s 45407 1185163200 false 1209009600 1858 5408 110 300034

4/24/2008--Public Law. (This measure has not been amended since it was passed by the Senate on December 13, 2007. The summary of that version is repeated here.)<br/>Newborn Screening Saves Lives Act of 2007 - (Sec. 2) Amends the Public Health Service Act to authorize the Secretary of Health and Human Services, acting through the Administrator of the Health Resources and Services Administration (HRSA), to award grants to eligible entities to: (1) provide screening, counseling, or health care services to newborns and children having or at risk for heritable disorders; (2) provide education and training in newborn screening and congenital, genetic, and metabolic disorders to health care professionals and newborn screening laboratory personnel; (3) develop and deliver educational programs about newborn screening, counseling, testing, follow-up, treatment, and specialty services to parents, families, and patient advocacy and support groups; and (4) establish, maintain, and operate a system to assess and coordinate treatment relating to congenital, genetic, and metabolic disorders. (Sec. 3) Authorizes appropriations for FY2008-FY2012 for grants for demonstration programs to evaluate the effectiveness of screening, counseling, or health care services in reducing the morbidity and mortality caused by heritable disorders in newborns and children.<br/>(Sec. 4) Expands the duties of the Advisory Committee on Heritable Disorders in Newborns and Children to include: (1) making recommendations that include the heritable disorders for which all newborns should be screened; (2) developing a model decision-matrix for newborn screening expansion; and (3) considering ways to ensure that all states attain the capacity to screen for the recommended conditions. Sets forth deadlines for the Secretary to make a decision on Advisory Committee recommendations.<br/>Requires the Advisory Committee to continue to operate during the five-year period beginning on the date of enactment of this Act.<br/>(Sec. 5) Requires the Secretary, acting through the Administrator, to establish and maintain a central clearinghouse of current information on newborn screening. Sets forth requirements for such clearinghouse, including: (1) ensuring that the clearinghouse is available on the Internet and is updated at least quarterly; (2) providing links to websites that have expertise in newborn screening; (3) providing information about newborn conditions and screening services available in each state; (4) providing current research on conditions for which newborn screening tests are available; and (5) providing the availability of federal funding for newborn and child screening for heritable disorders.<br/>(Sec. 6) Requires the Secretary, acting through the Director of the Centers for Disease Control and Prevention (CDC), to provide for: (1) quality assurance for screening laboratories; and (2) appropriate quality control and other performance test materials to evaluate the performance of new screening tools.<br/>Requires the Secretary to establish an Interagency Coordinating Committee on Newborn and Child Screening to make recommendations on: (1) programs to collect, analyze, and make available data on certain heritable disorders; and (2) the establishment of regional centers to conduct applied epidemiological research on effective interventions for preventing poor health outcomes resulting from such disorders and to provide information and education to the public on such effective interventions.<br/>(Sec. 7) Requires the Secretary, acting through the Director of CDC, to develop a national contingency plan for newborn screening in the event of a public health emergency. Authorizes the Secretary to continue to carry out, coordinate, and expand research in newborn screening (to be known as the Hunter Kelly Newborn Screening Research Program), including: (1) identifying, developing, and testing the most promising new screening technologies; and (2) experimental treatments and disease management strategies for conditions that can be detected through newborn screening for which treatment is not yet available.<br/>

