S.1382 - ALS Registry Act
A bill to amend the Public Health Service Act to provide the establishment of an Amyotrophic Lateral Sclerosis Registry. view all titles (5)
All Bill Titles
- Official: A bill to amend the Public Health Service Act to provide the establishment of an Amyotrophic Lateral Sclerosis Registry. as introduced.
- Official: A bill to amend the Public Health Service Act to provide for the establishment of an Amyotrophic Lateral Sclerosis Registry. as introduced.
- Short: ALS Registry Act as introduced.
- Short: ALS Registry Act as reported to senate.
- Short: ALS Registry Act as enacted.
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Latest Vote
Roll call number 650 in the House
Question: On Motion to Suspend the Rules and Pass: S 1382 To amend the Public Health Service Act to provide for the establishment of an Amyotrophic Lateral Sclerosis Registry
Democrats Voting 'Aye'
Neil AbercrombieRep. Gary Ackerman [D, NY-5]
Thomas Allen
Rep. Jason Altmire [D, PA-4]
Rep. Robert Andrews [D, NJ-1]
Michael Arcuri
Rep. Joe Baca [D, CA-43]
Brian Baird
Rep. Tammy Baldwin [D, WI-2]
Rep. John Barrow [D, GA-12]
Melissa Bean
Rep. Xavier Becerra [D, CA-31]
Rep. Shelley Berkley [D, NV-1]
Rep. Howard Berman [D, CA-28]
Robert Berry
Rep. Sanford Bishop [D, GA-2]
Rep. Timothy Bishop [D, NY-1]
Rep. Earl Blumenauer [D, OR-3]
Rep. Dan Boren [D, OK-2]
Rep. Leonard Boswell [D, IA-3]
Frederick Boucher
Allen Boyd
Nancy Boyda
Rep. Robert Brady [D, PA-1]
Rep. Bruce Braley [D, IA-1]
Rep. Corrine Brown [D, FL-3]
Rep. George Butterfield [D, NC-1]
Rep. Lois Capps [D, CA-23]
Rep. Michael Capuano [D, MA-8]
Rep. Dennis Cardoza [D, CA-18]
Rep. Russ Carnahan [D, MO-3]
Christopher Carney
Rep. André Carson [D, IN-7]
Rep. Kathy Castor [D, FL-11]
Donald Cazayoux
Rep. Ben Chandler [D, KY-6]
Travis Childers
Rep. Yvette Clarke [D, NY-11]
Rep. William Clay [D, MO-1]
Rep. Emanuel Cleaver [D, MO-5]
Rep. James Clyburn [D, SC-6]
Rep. Steve Cohen [D, TN-9]
Rep. John Conyers [D, MI-14]
Rep. Jim Cooper [D, TN-5]
Rep. Jerry Costello [D, IL-12]
Rep. Joe Courtney [D, CT-2]
Robert Cramer
Rep. Joseph Crowley [D, NY-7]
Rep. Henry Cuellar [D, TX-28]
Rep. Elijah Cummings [D, MD-7]
Lincoln Davis
Rep. Danny Davis [D, IL-7]
Rep. Susan Davis [D, CA-53]
Artur Davis
Rep. Peter DeFazio [D, OR-4]
Rep. Diana DeGette [D, CO-1]
William Delahunt
Rep. Rosa DeLauro [D, CT-3]
Rep. Norman Dicks [D, WA-6]
Rep. John Dingell [D, MI-15]
Rep. Lloyd Doggett [D, TX-25]
Rep. Joe Donnelly [D, IN-2]
Rep. Michael Doyle [D, PA-14]
Thomas Edwards
Rep. Keith Ellison [D, MN-5]
Brad Ellsworth
Rahm Emanuel
Rep. Eliot Engel [D, NY-17]
Rep. Anna Eshoo [D, CA-14]
Bob Etheridge
Rep. Sam Farr [D, CA-17]
Rep. Chaka Fattah [D, PA-2]
Rep. Bob Filner [D, CA-51]
Bill Foster
Rep. Barney Frank [D, MA-4]
Rep. Gabrielle Giffords [D, AZ-8]
Sen. Kirsten Gillibrand [D, NY]
Rep. Charles Gonzalez [D, TX-20]
Barton Gordon
Rep. Al Green [D, TX-9]
Rep. Raymond Green [D, TX-29]
Rep. Raul Grijalva [D, AZ-7]
Rep. Luis Gutiérrez [D, IL-4]
John Hall
Phil Hare
Rep. Jane Harman [D, CA-36]
Rep. Alcee Hastings [D, FL-23]
Stephanie Herseth Sandlin
Rep. Brian Higgins [D, NY-27]
Baron Hill
Rep. Maurice Hinchey [D, NY-22]
Rep. Rubén Hinojosa [D, TX-15]
Rep. Mazie Hirono [D, HI-2]
