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S 1150 ISCommentsClose CommentsPermalink
111th CONGRESSCommentsClose CommentsPermalink
1st SessionCommentsClose CommentsPermalink
S. 1150CommentsClose CommentsPermalink
To improve end-of-life care.CommentsClose CommentsPermalink
IN THE SENATE OF THE UNITED STATESCommentsClose CommentsPermalink
May 21, 2009CommentsClose CommentsPermalink
May 21, 2009CommentsClose CommentsPermalink
Mr. REID (for Mr. ROCKEFELLER (for himself, Ms. COLLINS, Mr. KOHL, Mr. WYDEN, and Mr. CARPER)) introduced the following bill; which was read twice and referred to the Committee on FinanceCommentsClose CommentsPermalink
A BILLCommentsClose CommentsPermalink
To improve end-of-life care.CommentsClose CommentsPermalink
Be it enacted by the Senate and House of Representatives of the United States of America in Congress assembled,CommentsClose CommentsPermalink
SECTION 1. SHORT TITLE; TABLE OF CONTENTS.
(a) Short Title- This Act may be cited as the ‘Advance Planning and Compassionate Care Act of 2009’.CommentsClose CommentsPermalink
(b) Table of Contents- The table of contents of this Act is as follows:CommentsClose CommentsPermalink
Sec. 1. Short title; table of contents.CommentsClose CommentsPermalink
Sec. 2. Definitions.CommentsClose CommentsPermalink
TITLE I--ADVANCE CARE PLANNING
Subtitle A--Consumer and Provider Education
Part I--Consumer Education
subpart a--national initiatives
Sec. 101. Advance care planning telephone hotline.CommentsClose CommentsPermalink
Sec. 102. Advance care planning information clearinghouses.CommentsClose CommentsPermalink
Sec. 103. Advance care planning toolkit.CommentsClose CommentsPermalink
Sec. 104. National public education campaign.CommentsClose CommentsPermalink
Sec. 105. Update of Medicare and Social Security handbooks.CommentsClose CommentsPermalink
Sec. 106. Authorization of appropriations.CommentsClose CommentsPermalink
subpart b--state and local initiatives
Sec. 111. Financial assistance for advance care planning.CommentsClose CommentsPermalink
Sec. 112. Grants for programs for orders regarding life sustaining treatment.CommentsClose CommentsPermalink
Part II--Provider Education
Sec. 121. Public provider advance care planning website.CommentsClose CommentsPermalink
Sec. 122. Continuing education for physicians and nurses.CommentsClose CommentsPermalink
Subtitle B--Portability of Advance Directives; Health Information Technology
Sec. 131. Portability of advance directives.CommentsClose CommentsPermalink
Sec. 132. State advance directive registries; driver’s license advance directive notation.CommentsClose CommentsPermalink
Sec. 133. GAO study and report on establishment of national advance directive registry.CommentsClose CommentsPermalink
Subtitle C--National Uniform Policy on Advance Care Planning
Sec. 141. Study and report by the Secretary regarding the establishment and implementation of a national uniform policy on advance directives.CommentsClose CommentsPermalink
TITLE II--COMPASSIONATE CARE
Subtitle A--Workforce Development
Part I--Education and Training
Sec. 201. National Geriatric and Palliative Care Services Corps.CommentsClose CommentsPermalink
Sec. 202. Exemption of palliative medicine fellowship training from Medicare graduate medical education caps.CommentsClose CommentsPermalink
Sec. 203. Medical school curricula.CommentsClose CommentsPermalink
Subtitle B--Coverage Under Medicare, Medicaid, and CHIP
Part I--Coverage of Advance Care Planning
Sec. 211. Medicare, Medicaid, and CHIP coverage.CommentsClose CommentsPermalink
Part II--Hospice
Sec. 221. Adoption of MedPAC hospice payment methodology recommendations.CommentsClose CommentsPermalink
Sec. 222. Removing hospice inpatient days in setting per diem rates for critical access hospitals.CommentsClose CommentsPermalink
Sec. 223. Hospice payments for dual eligible individuals residing in long-term care facilities.CommentsClose CommentsPermalink
Sec. 224. Delineation of respective care responsibilities of hospice programs and long-term care facilities.CommentsClose CommentsPermalink
Sec. 225. Adoption of MedPAC hospice program eligibility certification and recertification recommendations.CommentsClose CommentsPermalink
Sec. 226. Concurrent care for children.CommentsClose CommentsPermalink
Sec. 227. Making hospice a required benefit under Medicaid and CHIP.CommentsClose CommentsPermalink
Sec. 228. Medicare Hospice payment model demonstration projects.CommentsClose CommentsPermalink
Sec. 229. MedPAC studies and reports.CommentsClose CommentsPermalink
Sec. 230. HHS Evaluations.CommentsClose CommentsPermalink
Subtitle C--Quality Improvement
Sec. 241. Patient satisfaction surveys.CommentsClose CommentsPermalink
Sec. 242. Development of core end-of-life care quality measures across each relevant provider setting.CommentsClose CommentsPermalink
Sec. 243. Accreditation of hospital-based palliative care programs.CommentsClose CommentsPermalink
Sec. 244. Survey and data requirements for all Medicare participating hospice programs.CommentsClose CommentsPermalink
Subtitle D--Additional Reports, Research, and Evaluations
Sec. 251. National Center On Palliative and End-of-Life Care.CommentsClose CommentsPermalink
Sec. 252. National Mortality Followback Survey.CommentsClose CommentsPermalink
Sec. 253. Demonstration projects for use of telemedicine services in advance care planning.CommentsClose CommentsPermalink
Sec. 254. Inspector General investigation of fraud and abuse.CommentsClose CommentsPermalink
Sec. 255. GAO study and report on provider adherence to advance directives.CommentsClose CommentsPermalink
SEC. 2. DEFINITIONS.