1209009600 2008-04-24 Fri Nov 07 16:14:38 -0600 2008 passed senate 45407 'act':5 '2007':7 'live':4 'save':3 'screen':2 'newborn':1 55451 false short introduced 45407 'xi':41 'act':9,44 'bill':2 'care':26 'educ':17 'part':37 'titl':40 'amend':4 'grant':12 'health':7 'provid':15 'public':6 'purpos':48 'screen':22,29 'servic':8 'conduct':32 'coordin':24 'newborn':21,28 'program':13,35 'followup':25 'outreach':19 'reauthor':34 'establish':11 48651 official introduced 45407 'act':5 '2007':7 'live':4 'save':3 'screen':2 'newborn':1 51532 short passed house 45407 'act':5 '2007':7 'live':4 'save':3 'screen':2 'newborn':1 58171 false short reported to senate 45407 'act':5 '2007':7 'live':4 'save':3 'screen':2 'newborn':1 55450 false short enacted 45407 'act':5 '2007':7 'live':4 'save':3 'screen':2 'newborn':1 58623 false short signed 45407 1209009600 Thu Apr 24 00:00:00 -0500 2008 151142 Signed by President. D000388 1944-05-27 448 Russell Senate Office Building http://dodd.senate.gov/index.php?q=node/3130 202-228-1083 Christopher 'd':4 'ct':5 'sen':1 'dodd':3,7,9 'christoph':2,6,8 M 300034 Dodd Christopher_Dodd J. Sen. Christopher Dodd [D, CT] N00000581 14658 Democrat 202-224-2823 Roman Catholic CT Chris Christopher Dodd 1.93548387096774 http://dodd.senate.gov SenChrisDodd B000611 1939-03-06 274 Russell Senate Office Building http://bond.senate.gov/public/index.cfm?FuseAction=ContactUs.ContactForm 202-224-8149 Christopher 'r':4 'mo':5 'kit':8 'sen':1 'bond':3,7,10 'christoph':2,6,9 M 300010 Bond Christopher_S._Bond S. Sen. Christopher Bond [R, MO] Kit N00005178 9832 Republican 202-224-5721 Presbyterian MO Kit Christopher Bond 3.42 http://bond.senate.gov/public/ CSBondMO B000944 1952-11-09 713 Hart Senate Office Building http://brown.senate.gov/contact/ 202-228-6321 Sherrod 'd':4 'oh':5 'sen':1 'brown':3,7,9 'sherrod':2,6,8 M 400050 Brown Sherrod_Brown Sen. Sherrod Brown [D, OH] N00003535 13185 Democrat 202-224-2315 Lutheran OH Sherrod Brown 3.57575757575758 http://brown.senate.gov/ SherrodBrownOhio C000127 1958-10-13 511 Dirksen Senate Office Building http://cantwell.senate.gov/contact/ 202-228-0514 Maria 'd':4 'wa':5 'sen':1 'maria':2,6,8 'cantwel':3,7,9 F 300018 Cantwell Maria_Cantwell Sen. Maria Cantwell [D, WA] N00007836 12155 Democrat 202-224-3441 Roman Catholic WA Maria Cantwell 4.28125 http://cantwell.senate.gov SenatorCantwell C000141 1943-10-05 509 Hart Senate Office Building http://cardin.senate.gov/contact/email.cfm 202-224-1651 Benjamin 'd':4 'md':5 'sen':1 'cardin':3,7,9 'benjamin':2,6,8 M 400064 Cardin Benjamin_L._Cardin L. Sen. Benjamin Cardin [D, MD] N00001955 9193 Democrat 202-224-4524 Jewish MD Ben Benjamin Cardin 3.32258064516129 http://cardin.senate.gov/ SenatorCardin C001070 393 Russell Senate Office Building http://casey.senate.gov/contact/ 202-228-0604 Robert 'd':4 'pa':5 'sen':1 'casey':3,7,9 'robert':2,6,8 M 412246 Casey Robert_P._Casey,_Jr. P. Sen. Robert Casey [D, PA] N00027503 11575 Democrat 202-224-6324 PA Bob Robert Casey 2.61904761904762 http://casey.senate.gov/ C001041 1947-10-26 Hillary 'd':4 'ny':5 'sen':1 'clinton':3,7,9 'hillari':2,6,8 F 300022 Clinton Hillary_Clinton Rodham Sen. Hillary Clinton [D, NY] N00000019 25179 Democrat Methodist NY Hillary Clinton 3.33846153846154 C001057 1949-08-17 Norm 'norm':1,3,5 'coleman':2,4,6 M 300024 Coleman Norm_Coleman Norm Coleman N00013870 8370 Republican Jewish Norm Coleman 2.8 C001035 1952-12-07 413 Dirksen Senate Office Building http://collins.senate.gov/public/continue.cfm?FuseAction=ContactSenatorCollins.EmailIssue 202-224-2693 Susan 'r':4 'sen':1 'susan':2,6,8 'collin':3,7,9 F 300025 Collins Susan_Collins M. Sen. Susan Collins [R, ME] N00000491 11501 