Paul Hodes
Rep. Tim Holden [D, PA-17]
Rep. Rush Holt [D, NJ-12]
Rep. Michael Honda [D, CA-15]
Darlene Hooley
Rep. Steny Hoyer [D, MD-5]
Rep. Jay Inslee [D, WA-1]
Rep. Steve Israel [D, NY-2]
Rep. Jesse Jackson [D, IL-2]
Rep. Sheila Jackson-Lee [D, TX-18]
William Jefferson
Rep. Eddie Johnson [D, TX-30]
Rep. Henry Johnson [D, GA-4]
Paul Kanjorski
Rep. Marcy Kaptur [D, OH-9]
Patrick Kennedy
Rep. Dale Kildee [D, MI-5]
Carolyn Kilpatrick
Rep. Ronald Kind [D, WI-3]
Ron Klein
Rep. Dennis Kucinich [D, OH-10]
Nicholas Lampson
Rep. James Langevin [D, RI-2]
Rep. Rick Larsen [D, WA-2]
Rep. John Larson [D, CT-1]
Rep. Barbara Lee [D, CA-9]
Rep. Sander Levin [D, MI-12]
Rep. John Lewis [D, GA-5]
Rep. Daniel Lipinski [D, IL-3]
Rep. David Loebsack [D, IA-2]
Rep. Zoe Lofgren [D, CA-16]
Rep. Nita Lowey [D, NY-18]
Rep. Stephen Lynch [D, MA-9]
Tim Mahoney
Rep. Carolyn Maloney [D, NY-14]
Rep. Edward Markey [D, MA-7]
James Marshall
Rep. Jim Matheson [D, UT-2]
Rep. Doris Matsui [D, CA-5]
Rep. Betty McCollum [D, MN-4]
Rep. James McDermott [D, WA-7]
Rep. James McGovern [D, MA-3]
Rep. Mike McIntyre [D, NC-7]
Rep. Jerry McNerney [D, CA-11]
Michael McNulty
Kendrick Meek
Rep. Gregory Meeks [D, NY-6]
Charles Melancon
Rep. Michael Michaud [D, ME-2]
Rep. Bradley Miller [D, NC-13]
Rep. George Miller [D, CA-7]
Alan Mollohan
Dennis Moore
Rep. Gwen Moore [D, WI-4]
Rep. James Moran [D, VA-8]
Patrick Murphy
Rep. Christopher Murphy [D, CT-5]
John Murtha
Rep. Jerrold Nadler [D, NY-8]
Rep. Richard Neal [D, MA-2]
James Oberstar
David Obey
Rep. John Olver [D, MA-1]
Solomon Ortiz
Rep. Frank Pallone [D, NJ-6]
Rep. William Pascrell [D, NJ-8]
Rep. Edward Pastor [D, AZ-4]
Rep. Ed Perlmutter [D, CO-7]
Rep. Collin Peterson [D, MN-7]
Earl Pomeroy
Rep. David Price [D, NC-4]
Rep. Nick Rahall [D, WV-3]
Rep. Charles Rangel [D, NY-15]
Rep. Silvestre Reyes [D, TX-16]
Rep. Laura Richardson [D, CA-37]
Ciro Rodriguez
Rep. Mike Ross [D, AR-4]
Rep. Steven Rothman [D, NJ-9]
Rep. Lucille Roybal-Allard [D, CA-34]
Rep. Dutch Ruppersberger [D, MD-2]
Rep. Bobby Rush [D, IL-1]
Rep. Timothy Ryan [D, OH-17]
John Salazar
Rep. Loretta Sanchez [D, CA-47]
Rep. Linda Sánchez [D, CA-39]
Rep. John Sarbanes [D, MD-3]
Rep. Janice Schakowsky [D, IL-9]
Rep. Adam Schiff [D, CA-29]
Rep. Allyson Schwartz [D, PA-13]
Rep. Robert Scott [D, VA-3]
Rep. David Scott [D, GA-13]
Rep. José Serrano [D, NY-16]
Joe Sestak
Carol Shea-Porter
Rep. Brad Sherman [D, CA-27]
Rep. Heath Shuler [D, NC-11]
Rep. Albio Sires [D, NJ-13]
Ike Skelton
Rep. Louise Slaughter [D, NY-28]
Rep. Adam Smith [D, WA-9]
Victor Snyder
Hilda Solis
Zachary Space
Rep. Jackie Speier [D, CA-12]
John Spratt
Rep. Fortney Stark [D, CA-13]
Bart Stupak
Rep. Betty Sutton [D, OH-13]
John Tanner
Ellen Tauscher
Gene Taylor
Rep. Bennie Thompson [D, MS-2]
Rep. Michael Thompson [D, CA-1]
Rep. Edolphus Towns [D, NY-10]
Rep. Niki Tsongas [D, MA-5]
Sen. Tom Udall [D, NM]
Sen. Mark Udall [D, CO]
Rep. Christopher Van Hollen [D, MD-8]
Rep. Nydia Velázquez [D, NY-12]
Rep. Peter Visclosky [D, IN-1]
Rep. Timothy Walz [D, MN-1]
Rep. Debbie Wasserman Schultz [D, FL-20]
Diane Watson
Rep. Melvin Watt [D, NC-12]
Rep. Henry Waxman [D, CA-30]
Rep. Anthony Weiner [D, NY-9]
Rep. Peter Welch [D, VT-0]
Robert Wexler
