SMA Treatment Acceleration Act

A bill to authorize the Secretary of Health and Human Services to conduct activities to rapidly advance treatments for spinal muscular atrophy, neuromuscular disease, and other pediatric diseases, and for other purposes.

9/12/2007--Introduced.
SMA Treatment Acceleration Act - Requires the Director of the National Institutes of Health (NIH) to upgrade and unify existing spinal muscular atrophy (SMA) clinical trial sites to establish a national clinical trials network for SMA. Requires the Director of NIH to ensure that such network:
(1) conducts coordinated, multisite, clinical trials of pharmacological approaches to the treatment of SMA; and
(2) rapidly and effectively disseminates scientific findings to the field.
Requires the Director of NIH to:
(1) establish an SMA data coordinating center; and
(2) expand and intensify NIH programs with respect to preclinical translation research and medicinal chemistry related to SMA.
Requires the Secretary of Health and Human Services, acting through the Director of the Centers for Disease Control and Prevention (CDC), to enhance and provide ongoing support to the existing SMA patient registry to provide for expanded research on the epidemiology of SMA. Directs the Secretary to ensure the collection and analysis of longitudinal data related to individuals of all ages with SMA.
Requires the Secretary to establish the Spinal Muscular Atrophy Coordinating Committee to:
(1) coordinate activities across NIH and with other federal health programs and activities relating to SMA; and
(2) conduct a study to identify barriers to the development of drugs for treating SMA and similar genetic disorders.
Requires the Director of NIH to establish a trans-National Institutes of Health cooperative research initiative on SMA to ensure the success of the SMA projects led by the National Institute of Neurological Disorders and Stroke. Requires the Secretary to submit recommendations to Congress to improve and expand on incentives provided under the Orphan Drug Act and related statutes to promote SMA drug development.


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Sponsor

• Sen. Debbie Ann Stabenow [D, MI]
• and 21 Co-Sponsors
  • Sen. Jeff Bingaman [D, NM]
  • Sen. Barbara Boxer [D, CA]
  • Sen. Sherrod Brown [D, OH]
  • Sen. Maria Cantwell [D, WA]
  • Sen. Robert Casey [D, PA]
  • Sen. C. Saxby Chambliss [R, GA]
  • Sen. Hillary Clinton [D, NY]
  • Sen. Dianne Feinstein [D, CA]
  • Sen. John Isakson [R, GA]
  • Sen. John Kerry [D, MA]
  • Sen. Frank Lautenberg [D, NJ]
  • Sen. Joseph Lieberman [I, CT]
  • Sen. Robert Menendez [D, NJ]
  • Sen. Barbara Mikulski [D, MD]
  • Sen. Patty Murray [D, WA]
  • Sen. Barack Obama [D, IL]
  • Sen. John Reed [D, RI]
  • Sen. Bernard Sanders [I, VT]
  • Sen. John Warner [R, VA]
  • Sen. Jim Webb [D, VA]
  • Sen. Sheldon Whitehouse [D, RI]
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Committees

• Senate Health, Education, Labor, and Pensions

Amendments

This bill has no amendments.

Amendments to S.2042

Number	Status	Purpose

Bill Status

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Introduced		Voted on by Senate		Voted on by House		Considered By President		Bill Becomes Law
September 12, 2007

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All Bill Actions

• Sep 12, 2007: Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
• Sep 12, 2007: Sponsor introductory remarks on measure. (CR S11510-11511)
• Introduced on Sep 12, 2007.

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Related Bills:

• H.R.3334

Related Issue Areas:

• Child health
• Science policy
• Pharmaceutical research
• Pediatrics
• 12 more
• Orphan drugs
• Muscular diseases
• Medical research
• Medical care
• Hereditary diseases
• Epidemiology
• Drug therapy
• Congressional reporting requirements
• Congress
• Clinical trials
• Children
• Medicine

Data from the Congressional Research Service

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Blog Coverage

October 01, 2008 Spinal Muscular Atrophy Treatment Acceleration Act Update

We would like to extend our deepest thanks for your dedication and all you have done to help grow support for the SMA Treatment Acceleration Act (HR 3334/S. 2042). Thanks to your efforts, 83 Members of the House of Representatives and ...

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Source: Spinal Muscular Atrophy (SMA) Blog by Fight SMA

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September 08, 2008 The Push To Cure Spinal Muscular Atrophy

The SMA Treatment Acceleration Act (HR 3334/S. 2042) was introduced in the House of Representatives as HR 3334 by Rep. Patrick Kennedy (D-RI) and Rep. Eric Cantor (R-VA) and in the Senate as S. 2042 by Sen. Debbie Stabenow (D-MI) and ...

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Source: Untitled

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September 06, 2008 The Push To Cure Spinal Muscular Atrophy

The SMA Treatment Acceleration Act (HR 3334/S. 2042) was introduced in the House of Representatives as HR 3334 by Rep. Patrick Kennedy (D-RI) and Rep. Eric Cantor (R-VA) and in the Senate as S. 2042 by Sen. Debbie Stabenow (D-MI) and ...

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Source: Ajax Blog

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