Republican 202-224-2523 Catholic ME Susan Collins 2.49152542372881 http://collins.senate.gov SenatorSusanCollins D000563 1944-11-21 309 Hart Senate Office Building http://durbin.senate.gov/contact.cfm 202-228-0400 Richard 'd':4 'il':5 'sen':1 'durbin':3,7,9 'richard':2,6,8 M 300038 Durbin Richard_Durbin J. Sen. Richard Durbin [D, IL] N00004981 16459 Democrat 202-224-2152 Roman Catholic IL Dick Richard Durbin 3.92929292929293 http://durbin.senate.gov H000206 1939-11-19 731 Hart Senate Office Building http://harkin.senate.gov/c/index.cfm 202-224-9369 Thomas 'd':4 'ia':5 'sen':1 'tom':8 'thoma':2,6,9 'harkin':3,7,10 M 300051 Harkin Tom_Harkin Sen. Thomas Harkin [D, IA] Tom N00004207 9283 Democrat 202-224-3254 Roman Catholic IA Tom Thomas Harkin 3.22222222222222 http://harkin.senate.gov/ SenatorTomHarkin H000338 1934-03-22 104 Hart Senate Office Building http://hatch.senate.gov/public/index.cfm?FuseAction=Offices.Contact 202-224-6331 Orrin 'r':4 'ut':5 'sen':1 'hatch':3,7,9 'orrin':2,6,8 M 300052 Hatch Orrin_Hatch G. Sen. Orrin Hatch [R, UT] N00009869 9137 Republican 202-224-5251 Latter Day Saints UT Orrin Hatch 2.77083333333333 http://hatch.senate.gov/public/ I000025 1924-09-07 722 Hart Senate Office Building http://inouye.senate.gov/Contact/Email-Form.cfm 202-224-6747 Daniel 'd':4 'hi':5 'sen':1 'inouy':3,7,9 'daniel':2,6,8 M 300056 Inouye Daniel_Inouye K. Sen. Daniel Inouye [D, HI] N00001762 7747 Democrat 202-224-3934 Methodist HI Daniel Inouye 2.71428571428571 http://inouye.senate.gov/ J000177 1946-12-28 136 Hart Senate Office Building http://johnson.senate.gov/contact/ 202-228-5765 Tim 'd':4 'sd':5 'sen':1 'tim':2,6,8 'johnson':3,7,9 M 300058 Johnson Tim_Johnson P. Sen. Tim Johnson [D, SD] N00010084 7877 Democrat 202-224-5842 Lutheran SD Tim Johnson 4.07692307692308 http://johnson.senate.gov/ K000105 1932-02-22 317 Russell Senate Office Building http://kennedy.senate.gov/senator/contact.cfm 202-224-2417 Edward 'd':4 'ma':5 'sen':1 'ted':8 'edward':2,6,9 'kennedi':3,7,10 M 300059 Kennedy Edward_Kennedy M. Sen. Edward Kennedy [D, MA] Ted N00000308 19386 Democrat 202-224-4543 Catholic MA Ted Edward Kennedy 3.52777777777778 http://kennedy.senate.gov/ K000367 1960-05-25 302 Hart Senate Office Building http://klobuchar.senate.gov/emailamy.cfm 202-228-2186 Amy 'd':4 'mn':5 'ami':2,6,8 'sen':1 'klobuchar':3,7,9 F 412242 Klobuchar Amy_Klobuchar Sen. Amy Klobuchar [D, MN] N00027500 11185 Democrat 202-224-3244 MN Amy Klobuchar 3.30188679245283 http://klobuchar.senate.gov/ L000035 1960-09-30 355 Dirksen Senate Office Building http://lincoln.senate.gov/contact/email.cfm 202-228-1371 Blanche 'd':4 'ar':5 'sen':1 'blanch':2,6,8 'lincoln':3,7,9 F 300068 Lincoln Blanche_Lincoln Lambert Sen. Blanche Lincoln [D, AR] N00008092 9834 Democrat 202-224-4843 Episcopalian AR Blanche Lincoln 2.6 http://lincoln.senate.gov/ SenatorLincoln L000504 1932-04-04 306 Hart Senate Office Building http://lugar.senate.gov/contact/ 202-228-0360 Richard 'r':4 'sen':1 'lugar':3,7,9 'richard':2,6,8 M 300070 Lugar Richard_Lugar G. Sen. Richard Lugar [R, IN] N00001764 11514 Republican 202-224-4814 Methodist IN Richard Lugar 3.4390243902439 http://lugar.senate.gov/ senatorlugar M000702 1936-07-20 503 Hart Senate Office Building http://mikulski.senate.gov/Contact/contact.cfm 202-224-8858 Barbara 'd':4 'md':5 'sen':1 'barbara':2,6,8 'mikulski':3,7,9 F 300073 Mikulski Barbara_Mikulski A. Sen. Barbara Mikulski [D, MD] N00001945 9644 Democrat 202-224-4654 Roman Catholic MD Barbara Mikulski 2.68888888888889 http://mikulski.senate.gov/ M001111 1950-10-11 173 Russell Senate Office Building http://murray.senate.gov/email/index.cfm 202-224-0238 Patty 'd':4 'wa':5 'sen':1 'patti':2,6,8 'murray':3,7,9 F 300076 Murray Patty_Murray Sen. Patty Murray [D, WA] N00007876 10843 Democrat 202-224-2621 Roman Catholic WA Patty Murray 4.203125 http://murray.senate.gov/ S000033 1941-09-08 332 Dirksen Senate Office Building