Charles Wilson
Rep. Lynn Woolsey [D, CA-6]
Rep. David Wu [D, OR-1]
Rep. John Yarmuth [D, KY-3]
Republicans Voting 'Aye'
Rep. Robert Aderholt [R, AL-4]Rep. Todd Akin [R, MO-2]
Rep. Rodney Alexander [R, LA-5]
Rep. Michele Bachmann [R, MN-6]
Rep. Spencer Bachus [R, AL-6]
James Barrett
Rep. Roscoe Bartlett [R, MD-6]
Rep. Judy Biggert [R, IL-13]
Rep. Brian Bilbray [R, CA-50]
Rep. Gus Bilirakis [R, FL-9]
Rep. Rob Bishop [R, UT-1]
Rep. Marsha Blackburn [R, TN-7]
Sen. Roy Blunt [R, MO]
Rep. John Boehner [R, OH-8]
Rep. Jo Bonner [R, AL-1]
Rep. Mary Bono Mack [R, CA-45]
Sen. John Boozman [R, AR]
Rep. Charles Boustany [R, LA-7]
Rep. Kevin Brady [R, TX-8]
Rep. Paul Broun [R, GA-10]
Henry Brown
Virginia Brown-Waite
Rep. Vern Buchanan [R, FL-13]
Rep. Michael Burgess [R, TX-26]
Rep. Dan Burton [R, IN-5]
Stephen Buyer
Rep. David Camp [R, MI-4]
Rep. John Campbell [R, CA-48]
Christopher Cannon
Rep. Eric Cantor [R, VA-7]
Rep. Shelley Capito [R, WV-2]
Rep. John Carter [R, TX-31]
Michael Castle
Rep. Steven Chabot [R, OH-1]
Rep. Howard Coble [R, NC-6]
Rep. Tom Cole [R, OK-4]
Rep. Michael Conaway [R, TX-11]
Rep. Ander Crenshaw [R, FL-4]
Rep. John Culberson [R, TX-7]
David Davis
Thomas Davis
Rep. Geoff Davis [R, KY-4]
Nathan Deal
Rep. Charles Dent [R, PA-15]
Lincoln Diaz-Balart
Rep. Mario Diaz-Balart [R, FL-21]
John Doolittle
Thelma Drake
Rep. David Dreier [R, CA-26]
Rep. John Duncan [R, TN-2]
Vernon Ehlers
Rep. Jo Ann Emerson [R, MO-8]
Philip English
Terry Everett
Mary Fallin
Tom Feeney
Michael Ferguson
Rep. Randy Forbes [R, VA-4]
Rep. Jeffrey Fortenberry [R, NE-1]
Vito Fossella
Rep. Virginia Foxx [R, NC-5]
Rep. Trent Franks [R, AZ-2]
Rep. Rodney Frelinghuysen [R, NJ-11]
Rep. Elton Gallegly [R, CA-24]
Rep. Scott Garrett [R, NJ-5]
Rep. Jim Gerlach [R, PA-6]
Wayne Gilchrest
Rep. John Gingrey [R, GA-11]
Rep. Louis Gohmert [R, TX-1]
Virgil Goode
Rep. Robert Goodlatte [R, VA-6]
Rep. Kay Granger [R, TX-12]
Rep. Samuel Graves [R, MO-6]
Rep. Ralph Hall [R, TX-4]
Rep. Doc Hastings [R, WA-4]
Robin Hayes
Sen. Dean Heller [R, NV]
Rep. Jeb Hensarling [R, TX-5]
Rep. Walter Herger [R, CA-2]
David Hobson
Peter Hoekstra
Kenny Hulshof
Duncan Hunter
Bob Inglis
Rep. Darrell Issa [R, CA-49]
Rep. Samuel Johnson [R, TX-3]
Rep. Timothy Johnson [R, IL-15]
Rep. Walter Jones [R, NC-3]
Rep. Jim Jordan [R, OH-4]
Ric Keller
Rep. Steve King [R, IA-5]
Rep. Peter King [R, NY-3]
Rep. Jack Kingston [R, GA-1]
Sen. Mark Kirk [R, IL]
Rep. John Kline [R, MN-2]
Joseph Knollenberg
John Kuhl
Ray LaHood
Rep. Doug Lamborn [R, CO-5]
Rep. Thomas Latham [R, IA-4]
Rep. Steven LaTourette [R, OH-14]
Rep. Robert Latta [R, OH-5]
Rep. Jerry Lewis [R, CA-41]
Ron Lewis
John Linder
Rep. Frank LoBiondo [R, NJ-2]
Rep. Frank Lucas [R, OK-3]
Rep. Daniel Lungren [R, CA-3]
Rep. Connie Mack [R, FL-14]
Rep. Donald Manzullo [R, IL-16]
Rep. Kenny Marchant [R, TX-24]
Rep. Kevin McCarthy [R, CA-22]
Rep. Michael McCaul [R, TX-10]
Rep. Thaddeus McCotter [R, MI-11]
James McCrery
Rep. Patrick McHenry [R, NC-10]
John McHugh
Rep. Howard McKeon [R, CA-25]
Rep. Cathy McMorris Rodgers [R, WA-5]
Rep. John Mica [R, FL-7]
Rep. Gary Miller [R, CA-42]
Rep. Jeff Miller [R, FL-1]
Rep. Candice Miller [R, MI-10]
Sen. Jerry Moran [R, KS]
Rep. Tim Murphy [R, PA-18]
Marilyn Musgrave
