Newborn Screening Saves Lives Act of 2007

A bill to amend the Public Health Service Act to establish grant programs to provide for education and outreach on newborn screening and coordinated followup care once newborn screening has been conducted, to reauthorize programs under part A of title XI of such Act, and for other purposes.

4/24/2008--Public Law. (This measure has not been amended since it was passed by the Senate on December 13, 2007. The summary of that version is repeated here.)
Newborn Screening Saves Lives Act of 2007 -
(Sec. 2) Amends the Public Health Service Act to authorize the Secretary of Health and Human Services, acting through the Administrator of the Health Resources and Services Administration (HRSA), to award grants to eligible entities to:
(1) provide screening, counseling, or health care services to newborns and children having or at risk for heritable disorders;
(2) provide education and training in newborn screening and congenital, genetic, and metabolic disorders to health care professionals and newborn screening laboratory personnel;
(3) develop and deliver educational programs about newborn screening, counseling, testing, follow-up, treatment, and specialty services to parents, families, and patient advocacy and support groups; and
(4) establish, maintain, and operate a system to assess and coordinate treatment relating to congenital, genetic, and metabolic disorders.
(Sec. 3) Authorizes appropriations for FY2008-FY2012 for grants for demonstration programs to evaluate the effectiveness of screening, counseling, or health care services in reducing the morbidity and mortality caused by heritable disorders in newborns and children.

(Sec. 4) Expands the duties of the Advisory Committee on Heritable Disorders in Newborns and Children to include:
(1) making recommendations that include the heritable disorders for which all newborns should be screened;
(2) developing a model decision-matrix for newborn screening expansion; and
(3) considering ways to ensure that all states attain the capacity to screen for the recommended conditions. Sets forth deadlines for the Secretary to make a decision on Advisory Committee recommendations.
Requires the Advisory Committee to continue to operate during the five-year period beginning on the date of enactment of this Act.

(Sec. 5) Requires the Secretary, acting through the Administrator, to establish and maintain a central clearinghouse of current information on newborn screening. Sets forth requirements for such clearinghouse, including:
(1) ensuring that the clearinghouse is available on the Internet and is updated at least quarterly;
(2) providing links to websites that have expertise in newborn screening;
(3) providing information about newborn conditions and screening services available in each state;
(4) providing current research on conditions for which newborn screening tests are available; and
(5) providing the availability of federal funding for newborn and child screening for heritable disorders.

(Sec. 6) Requires the Secretary, acting through the Director of the Centers for Disease Control and Prevention (CDC), to provide for:
(1) quality assurance for screening laboratories; and
(2) appropriate quality control and other performance test materials to evaluate the performance of new screening tools.
Requires the Secretary to establish an Interagency Coordinating Committee on Newborn and Child Screening to make recommendations on:
(1) programs to collect, analyze, and make available data on certain heritable disorders; and
(2) the establishment of regional centers to conduct applied epidemiological research on effective interventions for preventing poor health outcomes resulting from such disorders and to provide information and education to the public on such effective interventions.

(Sec. 7) Requires the Secretary, acting through the Director of CDC, to develop a national contingency plan for newborn screening in the event of a public health emergency. Authorizes the Secretary to continue to carry out, coordinate, and expand research in newborn screening (to be known as the Hunter Kelly Newborn Screening Research Program), including:
(1) identifying, developing, and testing the most promising new screening technologies; and
(2) experimental treatments and disease management strategies for conditions that can be detected through newborn screening for which treatment is not yet available.


... morehide bill summary

Sponsor

• Sen. Christopher Dodd [D, CT]
• and 21 Co-Sponsors
  • Sen. Christopher Bond [R, MO]
  • Sen. Sherrod Brown [D, OH]
  • Sen. Maria Cantwell [D, WA]
  • Sen. Benjamin Cardin [D, MD]
  • Sen. Robert Casey [D, PA]
  • Sen. Hillary Clinton [D, NY]
  • Norm Coleman
  • Sen. Susan Collins [R, ME]
  • Sen. Richard Durbin [D, IL]
  • Sen. Thomas Harkin [D, IA]
  • Sen. Orrin Hatch [R, UT]
  • Sen. Daniel Inouye [D, HI]
  • Sen. Tim Johnson [D, SD]
  • Sen. Edward Kennedy [D, MA]
  • Sen. Amy Klobuchar [D, MN]
  • Sen. Blanche Lincoln [D, AR]
  • Sen. Richard Lugar [R, IN]
  • Sen. Barbara Mikulski [D, MD]
  • Sen. Patty Murray [D, WA]
  • Sen. Bernard Sanders [I, VT]
  • Sen. Sheldon Whitehouse [D, RI]
  close

Committees

• House Energy and Commerce
• 2 more
  • Senate Health, Education, Labor, and Pensions
  • House Energy and Commerce
  close

Amendments

This bill has 1 amendments. See All AmendmentsHide All Amendments

Amendments to S.1858

Number	Status	Purpose
S.Amdt.3852	Pass	In the nature of a substitute.