In this Act:CommentsClose CommentsPermalink
(1) ADVANCE CARE PLANNING- The term ‘advance care planning’ means the process of--CommentsClose CommentsPermalink
(A) determining an individual’s priorities, values and goals for care in the future when the individual is no longer able to express his or her wishes;CommentsClose CommentsPermalink
(B) engaging family members, health care proxies, and health care providers in an ongoing dialogue about--CommentsClose CommentsPermalink
(i) the individual’s wishes for care;CommentsClose CommentsPermalink
(ii) what the future may hold for people with serious illnesses or injuries;CommentsClose CommentsPermalink
(iii) how individuals, their health care proxies, and family members want their beliefs and preferences to guide care decisions; andCommentsClose CommentsPermalink
(iv) the steps that individuals and family members can take regarding, and the resources available to help with, finances, family matters, spiritual questions, and other issues that impact seriously ill or dying patients and their families; andCommentsClose CommentsPermalink
(C) executing and updating advance directives and appointing a health care proxy.CommentsClose CommentsPermalink
(2) ADVANCE DIRECTIVE- The term ‘advance directive’ means a living will, medical directive, health care power of attorney, durable power of attorney, or other written statement by a competent individual that is recognized under State law and indicates the individual’s wishes regarding medical treatment in the event of future incompetence. Such term includes an advance health care directive and a health care directive recognized under State law.CommentsClose CommentsPermalink
(3) CHIP- The term ‘CHIP’ means the program established under title XXI of the Social Security Act (
(4) END-OF-LIFE-CARE- The term ‘end-of-life care’ means all aspects of care of a patient with a potentially fatal condition, and includes care that is focused on specific preparations for an impending death.CommentsClose CommentsPermalink
(5) HEALTH CARE POWER OF ATTORNEY- The term ‘health care power of attorney’ means a legal document that identifies a health care proxy or decisionmaker for a patient who has the authority to act on the patient’s behalf when the patient is unable to communicate his or her wishes for medical care on matters that the patient specifies when he or she is competent. Such term includes a durable power of attorney that relates to medical care.CommentsClose CommentsPermalink
(6) LIVING WILL- The term ‘living will’ means a legal document--CommentsClose CommentsPermalink
(A) used to specify the type of medical care (including any type of medical treatment, including life-sustaining procedures if that person becomes permanently unconscious or is otherwise dying) that an individual wants provided or withheld in the event the individual cannot speak for himself or herself and cannot express his or her wishes; andCommentsClose CommentsPermalink
(B) that requires a physician to honor the provisions of upon receipt or to transfer the care of the individual covered by the document to another physician that will honor such provisions.CommentsClose CommentsPermalink
(7) MEDICAID- The term ‘Medicaid’ means the program established under title XIX of the Social Security Act (
(8) MEDICARE- The term ‘Medicare’ means the program established under title XVIII of the Social Security Act (
(9) ORDERS FOR LIFE-SUSTAINING TREATMENT- The term ‘orders for life-sustaining treatment’ means a process for focusing a patients’ values, goals, and preferences on current medical circumstances and to translate such into visible and portable medical orders applicable across care settings, including home, long-term care, emergency medical services, and hospitals.CommentsClose CommentsPermalink
(10) PALLIATIVE CARE- The term ‘palliative care’ means interdisciplinary care for individuals with a life-threatening illness or injury relating to pain and symptom management and psychological, social, and spiritual needs and that seeks to improve the quality of life for the individual and the individual’s family.CommentsClose CommentsPermalink
(11) SECRETARY- The term ‘Secretary’ means the Secretary of Health and Human Services.CommentsClose CommentsPermalink
TITLE I--ADVANCE CARE PLANNINGCommentsClose CommentsPermalink
TITLE I--ADVANCE CARE PLANNINGCommentsClose CommentsPermalink
Subtitle A--Consumer and Provider EducationCommentsClose CommentsPermalink
Subtitle A--Consumer and Provider EducationCommentsClose CommentsPermalink
PART I--CONSUMER EDUCATION
Subpart A--National Initiatives
SEC. 101. ADVANCE CARE PLANNING TELEPHONE HOTLINE.
(a) In General- Not later than January 1, 2011, the Secretary, acting through the Director of the Centers for Disease Control and Prevention, shall establish and operate directly, or by grant, contract, or interagency agreement, a 24-hour toll-free telephone hotline to provide consumer information regarding advance care planning, including--CommentsClose CommentsPermalink
(1) an explanation of advanced care planning and its importance;CommentsClose CommentsPermalink
(2) issues to be considered when developing an individual’s advance care plan;CommentsClose CommentsPermalink
(3) how to establish an advance directive;CommentsClose CommentsPermalink
(4) procedures to help ensure that an individual’s directives for end-of-life care are followed;CommentsClose CommentsPermalink
(5) Federal and State-specific resources for assistance with advance care planning; andCommentsClose CommentsPermalink
(6) hospice and palliative care (including their respective purposes and services).CommentsClose CommentsPermalink
(b) Establishment- In carrying out the requirements under subsection (a), the Director of the Centers for Disease Control and Prevention may designate an existing 24-hour toll-free telephone hotline or, if no such service is available or appropriate, establish a new 24-hour toll-free telephone hotline.CommentsClose CommentsPermalink
SEC. 102. ADVANCE CARE PLANNING INFORMATION CLEARINGHOUSES.
(a) Expansion of National Clearinghouse for Long-Term Care Information-CommentsClose CommentsPermalink
(1) DEVELOPMENT- Not later than January 1, 2010, the Secretary shall develop an online clearinghouse to provide comprehensive information regarding advance care planning.CommentsClose CommentsPermalink
(2) MAINTENANCE- The advance care planning clearinghouse, which shall be clearly identifiable and available on the homepage of the Department of Health and Human Service’s National Clearinghouse for Long-Term Care Information website, shall be maintained and publicized by the Secretary on an ongoing basis.CommentsClose CommentsPermalink
(3) CONTENT- The advance care planning clearinghouse shall include--CommentsClose CommentsPermalink
(A) any relevant content contained in the national public education campaign required under section 104;CommentsClose CommentsPermalink
(B) content addressing--CommentsClose CommentsPermalink
(i) an explanation of advanced care planning and its importance;CommentsClose CommentsPermalink
(ii) issues to be considered when developing an individual’s advance care plan;CommentsClose CommentsPermalink
(iii) how to establish an advance directive;CommentsClose CommentsPermalink
(iv) procedures to help ensure that an individual’s directives for end-of-life care are followed; andCommentsClose CommentsPermalink
(v) hospice and palliative care (including their respective purposes and services); andCommentsClose CommentsPermalink
(C) available Federal and State-specific resources for assistance with advance care planning, including--CommentsClose CommentsPermalink
(i) contact information for any State public health departments that are responsible for issues regarding end-of-life care;CommentsClose CommentsPermalink
(ii) contact information for relevant legal service organizations, including those funded under the Older Americans Act of 1965 (
(iii) advance directive forms for each State; andCommentsClose CommentsPermalink
(D) any additional information, as determined by the Secretary.CommentsClose CommentsPermalink
(b) Establishment of Pediatric Advance Care Planning Clearinghouse-CommentsClose CommentsPermalink
(1) DEVELOPMENT- Not later than January 1, 2011, the Secretary, in consultation with the Assistant Secretary for Children and Families of the Department of Health and Human Services, shall develop an online clearinghouse to provide comprehensive information regarding pediatric advance care planning.CommentsClose CommentsPermalink
(2) MAINTENANCE- The pediatric advance care planning clearinghouse, which shall be clearly identifiable on the homepage of the Administration for Children and Families website, shall be maintained and publicized by the Secretary on an ongoing basis.CommentsClose CommentsPermalink
(3) CONTENT- The pediatric advance care planning clearinghouse shall provide advance care planning information specific to children with life-threatening illnesses or injuries and their families.CommentsClose CommentsPermalink
SEC. 103. ADVANCE CARE PLANNING TOOLKIT.