Rep. Sue Myrick [R, NC-9]
Rep. Randy Neugebauer [R, TX-19]
Rep. Devin Nunes [R, CA-21]
Rep. Steven Pearce [R, NM-2]
Rep. Mike Pence [R, IN-6]
Rep. Thomas Petri [R, WI-6]
Rep. Joseph Pitts [R, PA-16]
Rep. Todd Platts [R, PA-19]
Rep. Ted Poe [R, TX-2]
Jon Porter
Rep. Tom Price [R, GA-6]
Deborah Pryce
Adam Putnam
George Radanovich
James Ramstad
Ralph Regula
Rep. Dennis Rehberg [R, MT-0]
Rep. Dave Reichert [R, WA-8]
Rick Renzi
Thomas Reynolds
Rep. Michael Rogers [R, MI-8]
Rep. Michael Rogers [R, AL-3]
Rep. Harold Rogers [R, KY-5]
Rep. Dana Rohrabacher [R, CA-46]
Rep. Ileana Ros-Lehtinen [R, FL-18]
Rep. Edward Royce [R, CA-40]
Rep. Paul Ryan [R, WI-1]
Bill Sali
James Saxton
Rep. Steve Scalise [R, LA-1]
Rep. Jean Schmidt [R, OH-2]
Rep. James Sensenbrenner [R, WI-5]
Rep. Peter Sessions [R, TX-32]
John Shadegg
Christopher Shays
Rep. William Shuster [R, PA-9]
Rep. Michael Simpson [R, ID-2]
Rep. Lamar Smith [R, TX-21]
Rep. Adrian Smith [R, NE-3]
Rep. Christopher Smith [R, NJ-4]
Mark Souder
Rep. Clifford Stearns [R, FL-6]
Rep. John Sullivan [R, OK-1]
Thomas Tancredo
Rep. Lee Terry [R, NE-2]
Rep. William Thornberry [R, TX-13]
Todd Tiahrt
Rep. Patrick Tiberi [R, OH-12]
Rep. Michael Turner [R, OH-3]
Rep. Frederick Upton [R, MI-6]
Rep. Timothy Walberg [R, MI-7]
Rep. Greg Walden [R, OR-2]
James Walsh
Zach Wamp
David Weldon
Rep. Lynn Westmoreland [R, GA-3]
Rep. Edward Whitfield [R, KY-1]
Heather Wilson
Rep. Addison Wilson [R, SC-2]
Rep. Rob Wittman [R, VA-1]
Rep. Frank Wolf [R, VA-10]
Rep. Bill Young [R, FL-10]
Rep. Donald Young [R, AK-0]
Others Voting 'Aye'
Democrats Voting 'Abstain'
Rep. Jim Costa [D, CA-20]Steve Kagen
Rep. Carolyn McCarthy [D, NY-4]
Harry Mitchell
Rep. Grace Napolitano [D, CA-38]
Rep. Donald Payne [D, NJ-10]
Rep. John Tierney [D, MA-6]
Rep. Maxine Waters [D, CA-35]
Republicans Voting 'Abstain'
Rep. Joe Barton [R, TX-6]Rep. Ken Calvert [R, CA-44]
Barbara Cubin
John Peterson
Charles Pickering
Rep. Peter Roskam [R, IL-6]
Rep. John Shimkus [R, IL-19]
Gerald Weller
Others Voting 'Abstain'
Official Summary
12/4/2007--Reported to Senate amended. ALS Registry Act - (Sec. 2) Amends the Public Health Service Act to require the Secretary of Health and Human Services, acting through the Director of the Centers for Disease Control and Prevention (CDC), to: (1) develop a system to collect data on amOfficial Summary
12/4/2007--Reported to Senate amended. ALS Registry Act -(Sec. 2)
Amends the Public Health Service Act to require the Secretary of Health and Human Services, acting through the Director of the Centers for Disease Control and Prevention (CDC), to:(1) develop a system to collect data on amyotrophic lateral sclerosis (ALS) and other motor neuron disorders that can be confused with ALS, misdiagnosed as ALS, or progress to ALS; and
(2) establish a national registry for the collection and storage of such data to develop a population-based registry of cases. Requires the Secretary, acting through the Director, to establish the Advisory Committee on the National ALS Registry to review information and make recommendations to the Secretary concerning:
(1) the development and maintenance of the registry;
(2) the type of information to be included;
