rep. C. W. Bill Young [R, FL-10]
Rep. Donald Young [R, AK-0]

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Others Voting 'Aye'

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Democrats Voting 'Nay'

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Republicans Voting 'Nay'

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Rep. Jeff Flake [R, AZ-6]
Rep. Ronald Paul [R, TX-14]

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Others Voting 'Nay'

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Democrats Voting 'Abstain'

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Rep. Jim Costa [D, CA-20]
Rep. Steve Kagen [D, WI-8]
Rep. Carolyn McCarthy [D, NY-4]
Rep. Harry Mitchell [D, AZ-5]
Rep. Grace Napolitano [D, CA-38]
Rep. Donald Payne [D, NJ-10]
Rep. John Tierney [D, MA-6]
Rep. Maxine Waters [D, CA-35]

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Republicans Voting 'Abstain'

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Rep. Joe Barton [R, TX-6]
Rep. Ken Calvert [R, CA-44]
Rep. Barbara Cubin [R, WY-0]
Rep. John Peterson [R, PA-5]
Rep. Charles Pickering [R, MS-3]
Rep. Peter Roskam [R, IL-6]
Rep. John Shimkus [R, IL-19]
Rep. Gerald Weller [R, IL-11]

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Others Voting 'Abstain'

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See Full Voting History (1 votes)Hide Voting History     Show All Actions (24 actions)Hide Actions

Voting History

Date	Chamber	Question	Aye	Nay	Result
September 26, 2008	House	S.1382 ALS Registry Act On Motion to Suspend the Rules and Pass: S 1382 To amend the Public Health Service Act to provide for the establishment of an Amyotrophic Lateral Sclerosis Registry	415	2	Passed	See Vote

All Bill Actions

• Enacted on Oct 08, 2008. Became Public Law No: 110-373.
• Signed on Oct 08, 2008.
• Sep 29, 2008. Presented to President.
• Passed roll in the House on Sep 26, 2008. On motion to suspend the rules and pass the bill Agreed to by recorded vote (2/3 required): 415 - 2 (Roll no. 650). (text: CR 9/25/2008 H9916)
• Passed roll in the House on Sep 26, 2008. On motion to suspend the rules and pass the bill Agreed to by recorded vote (2/3 required): 415 - 2 (Roll no. 650).
• Sep 26, 2008: Considered as unfinished business.
• Sep 26, 2008. Cleared for White House.
• Sep 25, 2008: At the conclusion of debate, the chair put the question on the motion to suspend the rules. Mr. Terry objected to the vote on the grounds that a quorum was not present. Further proceedings on the motion were postponed. The point of no quorum was withdrawn.
• Sep 25, 2008: DEBATE - The House proceeded with forty minutes of debate on S. 1382.
• Sep 25, 2008: Considered under suspension of the rules.
• Sep 25, 2008: Mr. Pallone moved to suspend the rules and pass the bill.
• Sep 24, 2008: Held at the desk.
• Sep 24, 2008: Received in the House.
• Sep 24, 2008: Message on Senate action sent to the House.
• Passed by Unanimous Consent in the Senate on Sep 23, 2008. Passed Senate with an amendment by Unanimous Consent.
• Sep 23, 2008: Measure laid before Senate by unanimous consent.
• Added to calendar on Dec 04, 2007: Placed on Senate Legislative Calendar under General Orders. Calendar No. 518..
• Dec 04, 2007: Committee on Health, Education, Labor, and Pensions. Reported by Senator Kennedy with an amendment in the nature of a substitute. Without written report.
• Added to calendar on Nov 14, 2007: Committee on Health, Education, Labor, and Pensions. Ordered to be reported with an amendment in the nature of a substitute favorably..
• Nov 14, 2007: Committee on Health, Education, Labor, and Pensions. Ordered to be reported with an amendment in the nature of a substitute favorably.
• Nov 14, 2007: Committee on Health, Education, Labor, and Pensions. Date of scheduled consideration. SD-430. 9:30 a.m.
• May 14, 2007: Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
• May 14, 2007: Sponsor introductory remarks on measure. (CR S6062)
• Introduced on May 14, 2007.

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Related Bills:

• H.R.2295

Related Issue Areas:

• Right of privacy
• Medical records
• Congressional reporting requirements
• Congress
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• Civil liberties
• Medicine
• Budgets
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• Executive departments
• Federal advisory bodies
• Federal aid to health facilities
• Health information systems
• Health surveys
• Medical care
• Medical statistics
• Nervous system diseases
• Public contracts
• Technology

Data from the Congressional Research Service

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In the News

September 27, 2008 Congress passes ALS registry bill

Congress took a major step in the fight against Lou Gehrig's Disease recently when the House of Representatives passed the ALS Registry Act (S. 1382). ...

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Source: Joplin Independent, MO

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August 10, 2007 Act offers hope for ALS patients

This year, Congress has an opportunity to help our nation make progress in the fight against Lou Gehrig's disease by passing legislation (HR 2295/S. 1382) ...

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Source: Connellsville Daily Courier, PA

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July 15, 2007 Approve bill to create registry for ALS disease

... help our nation make progress in the fight against Lou Gehrig's disease by passing legislation - HR 2295/S. 1382 - to create a nationwide ALS registry. ...

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Source: Bloomington Pantagraph,  USA

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Blog Coverage

October 03, 2008 Having ALS Registry Act will be a significant step

Congress took a major step in the fight against Lou Gehrig's Disease when the House of Representatives passed the ALS Registry Act. S. 1382 now heads to President Bush, who is expected to sign the bill into law.

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Source: Opinion/letters from pantagraph.com

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September 29, 2008 Historic Week in Congress For The ALS Association!

Congress took a major step in the fight against Lou Gehrig’s Disease today when the House of Representatives passed the ALS Registry Act (S. 1382). The legislation, which passed the US Senate on September 23, now heads to President Bush ...

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Source: ALS Association of Greater New York

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September 25, 2008 Today in Congress/Open Thread

11) S. 1382 - ALS Registry Act (Sen. Reid – Energy and Commerce). 12) S. 1810 - The Prenatally and Postnatally Diagnosed Conditions Awareness Act (Sen. Brownback – Energy and Commerce). 13) S. 2932 - The Poison Center Support, ...

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