(a) Development- Not later than July 1, 2010, the Secretary, in consultation with the Director of the Centers for Disease Control and Prevention, shall develop an online advance care planning toolkit.CommentsClose CommentsPermalink
(b) Maintenance- The advance care planning toolkit, which shall be available in English, Spanish, and any other languages that the Secretary deems appropriate, shall be maintained and publicized by the Secretary on an ongoing basis and made available on the following websites:CommentsClose CommentsPermalink
(1) The Centers for Disease Control and Prevention.CommentsClose CommentsPermalink
(2) The Department of Health and Human Service’s National Clearinghouse for Long-Term Care Information.CommentsClose CommentsPermalink
(3) The Administration for Children and Families.CommentsClose CommentsPermalink
(c) Content- The advance care planning toolkit shall include content addressing--CommentsClose CommentsPermalink
(1) common issues and questions regarding advance care planning, including individuals and resources to contact for further inquiries;CommentsClose CommentsPermalink
(2) advance directives and their uses, including living wills and durable powers of attorney;CommentsClose CommentsPermalink
(3) the roles and responsibilities of a health care proxy;CommentsClose CommentsPermalink
(4) Federal and State-specific resources to assist individuals and their families with advance care planning, including--CommentsClose CommentsPermalink
(A) the advance care planning toll-free telephone hotline established under section 101;CommentsClose CommentsPermalink
(B) the advance care planning clearinghouses established under section 102;CommentsClose CommentsPermalink
(C) the advance care planning toolkit established under this section;CommentsClose CommentsPermalink
(D) available State legal service organizations to assist individuals with advance care planning, including those organizations that receive funding pursuant to the Older Americans Act of 1965 (
(E) website links or addresses for State-specific advance directive forms; andCommentsClose CommentsPermalink
(5) any additional information, as determined by the Secretary.CommentsClose CommentsPermalink
SEC. 104. NATIONAL PUBLIC EDUCATION CAMPAIGN.
(a) National Public Education Campaign-CommentsClose CommentsPermalink
(1) IN GENERAL- Not later than January 1, 2011, the Secretary, acting through the Director of the Centers for Disease Control and Prevention, shall, directly or through grants, contracts, or interagency agreements, develop and implement a national campaign to inform the public of the importance of advance care planning and of an individual’s right to direct and participate in their health care decisions.CommentsClose CommentsPermalink
(2) CONTENT OF EDUCATIONAL CAMPAIGN- The national public education campaign established under paragraph (1) shall--CommentsClose CommentsPermalink
(A) employ the use of various media, including regularly televised public service announcements;CommentsClose CommentsPermalink
(B) provide culturally and linguistically appropriate information;CommentsClose CommentsPermalink
(C) be conducted continuously over a period of not less than 5 years;CommentsClose CommentsPermalink
(D) identify and promote the advance care planning information available on the Department of Health and Human Service’s National Clearinghouse for Long-Term Care Information website and Administration for Children and Families website, as well as any other relevant Federal or State-specific advance care planning resources;CommentsClose CommentsPermalink
(E) raise public awareness of the consequences that may result if an individual is no longer able to express or communicate their health care decisions;CommentsClose CommentsPermalink
(F) address the importance of individuals speaking to family members, health care proxies, and health care providers as part of an ongoing dialogue regarding their health care choices;CommentsClose CommentsPermalink
(G) address the need for individuals to obtain readily available legal documents that express their health care decisions through advance directives (including living wills, comfort care orders, and durable powers of attorney for health care);CommentsClose CommentsPermalink
(H) raise public awareness regarding the availability of hospice and palliative care; andCommentsClose CommentsPermalink
(I) encourage individuals to speak with their physicians about their options and intentions for end-of-life care.CommentsClose CommentsPermalink
(3) EVALUATION-CommentsClose CommentsPermalink
(A) IN GENERAL- Not later than July 1, 2013, the Secretary, acting through the Director of the Centers for Disease Control and Prevention, shall conduct a nationwide survey to evaluate whether the national campaign conducted under this subsection has achieved its goal of changing public awareness, attitudes, and behaviors regarding advance care planning.CommentsClose CommentsPermalink
(B) BASELINE SURVEY- In order to evaluate the effectiveness of the national campaign, the Secretary shall conduct a baseline survey prior to implementation of the campaign.CommentsClose CommentsPermalink
(C) REPORTING REQUIREMENT- Not later than December 31, 2013, the Secretary shall report the findings of such survey, as well as any recommendations that the Secretary determines appropriate regarding the need for continuation or legislative or administrative changes to facilitate changing public awareness, attitudes, and behaviors regarding advance care planning, to the appropriate committees of the Congress.CommentsClose CommentsPermalink
(b) Repeal- Section 4751(d) of the Omnibus Budget Reconciliation Act of 1990 (
SEC. 105. UPDATE OF MEDICARE AND SOCIAL SECURITY HANDBOOKS.
(a) Medicare & You Handbook-CommentsClose CommentsPermalink
(1) IN GENERAL- Not later than 60 days after the date of enactment of this Act, the Secretary shall update the online version of the ‘Planning Ahead’ section of the Medicare & You Handbook to include--CommentsClose CommentsPermalink
(A) an explanation of advance care planning and advance directives, including--CommentsClose CommentsPermalink
(i) living wills;CommentsClose CommentsPermalink
(ii) health care proxies; andCommentsClose CommentsPermalink
(iii) after-death directives;CommentsClose CommentsPermalink
(B) Federal and State-specific resources to assist individuals and their families with advance care planning, including--CommentsClose CommentsPermalink
(i) the advance care planning toll-free telephone hotline established under section 101;CommentsClose CommentsPermalink
(ii) the advance care planning clearinghouses established under section 102;CommentsClose CommentsPermalink
(iii) the advance care planning toolkit established under section 103;CommentsClose CommentsPermalink
(iv) available State legal service organizations to assist individuals with advance care planning, including those organizations that receive funding pursuant to the Older Americans Act of 1965 (
(v) website links or addresses for State-specific advance directive forms; andCommentsClose CommentsPermalink
(C) any additional information, as determined by the Secretary.CommentsClose CommentsPermalink
(2) UPDATE OF PAPER AND SUBSEQUENT VERSIONS- The Secretary shall include the information described in paragraph (1) in all paper and electronic versions of the Medicare & You Handbook that are published on or after the date that is 60 days after the date of enactment of this Act.CommentsClose CommentsPermalink
(b) Social Security Handbook- The Commissioner of Social Security shall--CommentsClose CommentsPermalink
(1) not later than 60 days after the date of enactment of this Act, update the online version of the Social Security Handbook for beneficiaries to include the information described in subsection (a)(1); andCommentsClose CommentsPermalink
(2) include such information in all paper and online versions of such handbook that are published on or after the date that is 60 days after the date of enactment of this Act.CommentsClose CommentsPermalink
SEC. 106. AUTHORIZATION OF APPROPRIATIONS.
There is authorized to be appropriated for the period of fiscal years 2010 through 2014--CommentsClose CommentsPermalink
(1) $195,000,000 to the Secretary to carry out sections 101, 102, 103, 104 and 105(a); andCommentsClose CommentsPermalink
(2) $5,000,000 to the Commissioner of Social Security to carry out section 105(b).CommentsClose CommentsPermalink
Subpart B--State and Local Initiatives
SEC. 111. FINANCIAL ASSISTANCE FOR ADVANCE CARE PLANNING.
