U.S. Congress - Blog Articles for H.R.2149 SMA Treatment Acceleration Act of 2009
H.R.2149 - SMA Treatment Acceleration Act of 2009
To authorize the Secretary of Health and Human Services to conduct activities to rapidly advance treatments for spinal muscular atrophy, neuromuscular disease, and other pediatric diseases, and for other purposes. view all titles (2)
All Bill Titles
- Short: SMA Treatment Acceleration Act of 2009 as introduced.
- Official: To authorize the Secretary of Health and Human Services to conduct activities to rapidly advance treatments for spinal muscular atrophy, neuromuscular disease, and other pediatric diseases, and for other purposes. as introduced.
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Update on The SMA Treatment Accleration Act | Sweet Baby Zane
... on such activities, we wanted to take a moment to inform you about recent and upcoming government-sponsored, SMA-related research conferences and to provide an update on the SMA Treatment Acceleration Act (H.R. 2149 / S. 1158). ...
Miracle for Madison & Friends: SMA Coalition Update
... on such activities, we wanted to take a moment to inform you about recent and upcoming government-sponsored, SMA-related research conferences and to provide an update on the SMA Treatment Acceleration Act (H.R. 2149 / S. 1158). ...
SMA #1 Baby Killer Joshua's Journey: Joshua's Journey with Spinal ...
Blog Articles for H.R.2149 - OpenCongress. Get the Blog Articles for H.R.2149 - OpenCongress widget and many other great free widgets at Widgetbox! Blog Archive. ▼ 2010 (9). ▼ October (1). Joshua's Journey with Spinal Muscular Atrophy ...
SMA #1 Baby Killer Joshua's Journey: 2010 MDA Telethon Research ...
Blog Articles for H.R.2149 - OpenCongress. Get the Blog Articles for H.R.2149 - OpenCongress widget and many other great free widgets at Widgetbox! Blog Archive. ▼ 2010 (8). ▼ September (1). 2010 MDA Telethon Research Update - SMA ...
Bill Action: Introduced: HR 2149: To amend title XVIII of the ...
2 May 2007
$20 Hair Cuts at Shine Salon in Honor of National Spinal Muscular ...
... at CT04JHima@mail.house.gov) and Connecticut Senators Christopher Dodd (through his website) and Joseph Lieberman (through his website) to ask them to support the passage of The SMA Treatment Acceleration Act (H.R. 2149 / S. 1158). ...
August is SMA Awareness Month « Andy's Army
Legislative Letter Writing Campaign – Write a letter to your U.S. Senators and Representative(s) asking them to cosponsor the SMA Treatment Acceleration Act (HR 2149, S1158) that currently is before Congress. It is recommended that you ...
SMA #1 Baby Killer Joshua's Journey: 2011 Spinal Muscular Atrophy ...
Blog Articles for H.R.2149 - OpenCongress. Get the Blog Articles for H.R.2149 - OpenCongress widget and many other great free widgets at Widgetbox! Blog Archive. ▼ 2010 (7). ▼ July (2). 2011 Spinal Muscular Atrophy Conference Teaser ...
Steve Eisenberg, Richmonder and SMA patient, writes editorial in ...
Eisenberg, 32, wrote a letter to the editor about his story and his passion for seeing the SMA Treatment Acceleration Act (HR 2149, S 1158) become law. Eisenberg thanked the Virginia delegation for their continuous support over the ...
SMA Treatment Acceleration Act Gets 100th House Cosponsor!
Dear Friends of FightSMA, We are beyond thrilled to announce that on May 13, 2010, the SMA Treatment Acceleration Act (HR 2149, S 1158) officially broke 100 cosponsors in the House! We are delighted by this news and have YOU to thank!
Attention SMA Families and Friends Unable to Visit Capitol Hill on ...
Families and friends shared information about spinal muscular atrophy (SMA) and the SMA Treatment Acceleration Act (HR 2149, S 1158) with their Congressmen and Senators and encouraged them to cosponsor this historic and paramount ...
Pons Seclorum: Dr. Paul's Diagnosis
Ron Paul went before the House in stern opposition to HR 2149--the Comprehensive Iran sanctions, Accountability, and Divestment Act--which he cannot but see as an unabashed war measure. Apprehending this pressure as bearing parallels ...
Call To Action: Help Pass SMA Bill — Gwendolyn Strong | Gwendolyn ...
As your constituent, I am writing to urge you to cosponsor the SMA Treatment Acceleration Act (H.R. 2149/S. 1158). This legislation will help in our efforts to find a treatment or cure for Spinal Muscular Atrophy (SMA), the number one ...
April 2010 Grassroots Update on the SMA Treatment Acceleration Act
We are especially grateful to all those who have taken the time to contact their Members of Congress in support of The SMA Treatment Acceleration Act (H.R. 2149/S. 1158). As most of you are aware, for the past 15 months health care ...