(3) the manner in which data is to be collected;
(4) the use and availability of such data; and
(5) the collection of information about diseases and disorders that primarily affect motor neurons that are considered essential to furthering the study and cure of ALS. Sets forth reporting requirements. Allows the Secretary, acting through the Director, to award grants to, and enter into contracts and cooperative agreements with, public or private nonprofit entities for the collection, analysis, and reporting of data on ALS and other motor neuron disorders. Requires the Secretary, acting through the Director, to:
(1) identify, build upon, expand, and coordinate among existing data and surveillance systems, surveys, registries, and other federal public health and environmental infrastructure wherever possible; and
(2) provide for research access to ALS data as recommended by the Advisory Committee in a manner that protects personal privacy. Requires the Secretary to ensure that epidemiological and other types of information is made available to the National Institutes of Health (NIH) and the Department of Veterans Affairs (VA). Authorizes appropriations for FY2008-FY2012.
(Sec. 3)
Requires the Secretary to report to the appropriate congressional committees on ALS registries, including:(1) the registries currently under way and future planned registries;
(2) the criteria involved in determining what registries to conduct, defer, or suspend;
(3) the scope of those registries; and
(4) the activities the Secretary undertakes to establish partnerships with research and patient advocacy communities to expand registries.
...Read the Rest
Recent News Coverage
President Signs ALS Association Priority Into Law
... country celebrated a tremendous victory as President Bush signed into law S. 1382, the ALS Registry Act, in the late afternoon on Wednesday, October 8. ...
Congress passes ALS registry bill
Congress took a major step in the fight against Lou Gehrig's Disease recently when the House of Representatives passed the ALS Registry Act (S. 1382). ...
Act offers hope for ALS patients
This year, Congress has an opportunity to help our nation make progress in the fight against Lou Gehrig's disease by passing legislation (HR 2295/S. 1382) ...
Recent Blog Coverage
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View Top Rated
ALS Spread the Word: Everything Will Be OK
... public to complement the existing VA ALS registry data? Won't it help them figure out the special causes of veterans' ALS by having corresponding data for non-veterans? S.1382 is the bill that would allow ALS data to be collected. ...
ALS Spread the Word: Where Is Our National Outrage?
... public to complement the existing VA ALS registry data? Won't it help them figure out the special causes of veterans' ALS by having corresponding data for non-veterans? S.1382 is the bill that would allow ALS data to be collected. ...
S. 1382
S. 1382. ALS Registry Act. As reported by the Senate Committee on Health, Education, Labor, and Pensions. on December 4, 2007. S. 1382 would modify the Public Health Service Act to authorize funding for the ...
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U.S. Congress - S.1382 ALS Registry Act