(a) Legal Assistance for Advance Care Planning-CommentsClose CommentsPermalink
(1) DEFINITION OF RECIPIENT- Section 1002(6) of the Legal Services Corporation Act (
(2) ADVANCE CARE PLANNING- Section 1006 of the Legal Services Corporation Act (
(A) in subsection (a)(1)--CommentsClose CommentsPermalink
(i) by striking ‘title, and (B) to make’ and inserting the following: ‘title;CommentsClose CommentsPermalink
‘(C) to make’; andCommentsClose CommentsPermalink
(ii) by inserting after subparagraph (A) the following:CommentsClose CommentsPermalink
‘(B) to provide financial assistance, and make grants and contracts, as described in subparagraph (A), on a competitive basis for the purpose of providing legal assistance in the form of advance care planning (as defined in section 3 of the Advance Planning and Compassionate Care Act of 2009, and including providing information about State-specific advance directives, as defined in that section) for eligible clients under this title, including providing such planning to the family members of eligible clients and persons with power of attorney to make health care decisions for the clients; and’; andCommentsClose CommentsPermalink
(B) in subsection (b), by adding at the end the following:CommentsClose CommentsPermalink
‘(2) Advance care planning provided in accordance with subsection (a)(1)(B) shall not be construed to violate the Assisted Suicide Funding Restriction Act of 1997 (
42 U.S.C. 14401 et seq.).’.CommentsClose CommentsPermalink
(3) REPORTS- Section 1008(a) of the Legal Services Corporation Act (
(4) AUTHORIZATION OF APPROPRIATIONS- Section 1010 of the Legal Services Corporation Act (
(A) in subsection (a)--CommentsClose CommentsPermalink
(i) by striking ‘(a)’ and inserting ‘(a)(1)’;CommentsClose CommentsPermalink
(ii) in the last sentence, by striking ‘Appropriations for that purpose’ and inserting the following:CommentsClose CommentsPermalink
‘(3) Appropriations for a purpose described in paragraph (1) or (2)’; andCommentsClose CommentsPermalink
(iii) by inserting before paragraph (3) (as designated by clause (ii)) the following:CommentsClose CommentsPermalink
‘(2) There are authorized to be appropriated to carry out section 1006(a)(1)(B), $10,000,000 for each of fiscal years 2010, 2011, 2012, 2013, and 2014.’; andCommentsClose CommentsPermalink
(B) in subsection (d), by striking ‘subsection (a)’ and inserting ‘subsection (a)(1)’.CommentsClose CommentsPermalink
(5) EFFECTIVE DATE- This subsection and the amendments made by this subsection take effect July 1, 2010.CommentsClose CommentsPermalink
(b) State Health Insurance Assistance Programs-CommentsClose CommentsPermalink
(1) IN GENERAL- The Secretary shall use amounts made available under paragraph (3) to award grants to States for State health insurance assistance programs receiving assistance under section 4360 of the Omnibus Budget Reconciliation Act of 1990 to provide advance care planning services to Medicare beneficiaries, personal representatives of such beneficiaries, and the families of such beneficiaries. Such services shall include information regarding State-specific advance directives and ways to discuss individual care wishes with health care providers.CommentsClose CommentsPermalink
(2) REQUIREMENTS-CommentsClose CommentsPermalink
(A) AWARD OF GRANTS- In making grants under this subsection for a fiscal year, the Secretary shall satisfy the following requirements:CommentsClose CommentsPermalink
(i) Two-thirds of the total amount of funds available under paragraph (3) for a fiscal year shall be allocated among those States approved for a grant under this section that have adopted the Uniform Health-Care Decisions Act drafted by the National Conference of Commissioners on Uniform State Laws and approved and recommended for enactment by all States at the annual conference of such commissioners in 1993.CommentsClose CommentsPermalink
(ii) One-third of the total amount of funds available under paragraph (3) for a fiscal year shall be allocated among those States approved for a grant under this section that have adopted a uniform form for orders regarding life sustaining treatment as defined in section 1861(hhh)(5) of the Social Security Act (as amended by section 211 of this Act) or a comparable approach to advance care planning.CommentsClose CommentsPermalink
(B) WORK PLAN; REPORT- As a condition of being awarded a grant under this subsection, a State shall submit the following to the Secretary:CommentsClose CommentsPermalink
(i) An approved plan for expending grant funds.CommentsClose CommentsPermalink
(ii) For each fiscal year for which the State is paid grant funds under this subsection, an annual report regarding the use of the funds, including the number of Medicare beneficiaries served and their satisfaction with the services provided.CommentsClose CommentsPermalink
(C) LIMITATION- No State shall be paid funds from a grant made under this subsection prior to July 1, 2010.CommentsClose CommentsPermalink
(3) AUTHORIZATION OF APPROPRIATIONS- There is authorized to be appropriated to the Secretary to the Centers for Medicare & Medicaid Services Program Management Account, $12,000,000 for each of fiscal years 2010 through 2014 for purposes of awarding grants to States under paragraph (1).CommentsClose CommentsPermalink
(c) Medicaid Transformation Grants for Advance Care Planning- Section 1903(z) of the Social Security Act (
(1) in paragraph (2), by adding at the end the following new subparagraph:CommentsClose CommentsPermalink
‘(G) Methods for improving the effectiveness and efficiency of medical assistance provided under this title by making available to individuals enrolled in the State plan or under a waiver of such plan information regarding advance care planning (as defined in section 3 of the Advance Planning and Compassionate Care Act of 2009), including at time of enrollment or renewal of enrollment in the plan or waiver, through providers, and through such other innovative means as the State determines appropriate.’;CommentsClose CommentsPermalink
(2) in paragraph (3), by adding at the end the following new subparagraph:CommentsClose CommentsPermalink
‘(D) WORK PLAN REQUIRED FOR AWARD OF ADVANCE CARE PLANNING GRANTS- Payment to a State under this subsection to adopt the innovative methods described in paragraph (2)(G) is conditioned on the State submitting to the Secretary an approved plan for expending the funds awarded to the State under this subsection.’; andCommentsClose CommentsPermalink
(3) in paragraph (4)--CommentsClose CommentsPermalink
(A) in subparagraph (A)--CommentsClose CommentsPermalink
(i) in clause (i), by striking ‘and’ at the end;CommentsClose CommentsPermalink
(ii) in clause (ii), by striking the period at the end and inserting ‘; and’; andCommentsClose CommentsPermalink
(iii) by inserting after clause (ii), the following new clause:CommentsClose CommentsPermalink
‘(iii) $20,000,000 for each of fiscal years 2010 through 2014.’; andCommentsClose CommentsPermalink
(B) by striking subparagraph (B), and inserting the following:CommentsClose CommentsPermalink
‘(B) ALLOCATION OF FUNDS- The Secretary shall specify a method for allocating the funds made available under this subsection among States awarded a grant for fiscal year 2010, 2011, 2012, 2013, or 2014. Such method shall provide that--CommentsClose CommentsPermalink
‘(i) 100 percent of such funds for each of fiscal years 2010 through 2014 shall be awarded to States that design programs to adopt the innovative methods described in paragraph (2)(G); andCommentsClose CommentsPermalink
‘(ii) in no event shall a payment to a State awarded a grant under this subsection for fiscal year 2010 be made prior to July 1, 2010.’.CommentsClose CommentsPermalink
(d) Advance Care Planning Community Training Grants-CommentsClose CommentsPermalink
(1) IN GENERAL- The Secretary shall use amounts made available under paragraph (3) to award grants to area agencies on aging (as defined in section 102 of the Older Americans Act of 1965 (
(2) REQUIREMENTS-CommentsClose CommentsPermalink
(A) USE OF FUNDS- Funds awarded to an area agency on aging under this subsection shall be used to provide advance care planning education and training opportunities for local aging service providers and organizations.CommentsClose CommentsPermalink
(B) WORK PLAN; REPORT- As a condition of being awarded a grant under this subsection, an area agency on aging shall submit the following to the Secretary:CommentsClose CommentsPermalink
(i) An approved plan for expending grant funds.CommentsClose CommentsPermalink
(ii) For each fiscal year for which the agency is paid grant funds under this subsection, an annual report regarding the use of the funds, including the number of Medicare beneficiaries served and their satisfaction with the services provided.CommentsClose CommentsPermalink
(C) LIMITATION- No area agency on aging shall be paid funds from a grant made under this subsection prior to July 1, 2010.CommentsClose CommentsPermalink
(3) AUTHORIZATION OF APPROPRIATIONS- There is authorized to be appropriated to the Secretary to the Centers for Medicare & Medicaid Services Program Management Account, $12,000,000 for each of fiscal years 2010 through 2014 for purposes of awarding grants to area agencies on aging under paragraph (1).CommentsClose CommentsPermalink
(e) Nonduplication of Activities- The Secretary shall establish procedures to ensure that funds made available under grants awarded under this section or pursuant to amendments made by this section supplement, not supplant, existing Federal funding, and that such funds are not used to duplicate activities carried out under such grants or under other Federally funded programs.CommentsClose CommentsPermalink
SEC. 112. GRANTS FOR PROGRAMS FOR ORDERS REGARDING LIFE SUSTAINING TREATMENT.