Help END the #1 genetic killer of young children! - The Petition Site
We the undersigned, are writing to urge you to support S. 1158 and HR. 2149, the SMA Treatment Acceleration Act to help find a treatment and cure for SMA -- Spinal Muscular Atrophy. SMA kills more children than any other inherited ...
H.R. 3149: The Equal Employment for All Act: “Democracy” and Money ...
HR3149: The Equal Employment for All Act has been stalled in the House Committe on Financial Services since July 2009 with no hearing or action whatsoever. The following report details the money being funneled to committee members by ...
FightSMA's February Grassroots Lobbying Efforts
FightSMA representatives Martha Slay and Caroline Gibson traveled to Washington, DC earlier this week, to garner support and cosponsors for the SMA Treatment Acceleration Act (HR 2149, S 1158). As the healthcare debate continues in ...
SMA #1 Baby Killer Joshua's Journey: One year since Joshua came home
Blog Articles for H.R.2149 - OpenCongress. Get the Blog Articles for H.R.2149 - OpenCongress widget and many other great free widgets at Widgetbox! Blog Archive. ▼ 2010 (1). ▼ February (1). One year since Joshua came home ...
Cohen's Blog: My Response from Congressman Gregg Harper
That is why I have co-sponsored bills such as H.R. 2149, the "SMA Treatment Acceleration Act of 2009," and support an increase in funding for Fragile X-associated disorders. Additionally, I have co-sponsored H.R. 2413, ...
Help END the #1 genetic killer of young children! - The Petition Site
We the undersigned, as [people/family members of a person/friends of a person] with Spinal Muscular Atrophy (SMA), are writing to urge you to research and support S. 1158 and HR. 2149, the SMA Treatment Acceleration Act. ...
SMA #1 Baby Killer Joshua's Journey
Blog Articles for H.R.2149 - OpenCongress. Get the Blog Articles for H.R.2149 - OpenCongress widget and many other great free widgets at Widgetbox! Blog Archive. ▼ 2009 (14). ▼ December (2). Comments and Graphics - New Year Layouts ...
Terror Strikes Flight 253 | Fighting Radical Islam
Go to http://EndSMA.org/twitter to tweet for a cure! — 3 days 10 hours ago; #RepCarolynMaloney: It is important to me that you cosponsor the #SMATreatmentAccelerationAct, H.R. 2149! http://bit.ly/1W0Lr — 3 days 10 hours ago ...
SMA #1 Baby Killer Joshua's Journey
Blog Articles for H.R.2149 - OpenCongress. Get the Blog Articles for H.R.2149 - OpenCongress widget and many other great free widgets at Widgetbox! Blog Archive. ▼ 2009 (13). ▼ December (1). ► November (1) ...
Congratulations to Obsession Survey Winners! | Fighting Radical Islam
2 days 9 hours ago; #RepCarolynMaloney: It is important to me that you cosponsor the #SMATreatmentAccelerationAct, H.R. 2149! http://bit.ly/1W0Lr — 2 days 9 hours ago; #SenKirstenGillibrand: It is important to me that you cosponsor the ...
Swiss Minarets and European Islam | Fighting Radical Islam
14 hours 41 min ago; #RepCarolynMaloney: It is important to me that you cosponsor the #SMATreatmentAccelerationAct, H.R. 2149! http://bit.ly/1W0Lr — 14 hours 41 min ago; #SenKirstenGillibrand: It is important to me that you cosponsor ...
SMA #1 Baby Killer Joshua's Journey: Joshua holding his right leg up
Blog Articles for H.R.2149 - OpenCongress. Get the Blog Articles for H.R.2149 - OpenCongress widget and many other great free widgets at Widgetbox! Blog Archive. ▼ 2009 (12). ▼ November (1). Joshua holding his right leg up ...
November Grassroots Update on the SMA Treatment Acceleration Act
As we continue to promote the SMA Treatment Acceleration Act (H.R. 2149/S. 1158) in the current Congress, many important questions have been posed regarding the status of the bill, the political climate in Washington, and the need for ...
SMA #1 Baby Killer Joshua's Journey: Joshua's moving his knee ...
Blog Articles for H.R.2149 - OpenCongress. Get the Blog Articles for H.R.2149 - OpenCongress widget and many other great free widgets at Widgetbox! Followers. Blog Archive. ▼ 2009 (11). ▼ October (2). Joshua's moving his knee after a ...
EP Magazine: 2009 FightSMA Annual Conference in Review
The bill, the SMA Treatment Acceleration Act (HR 2149, S 1158), is currently in its second Congress and all of our community has been working tirelessly on a grassroots level to get this legislation passed. To read the full article, ...
Ollie's Tale: Sen. Burr's Office Called....
Miller a while ago asking them to co-sponsor the bill (S.1158 and HR.2149). I got a generic email acknowledgment from Rep. Miller; no response from Sen. Hagan; and a nice, personalized letter in the mail from Sen. Burr. ...
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