Bill Status

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Introduced		Voted on by Senate		Voted on by House		Considered By President		This Bill Has Become Law
July 23, 2007		December 13, 2007		April 08, 2008		April 24, 2008		April 24, 2008

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All Bill Actions

• Signed on Apr 24, 2008.
• Enacted on Apr 24, 2008. Became Public Law No: 110-204.
• Apr 14, 2008. Presented to President.
• Passed by voice vote in the House on Apr 08, 2008. On motion to suspend the rules and pass the bill Agreed to by voice vote.
• Apr 08, 2008: Considered under suspension of the rules.
• Apr 08, 2008: Mrs. Capps moved to suspend the rules and pass the bill.
• Apr 08, 2008: DEBATE - The House proceeded with forty minutes of debate on S. 1858.
• Apr 08, 2008. Cleared for White House.
• Apr 08, 2008: By Senator Kennedy from Committee on Health, Education, Labor, and Pensions filed written report. Report No. 110-280.
• Dec 17, 2007: Received in the House.
• Dec 17, 2007: Referred to the Subcommittee on Health.
• Dec 17, 2007: Referred to the House Committee on Energy and Commerce.
• Dec 14, 2007: Message on Senate action sent to the House.
• Passed by Unanimous Consent in the Senate on Dec 13, 2007. Passed Senate with an amendment by Unanimous Consent.
• Dec 13, 2007: Measure laid before Senate by unanimous consent.
• Dec 13, 2007: The committee substitute as amended agreed to by Unanimous Consent.
• Added to calendar on Dec 05, 2007: Placed on Senate Legislative Calendar under General Orders. Calendar No. 522..
• Dec 05, 2007: Committee on Health, Education, Labor, and Pensions. Reported by Senator Kennedy with an amendment in the nature of a substitute. Without written report.
• Added to calendar on Nov 14, 2007: Committee on Health, Education, Labor, and Pensions. Ordered to be reported with an amendment in the nature of a substitute favorably..
• Nov 14, 2007: Committee on Health, Education, Labor, and Pensions. Ordered to be reported with an amendment in the nature of a substitute favorably.
• Nov 14, 2007: Committee on Health, Education, Labor, and Pensions. Date of scheduled consideration. SD-430. 9:30 a.m.
• Aug 01, 2007: Committee on Health, Education, Labor, and Pensions. Date of scheduled consideration. S-211. 10:00 a.m.
• Jul 26, 2007: Committee on Health, Education, Labor, and Pensions. Date of scheduled consideration. SR-325. 9:30 a.m.
• Introduced on Jul 23, 2007.
• Jul 23, 2007: Read twice and referred to the Committee on Health, Education, Labor, and Pensions.

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Related Bills:

• H.R.5919
• S.Con.Res.76
• H.R.3825
• S.634

Related Issue Areas:

• Medicine
• Ambulatory care
• Authorization
• Birth defects
• 61 more
• Budgets
• Children
• Clinical trials
• Communication in medicine
• Communications
• Conferences
• Congress
• Congressional reporting requirements
• Continuing education
• Demography
• Education
• Emergency management
• Emergency medicine
• Environmental health
• Environmental protection
• Epidemiology
• Executive departments
• Families
• Federal advisory bodies
• Federal aid to Indians
• Federal aid to child health services
• Federal aid to education
• Federal aid to health facilities
• Genetic counseling
• Government information
• Government publicity
• Health education
• Health planning
• Health policy
• Hereditary diseases
• Higher education
• Hospitals
• Indian medical care
• Infants
• Medical care
• Medical education
• Medical instruments and apparatus
• Medical laboratories
• Medical research
• Medical screening
• Medical statistics
• Medical supplies
• Medical technology
• Medical tests
• Minorities
• Minority health
• Nonprofit organizations
• Nursing education
• Preventive medicine
• Public contracts
• Quality of care
• Research grants
• Risk
• Science policy
• Social services
• Technological innovations
• Technology
• Technology transfer
• Health counseling
• Infant mortality
• Quality control

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In the News

December 20, 2008 New Bill Allows DNA Screening of Newborns

...Council on Health Care warns that this new law represents the beginning of nationwide genetic testing. Brase states that S.1858 and H.R. 3825, the House version of the bill, will: • Establish a national list of genetic conditions for which newborns

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May 10, 2008 Undernews For May 9, 2008

Described as a "national contingency plan" the justification for the new law S. 1858, known as The Newborn Screening Saves Lives Act of 2007, ...

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May 08, 2008 DO YOU HAVE A PLAN FOR FREEDOM?

"Described as a "national contingency plan" the justification for the new law S. 1858, known as The Newborn Screening Saves Lives Act of 2007, ...

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Blog Coverage

January 05, 2009 The Bill Nobody Noticed: National DNA Databank « THE INTERNET POST

NaturalNews) In April of 2008, President Bush signed into law S.1858 which allows the federal government to screen the DNA of all newborn babies in the U.S. This was to be implemented within 6 months meaning that this collection is now ...

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January 03, 2009 Top 5 Lies About Israel's Assault on Gaza - JustGetThere

National “DNA warehouse” bill passes (S. 1858). (1465). 2008 Trilateral Commission Attendee List. (1439). Talk Show Host Michael Reagan Solicits the Capital Murder of 9/11 Activist. (1410). House Vote Tally on Bailout Plan ...

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January 03, 2009 As Above So as Below: Taking your babies DNA that's the LAW!!!

NaturalNews) In April of 2008, President Bush signed into law S.1858 which allows the federal government to screen the DNA of all newborn babies in the U.S. This was to be implemented within 6 months meaning that this collection is now ...

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