(a) In General- The Secretary shall make grants to eligible entities for the purpose of--CommentsClose CommentsPermalink
(1) establishing new programs for orders regarding life sustaining treatment in States or localities;CommentsClose CommentsPermalink
(2) expanding or enhancing an existing program for orders regarding life sustaining treatment in States or localities; orCommentsClose CommentsPermalink
(3) providing a clearinghouse of information on programs for orders for life sustaining treatment and consultative services for the development or enhancement of such programs.CommentsClose CommentsPermalink
(b) Authorized Activities- Activities funded through a grant under this section for an area may include--CommentsClose CommentsPermalink
(1) developing such a program for the area that includes home care, hospice, long-term care, community and assisted living residences, skilled nursing facilities, inpatient rehabilitation facilities, hospitals, and emergency medical services within the area;CommentsClose CommentsPermalink
(2) securing consultative services and advice from institutions with experience in developing and managing such programs; andCommentsClose CommentsPermalink
(3) expanding an existing program for orders regarding life sustaining treatment to serve more patients or enhance the quality of services, including educational services for patients and patients’ families or training of health care professionals.CommentsClose CommentsPermalink
(c) Distribution of Funds- In funding grants under this section, the Secretary shall ensure that, of the funds appropriated to carry out this section for each fiscal year--CommentsClose CommentsPermalink
(1) at least two-thirds are used for establishing or developing new programs for orders regarding life sustaining treatment; andCommentsClose CommentsPermalink
(2) one-third is used for expanding or enhancing existing programs for orders regarding life sustaining treatment.CommentsClose CommentsPermalink
(d) Definitions- In this section:CommentsClose CommentsPermalink
(1) The term ‘eligible entity’ includes--CommentsClose CommentsPermalink
(A) an academic medical center, a medical school, a State health department, a State medical association, a multi-State taskforce, a hospital, or a health system capable of administering a program for orders regarding life sustaining treatment for a State or locality; orCommentsClose CommentsPermalink
(B) any other health care agency or entity as the Secretary determines appropriate.CommentsClose CommentsPermalink
(2) The term ‘order regarding life sustaining treatment’ has the meaning given such term in section 1861(hhh)(5) of the Social Security Act, as added by section 211.CommentsClose CommentsPermalink
(3) The term ‘program for orders regarding life sustaining treatment’ means, with respect to an area, a program that supports the active use of orders regarding life sustaining treatment in the area.CommentsClose CommentsPermalink
(e) Authorization of Appropriations- To carry out this section, there are authorized to be appropriated such sums as may be necessary for each of the fiscal years 2009 through 2014.CommentsClose CommentsPermalink
PART II--PROVIDER EDUCATION
SEC. 121. PUBLIC PROVIDER ADVANCE CARE PLANNING WEBSITE.
(a) Development- Not later than January 1, 2010, the Secretary, acting through the Administrator of the Centers for Medicare & Medicaid Services and the Director of the Agency for Healthcare Research and Quality, shall establish a website for providers under Medicare, Medicaid, the Children’s Health Insurance Program, the Indian Health Service (include contract providers) and other public health providers on each individual’s right to make decisions concerning medical care, including the right to accept or refuse medical or surgical treatment, and the existence of advance directives.CommentsClose CommentsPermalink
(b) Maintenance- The website, shall be maintained and publicized by the Secretary on an ongoing basis.CommentsClose CommentsPermalink
(c) Content- The website shall include content, tools, and resources necessary to do the following:CommentsClose CommentsPermalink
(1) Inform providers about the advance directive requirements under the health care programs described in subsection (a) and other State and Federal laws and regulations related to advance care planning.CommentsClose CommentsPermalink
(2) Educate providers about advance care planning quality improvement activities.CommentsClose CommentsPermalink
(3) Provide assistance to providers to--CommentsClose CommentsPermalink
(A) integrate advance directives into electronic health records, including oral directives; andCommentsClose CommentsPermalink
(B) develop and disseminate advance care planning informational materials for their patients.CommentsClose CommentsPermalink
(4) Inform providers about advance care planning continuing education requirements and opportunities.CommentsClose CommentsPermalink
(5) Encourage providers to discuss advance care planning with their patients of all ages.CommentsClose CommentsPermalink
(6) Assist providers’ understanding of the continuum of end-of-life care services and supports available to patients, including palliative care and hospice.CommentsClose CommentsPermalink
(7) Inform providers of best practices for discussing end-of-life care with dying patients and their loved ones.CommentsClose CommentsPermalink
SEC. 122. CONTINUING EDUCATION FOR PHYSICIANS AND NURSES.
(a) In General- Not later than January 1, 2012, the Secretary, acting through the Director of Health Resources and Services Administration, shall develop, in consultation with health care providers and State boards of medicine and nursing, a curriculum for continuing education that States may adopt for physicians and nurses on advance care planning and end-of-life care.CommentsClose CommentsPermalink
(b) Content-CommentsClose CommentsPermalink
(1) IN GENERAL- The continuing education curriculum developed under subsection (a) for physicians and nurses shall, at a minimum, include--CommentsClose CommentsPermalink
(A) a description of the meaning and importance of advance care planning;CommentsClose CommentsPermalink
(B) a description of advance directives, including living wills and durable powers of attorney, and the use of such directives;CommentsClose CommentsPermalink
(C) palliative care principles and approaches to care; andCommentsClose CommentsPermalink
(D) the continuum of end-of-life services and supports, including palliative care and hospice.CommentsClose CommentsPermalink
(2) ADDITIONAL CONTENT FOR PHYSICIANS- The continuing education curriculum for physicians developed under subsection (a) shall include instruction on how to conduct advance care planning with patients and their loved ones.CommentsClose CommentsPermalink
Subtitle B--Portability of Advance Directives; Health Information TechnologyCommentsClose CommentsPermalink
Subtitle B--Portability of Advance Directives; Health Information TechnologyCommentsClose CommentsPermalink
SEC. 131. PORTABILITY OF ADVANCE DIRECTIVES.
