U.S. Congress - H.R.2149 SMA Treatment Acceleration Act of 2009
H.R.2149 - SMA Treatment Acceleration Act of 2009
To authorize the Secretary of Health and Human Services to conduct activities to rapidly advance treatments for spinal muscular atrophy, neuromuscular disease, and other pediatric diseases, and for other purposes. view all titles (2)
All Bill Titles
- Short: SMA Treatment Acceleration Act of 2009 as introduced.
- Official: To authorize the Secretary of Health and Human Services to conduct activities to rapidly advance treatments for spinal muscular atrophy, neuromuscular disease, and other pediatric diseases, and for other purposes. as introduced.
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I voted for this cause because my 4 month old has SMA type 1.By having this past will give her a better chance at survival but thousands of other children with SMA.I almost lost my litte girl tuesday due to her disease and I was told it’ll only get worse.SO the faster things get in progress the better chances we have of seeing our little girl celebrate her first birthday and hopefully many others.So many parents have already lost their children to this disease and if you can do something to prevent that then why not do it?DOnt they suffer enough as it is?Don’t they deserve to live like we do?SO please I beg of you do whats right,wouldn’t you want the same for your child?