http://sanders.senate.gov/comments/ 202-228-0776 Bernard 'vt':5 'sen':1 'berni':8 'sander':3,7,10 'bernard':2,6,9 M 400357 Sanders Bernard_Sanders Sen. Bernard Sanders [I, VT] Bernie N00000528 9384 Independent 202-224-5141 Jewish VT Bernie Bernard Sanders 6.6 http://sanders.senate.gov/ SenatorSanders W000802 502 Hart Senate Office Building http://whitehouse.senate.gov/contact/ 202-228-6362 Sheldon 'd':4 'ri':5 'sen':1 'sheldon':2,6,8 'whitehous':3,7,9 M 412247 Whitehouse Sheldon_Whitehouse Sen. Sheldon Whitehouse [D, RI] N00027533 8894 Democrat 202-224-2921 RI Sheldon Whitehouse 3.5 http://whitehouse.senate.gov/ SenatorWhitehouse signed 45407 1209009600 Thu Apr 24 00:00:00 -0500 2008 151142 Signed by President. enacted 45407 1209009600 Thu Apr 24 00:00:00 -0500 2008 151143 Became Public Law No: 110-204. topresident 45407 1208145600 Mon Apr 14 00:00:00 -0500 2008 149796 Presented to President. vote 45407 1207681500 Tue Apr 08 16:05:00 -0500 2008 by voice vote 149184 pass On motion to suspend the rules and pass the bill Agreed to by voice vote. vote2 h action 45407 1207680900 Tue Apr 08 15:55:00 -0500 2008 149182 Considered under suspension of the rules. action 45407 1207680900 Tue Apr 08 15:55:00 -0500 2008 149181 Mrs. Capps moved to suspend the rules and pass the bill. action 45407 1207680900 Tue Apr 08 15:55:00 -0500 2008 149183 DEBATE - The House proceeded with forty minutes of debate on S. 1858. topresident 45407 1207627200 Tue Apr 08 00:00:00 -0500 2008 149423 Cleared for White House. action 45407 1207627200 Tue Apr 08 00:00:00 -0500 2008 149180 By Senator Kennedy from Committee on Health, Education, Labor, and Pensions filed written report. Report No. 110-280. action 45407 1197916260 Mon Dec 17 14:31:00 -0600 2007 139818 Received in the House. action 45407 1197867600 Mon Dec 17 00:00:00 -0600 2007 149179 Referred to the Subcommittee on Health. action 45407 1197867600 Mon Dec 17 00:00:00 -0600 2007 139819 Referred to the House Committee on Energy and Commerce. action 45407 1197608400 Fri Dec 14 00:00:00 -0600 2007 139817 Message on Senate action sent to the House. vote 45407 1197522000 Thu Dec 13 00:00:00 -0600 2007 by Unanimous Consent 139816 pass Passed Senate with an amendment by Unanimous Consent. vote s action 45407 1197522000 Thu Dec 13 00:00:00 -0600 2007 139814 Measure laid before Senate by unanimous consent. action 45407 1197522000 Thu Dec 13 00:00:00 -0600 2007 139815 The committee substitute as amended agreed to by Unanimous Consent. calendar 45407 1196830800 Wed Dec 05 00:00:00 -0600 2007 137901 Placed on Senate Legislative Calendar under General Orders. Calendar No. 522. action 45407 1196830800 Wed Dec 05 00:00:00 -0600 2007 137900 Committee on Health, Education, Labor, and Pensions. Reported by Senator Kennedy with an amendment in the nature of a substitute. Without written report. calendar 45407 1195016400 Wed Nov 14 00:00:00 -0600 2007 177762 Committee on Health, Education, Labor, and Pensions. Ordered to be reported with an amendment in the nature of a substitute favorably. action 45407 1195016400 Wed Nov 14 00:00:00 -0600 2007 136553 Committee on Health, Education, Labor, and Pensions. Ordered to be reported with an amendment in the nature of a substitute favorably. action 45407 1195016400 Wed Nov 14 00:00:00 -0600 2007 143767 Committee on Health, Education, Labor, and Pensions. Date of scheduled consideration. SD-430. 9:30 a.m. action 45407 1185940800 Wed Aug 01 00:00:00 -0500 2007 143766 Committee on Health, Education, Labor, and Pensions. Date of scheduled consideration. S-211. 10:00 a.m. action 45407 1185422400 Thu Jul 26 00:00:00 -0500 2007 143765 Committee on Health, Education, Labor, and Pensions. Date of scheduled consideration. SR-325. 9:30 a.m. introduced 45407 1185163200 Mon Jul 23 00:00:00 -0500 2007 123639 action 45407 1185163200 Mon Jul 23 00:00:00 -0500 2007 123640 Read twice and referred to the Committee on Health, Education, Labor, and Pensions.