(a) Medicare- Section 1866(f) of the Social Security Act (
(1) in paragraph (1)--CommentsClose CommentsPermalink
(A) in subparagraph (B), by inserting ‘and if presented by the individual, to include the content of such advance directive in a prominent part of such record’ before the semicolon at the end;CommentsClose CommentsPermalink
(B) in subparagraph (D), by striking ‘and’ after the semicolon at the end;CommentsClose CommentsPermalink
(C) in subparagraph (E), by striking the period at the end and inserting ‘; and’; andCommentsClose CommentsPermalink
(D) by inserting after subparagraph (E) the following new subparagraph:CommentsClose CommentsPermalink
‘(F) to provide each individual with the opportunity to discuss issues relating to the information provided to that individual pursuant to subparagraph (A) with an appropriately trained professional.’;CommentsClose CommentsPermalink
(2) in paragraph (3), by striking ‘a written’ and inserting ‘an’; andCommentsClose CommentsPermalink
(3) by adding at the end the following new paragraph:CommentsClose CommentsPermalink
‘(5)(A) An advance directive validly executed outside of the State in which such advance directive is presented by an adult individual to a provider of services, a Medicare Advantage organization, or a prepaid or eligible organization shall be given the same effect by that provider or organization as an advance directive validly executed under the law of the State in which it is presented would be given effect.CommentsClose CommentsPermalink
‘(B)(i) The definition of an advanced directive shall also include actual knowledge of instructions made while an individual was able to express the wishes of such individual with regard to health care.CommentsClose CommentsPermalink
‘(ii) For purposes of clause (i), the term ‘actual knowledge’ means the possession of information of an individual’s wishes communicated to the health care provider orally or in writing by the individual, the individual’s medical power of attorney representative, the individual’s health care surrogate, or other individuals resulting in the health care provider’s personal cognizance of these wishes. Other forms of imputed knowledge are not actual knowledge.CommentsClose CommentsPermalink
‘(C) The provisions of this paragraph shall preempt any State law to the extent such law is inconsistent with such provisions. The provisions of this paragraph shall not preempt any State law that provides for greater portability, more deference to a patient’s wishes, or more latitude in determining a patient’s wishes.’.CommentsClose CommentsPermalink
(b) Medicaid- Section 1902(w) of the Social Security Act (
(1) in paragraph (1)--CommentsClose CommentsPermalink
(A) in subparagraph (B)--CommentsClose CommentsPermalink
(i) by striking ‘in the individual’s medical record’ and inserting ‘in a prominent part of the individual’s current medical record’; andCommentsClose CommentsPermalink
(ii) by inserting ‘and if presented by the individual, to include the content of such advance directive in a prominent part of such record’ before the semicolon at the end;CommentsClose CommentsPermalink
(B) in subparagraph (D), by striking ‘and’ after the semicolon at the end;CommentsClose CommentsPermalink
(C) in subparagraph (E), by striking the period at the end and inserting ‘; and’; andCommentsClose CommentsPermalink
(D) by inserting after subparagraph (E) the following new subparagraph:CommentsClose CommentsPermalink
‘(F) to provide each individual with the opportunity to discuss issues relating to the information provided to that individual pursuant to subparagraph (A) with an appropriately trained professional.’;CommentsClose CommentsPermalink
(2) in paragraph (4), by striking ‘a written’ and inserting ‘an’; andCommentsClose CommentsPermalink
(3) by adding at the end the following paragraph:CommentsClose CommentsPermalink
‘(6)(A) An advance directive validly executed outside of the State in which such advance directive is presented by an adult individual to a provider or organization shall be given the same effect by that provider or organization as an advance directive validly executed under the law of the State in which it is presented would be given effect.CommentsClose CommentsPermalink
‘(B)(i) The definition of an advance directive shall also include actual knowledge of instructions made while an individual was able to express the wishes of such individual with regard to health care.CommentsClose CommentsPermalink
‘(ii) For purposes of clause (i), the term ‘actual knowledge’ means the possession of information of an individual’s wishes communicated to the health care provider orally or in writing by the individual, the individual’s medical power of attorney representative, the individual’s health care surrogate, or other individuals resulting in the health care provider’s personal cognizance of these wishes. Other forms of imputed knowledge are not actual knowledge.CommentsClose CommentsPermalink
‘(C) The provisions of this paragraph shall preempt any State law to the extent such law is inconsistent with such provisions. The provisions of this paragraph shall not preempt any State law that provides for greater portability, more deference to a patient’s wishes, or more latitude in determining a patient’s wishes.’.CommentsClose CommentsPermalink
(c) CHIP- Section 2107(e)(1) of the Social Security Act (
(1) by redesignating subparagraphs (E) through (L) as subparagraphs (D) through (M), respectively; andCommentsClose CommentsPermalink
(2) by inserting after subparagraph (D) the following:CommentsClose CommentsPermalink
‘(E) Section 1902(w) (relating to advance directives).’.CommentsClose CommentsPermalink
(d) Study and Report Regarding Implementation-CommentsClose CommentsPermalink
(1) STUDY- The Secretary shall conduct a study regarding the implementation of the amendments made by subsections (a) and (b).CommentsClose CommentsPermalink
(2) REPORT- Not later than 18 months after the date of enactment of this Act, the Secretary shall submit to Congress a report on the study conducted under paragraph (1), together with recommendations for such legislation and administrative actions as the Secretary considers appropriate.CommentsClose CommentsPermalink
(e) Effective Dates-CommentsClose CommentsPermalink
(1) IN GENERAL- Subject to paragraph (2), the amendments made by subsections (a), (b), and (c) shall apply to provider agreements and contracts entered into, renewed, or extended under title XVIII of the Social Security Act (
(2) EXTENSION OF EFFECTIVE DATE FOR STATE LAW AMENDMENT- In the case of a State plan under title XIX of the Social Security Act or a State child health plan under title XXI of such Act which the Secretary determines requires State legislation in order for the plan to meet the additional requirements imposed by the amendments made by subsections (b) and (c), the State plan shall not be regarded as failing to comply with the requirements of such title solely on the basis of its failure to meet these additional requirements before the first day of the first calendar quarter beginning after the close of the first regular session of the State legislature that begins after the date of enactment of this Act. For purposes of the previous sentence, in the case of a State that has a 2-year legislative session, each year of the session is considered to be a separate regular session of the State legislature.CommentsClose CommentsPermalink
SEC. 132. STATE ADVANCE DIRECTIVE REGISTRIES; DRIVER’S LICENSE ADVANCE DIRECTIVE NOTATION.
Part P of title III of the Public Health Service Act (
(1) by redesignating section 399R (as inserted by section 2 of
(2) by redesignating section 399R (as inserted by section 3 of
(3) by adding at the end the following:CommentsClose CommentsPermalink
‘SEC. 399U. STATE ADVANCE DIRECTIVE REGISTRIES.
‘(a) State Advance Directive Registry- In this section, the term ‘State advance directive registry’ means a secure, electronic database that--CommentsClose CommentsPermalink
‘(1) is available free of charge to residents of a State; andCommentsClose CommentsPermalink
‘(2) stores advance directive documents and makes such documents accessible to medical service providers in accordance with Federal and State privacy laws.CommentsClose CommentsPermalink
‘(b) Grant Program- Beginning on July 1, 2010, the Secretary, acting through the Director of the Centers for Disease Control and Prevention, shall award grants on a competitive basis to eligible entities to establish and operate, directly or indirectly (by competitive grant or competitive contract), State advance directive registries.CommentsClose CommentsPermalink
‘(c) Eligible Entities-CommentsClose CommentsPermalink
‘(1) IN GENERAL- To be eligible to receive a grant under this section, an entity shall--CommentsClose CommentsPermalink
‘(A) be a State department of health; andCommentsClose CommentsPermalink
‘(B) submit to the Director an application at such time, in such manner, and containing--CommentsClose CommentsPermalink
‘(i) a plan for the establishment and operation of a State advance directive registry; andCommentsClose CommentsPermalink
‘(ii) such other information as the Director may require.CommentsClose CommentsPermalink
‘(2) NO REQUIREMENT OF NOTATION MECHANISM- The Secretary shall not require that an entity establish and operate a driver’s license advance directive notation mechanism for State residents under section 399V to be eligible to receive a grant under this section.CommentsClose CommentsPermalink
‘(d) Annual Report- For each year for which an entity receives an award under this section, such entity shall submit an annual report to the Director on the use of the funds received pursuant to such award, including the number of State residents served through the registry.CommentsClose CommentsPermalink
‘(e) Authorization- There is authorized to be appropriated to carry out this section $20,000,000 for fiscal year 2010 and each fiscal year thereafter.CommentsClose CommentsPermalink
‘SEC. 399V. DRIVER’S LICENSE ADVANCE DIRECTIVE NOTATION.
‘(a) In General- Beginning July 1, 2010, the Secretary, acting through the Director of the Centers for Disease Control and Prevention, shall award grants on a competitive basis to States to establish and operate a mechanism for a State resident with a driver’s license to include a notice of the existence of an advance directive for such resident on such license.CommentsClose CommentsPermalink
‘(b) Eligibility- To be eligible to receive a grant under this section, a State shall--CommentsClose CommentsPermalink
‘(1) establish and operate a State advance directive registry under section 399U; andCommentsClose CommentsPermalink
‘(2) submit to the Director an application at such time, in such manner, and containing--CommentsClose CommentsPermalink
‘(A) a plan that includes a description of how the State will--CommentsClose CommentsPermalink
‘(i) disseminate information about advance directives at the time of driver’s license application or renewal;CommentsClose CommentsPermalink
‘(ii) enable each State resident with a driver’s license to include a notice of the existence of an advance directive for such resident on such license in a manner consistent with the notice on such a license indicating a driver’s intent to be an organ donor; andCommentsClose CommentsPermalink
‘(iii) coordinate with the State department of health to ensure that, if a State resident has an advance directive notice on his or her driver’s license, the existence of such advance directive is included in the State registry established under section 399U; andCommentsClose CommentsPermalink
‘(B) any other information as the Director may require.CommentsClose CommentsPermalink
‘(c) Annual Report- For each year for which a State receives an award under this section, such State shall submit an annual report to the Director on the use of the funds received pursuant to such award, including the number of State residents served through the mechanism.CommentsClose CommentsPermalink
‘(d) Authorization- There is authorized to be appropriated to carry out this section $50,000,000 for fiscal year 2010 and each fiscal year thereafter.’.CommentsClose CommentsPermalink
SEC. 133. GAO STUDY AND REPORT ON ESTABLISHMENT OF NATIONAL ADVANCE DIRECTIVE REGISTRY.
(a) Study- The Comptroller General of the United States shall conduct a study on the feasibility of a national registry for advance directives, taking into consideration the constraints created by the privacy provisions enacted as a result of the Health Insurance Portability and Accountability Act of 1996 (
(b) Report- Not later than 18 months after the date of enactment of this Act, the Comptroller General of the United States shall submit to Congress a report on the study conducted under subsection (a) together with recommendations for such legislation and administrative action as the Comptroller General of the United States determines to be appropriate.CommentsClose CommentsPermalink
Subtitle C--National Uniform Policy on Advance Care PlanningCommentsClose CommentsPermalink
Subtitle C--National Uniform Policy on Advance Care PlanningCommentsClose CommentsPermalink
SEC. 141. STUDY AND REPORT BY THE SECRETARY REGARDING THE ESTABLISHMENT AND IMPLEMENTATION OF A NATIONAL UNIFORM POLICY ON ADVANCE DIRECTIVES.
(a) Study-CommentsClose CommentsPermalink
(1) IN GENERAL- The Secretary, acting through the Office of the Assistant Secretary for Planning and Evaluation, shall conduct a thorough study of all matters relating to the establishment and implementation of a national uniform policy on advance directives for individuals receiving items and services under titles XVIII, XIX, or XXI of the Social Security Act (
(2) MATTERS STUDIED- The matters studied by the Secretary under paragraph (1) shall include issues concerning--CommentsClose CommentsPermalink
(A) family satisfaction that a patient’s wishes, as stated in the patient’s advance directive, were carried out;CommentsClose CommentsPermalink
(B) the portability of advance directives, including cases involving the transfer of an individual from 1 health care setting to another;CommentsClose CommentsPermalink
(C) immunity from civil liability and criminal responsibility for health care providers that follow the instructions in an individual’s advance directive that was validly executed in, and consistent with the laws of, the State in which it was executed;CommentsClose CommentsPermalink
(D) conditions under which an advance directive is operative;CommentsClose CommentsPermalink
(E) revocation of an advance directive by an individual;CommentsClose CommentsPermalink
(F) the criteria used by States for determining that an individual has a terminal condition;CommentsClose CommentsPermalink
(G) surrogate decisionmaking regarding end-of-life care;CommentsClose CommentsPermalink
(H) the provision of adequate palliative care (as defined in paragraph (3)), including pain management;CommentsClose CommentsPermalink
(I) adequate and timely referrals to hospice care programs; andCommentsClose CommentsPermalink
(J) the end-of-life care needs of children and their families.CommentsClose CommentsPermalink
(3) PALLIATIVE CARE- For purposes of paragraph (2)(H), the term ‘palliative care’ means interdisciplinary care for individuals with a life-threatening illness or injury relating to pain and symptom management and psychological, social, and spiritual needs and that seeks to improve the quality of life for the individual and the individual’s family.CommentsClose CommentsPermalink
(b) Report to Congress- Not later than 18 months after the date of enactment of this Act, the Secretary shall submit to Congress a report on the study conducted under subsection (a), together with recommendations for such legislation and administrative actions as the Secretary considers appropriate.CommentsClose CommentsPermalink
(c) Consultation- In conducting the study and developing the report under this section, the Secretary shall consult with the Uniform Law Commissioners, and other interested parties.CommentsClose CommentsPermalink
TITLE II--COMPASSIONATE CARECommentsClose CommentsPermalink
TITLE II--COMPASSIONATE CARECommentsClose CommentsPermalink
Subtitle A--Workforce DevelopmentCommentsClose CommentsPermalink
Subtitle A--Workforce DevelopmentCommentsClose CommentsPermalink
PART I--EDUCATION AND TRAINING
SEC. 201. NATIONAL GERIATRIC AND PALLIATIVE CARE SERVICES CORPS.
Section 331 of the Public Health Service Act (
(1) by redesignating subsection (j) as subsection (k); andCommentsClose CommentsPermalink
(2) by inserting after subsection (i), the following:CommentsClose CommentsPermalink
‘(j) National Geriatric and Palliative Care Services Corps-CommentsClose CommentsPermalink
‘(1) ESTABLISHMENT- Not later than January 1, 2012, the Secretary shall establish within the National Health Service Corps a National Geriatric and Palliative Care Services Corps (referred to in this subsection as the ‘Corps’) which shall consist of--CommentsClose CommentsPermalink
‘(A) such officers of the Regular and Reserve Corps of the Service as the Secretary may designate;CommentsClose CommentsPermalink
‘(B) such civilian employees of the United States as the Secretary may appoint; andCommentsClose CommentsPermalink
‘(C) such other individuals who are not employees of the United States.CommentsClose CommentsPermalink
‘(2) DUTIES- The Corps shall be utilized by the Secretary to provide geriatric and palliative care services within health professional shortage areas.CommentsClose CommentsPermalink
‘(3) APPLICATION OF PROVISIONS- The loan-forgiveness, scholarship, and direct financial incentives programs provided for under this section shall apply to physicians, nurses, and other health professionals (as identified by the Secretary) with respect to the training necessary to enable such individuals to become geriatric or palliative care specialists and provide geriatric and palliative care services in health professional shortage areas.CommentsClose CommentsPermalink
‘(4) REPORT- Not later than 6 months prior to the date on which the Secretary establishes the Corps under paragraph (1), the Secretary shall submit to Congress a report concerning the organization of the Corps, the application process for membership in the Corps, and the funding necessary for the Corps (targeted by profession and by specialization).’.CommentsClose CommentsPermalink
SEC. 202. EXEMPTION OF PALLIATIVE MEDICINE FELLOWSHIP TRAINING FROM MEDICARE GRADUATE MEDICAL EDUCATION CAPS.
(a) Direct Graduate Medical Education- Section 1886(h)(4)(F) of the Social Security Act (
(1) in clause (i), by inserting ‘clause (iii) and’ after ‘subject to’; andCommentsClose CommentsPermalink
(2) by adding at the end the following new clause:CommentsClose CommentsPermalink
‘(iii) INCREASE ALLOWED FOR PALLIATIVE MEDICINE FELLOWSHIP TRAINING- For cost reporting periods beginning on or after January 1, 2011, in applying clause (i), there shall not be taken into account full-time equivalent residents in the field of allopathic or osteopathic medicine who are in palliative medicine fellowship training that is approved by the Accreditation Council for Graduate Medical Education.’.CommentsClose CommentsPermalink
(b) Indirect Medical Education- Section 1886(d)(5)(B) of the Social Security Act (
‘(x) Clause (iii) of subsection (h)(4)(F) shall apply to clause (v) in the same manner and for the same period as such clause (iii) applies to clause (i) of such subsection.’.CommentsClose CommentsPermalink
SEC. 203. MEDICAL SCHOOL CURRICULA.
(a) In General- The Secretary, in consultation with the Association of American Medical Colleges, shall establish guidelines for the imposition by medical schools of a minimum amount of end-of-life training as a requirement for obtaining a Doctor of Medicine degree in the field of allopathic or osteopathic medicine.CommentsClose CommentsPermalink
(b) Training- Under the guidelines established under subsection (a), minimum training shall include--CommentsClose CommentsPermalink
(1) training in how to discuss and help patients and their loved ones with advance care planning;CommentsClose CommentsPermalink
(2) with respect to students and trainees who will work with children, specialized pediatric training;CommentsClose CommentsPermalink
(3) training in the continuum of end-of-life services and supports, including palliative care and hospice;CommentsClose CommentsPermalink
(4) training in how to discuss end-of-life care with dying patients and their loved ones; andCommentsClose CommentsPermalink
(5) medical and legal issues training.CommentsClose CommentsPermalink
(c) Distribution- Not later than January 1, 2011, the Secretary shall disseminate the guidelines established under subsection (a) to medical schools.CommentsClose CommentsPermalink
(d) Compliance- Effective beginning not later than July 1, 2012, a medical school that is receiving Federal assistance shall be required to implement the guidelines established under subsection (a). A medical school that the Secretary determines is not implementing such guidelines shall not be eligible for Federal assistance.CommentsClose CommentsPermalink
Subtitle B--Coverage Under Medicare, Medicaid, and CHIPCommentsClose CommentsPermalink
Subtitle B--Coverage Under Medicare, Medicaid, and CHIPCommentsClose CommentsPermalink
PART I--COVERAGE OF ADVANCE CARE PLANNING
SEC. 211. MEDICARE, MEDICAID, AND CHIP COVERAGE.
(a) Medicare-CommentsClose CommentsPermalink
(1) IN GENERAL- Section 1861 of the Social Security Act (
(A) in subsection (s)(2)--CommentsClose CommentsPermalink
(i) by striking ‘and’ at the end of subparagraph (DD);CommentsClose CommentsPermalink
(ii) by adding ‘and’ at the end of subparagraph (EE); andCommentsClose CommentsPermalink
(iii) by adding at the end the following new subparagraph:CommentsClose CommentsPermalink
‘(FF) advance care planning consultation (as defined in subsection (hhh)(1));’; andCommentsClose CommentsPermalink
(B) by adding at the end the following new subsection:CommentsClose CommentsPermalink
‘Advance Care Planning Consultation
‘(hhh)(1) Subject to paragraphs (3) and (4), the term ‘advance care planning consultation’ means a consultation between the individual and a practitioner described in paragraph (2) regarding advance care planning, if, subject to subparagraphs (A) and (B) of paragraph (3), the individual involved has not had such a consultation within the last 5 years. Such consultation shall include the following:CommentsClose CommentsPermalink
‘(A) An explanation by the practitioner of advance care planning, including key questions and considerations, important steps, and suggested people to talk to.CommentsClose CommentsPermalink
‘(B) An explanation by the practitioner of advance directives, including living wills and durable powers of attorney, and their uses.CommentsClose CommentsPermalink
‘(C) An explanation by the practitioner of the role and responsibilities of a health care proxy.CommentsClose CommentsPermalink
‘(D) The provision by the practitioner of a list of national and State-specific resources to assist consumers and their families with advance care planning, including the national toll-free hotline, the advance care planning clearinghouses, and State legal service organizations (including those funded through the Older Americans Act).CommentsClose CommentsPermalink
‘(E) An explanation by the practitioner of the continuum of end-of-life services and supports available, including palliative care and hospice, and benefits for such services and supports that are available under this title.CommentsClose CommentsPermalink
‘(F)(i) Subject to clause (ii), an explanation of orders regarding life sustaining treatment or similar orders, which shall include--CommentsClose CommentsPermalink
‘(I) the reasons why the development of such an order is beneficial to the individual and the individual’s family and the reasons why such an order should be updated periodically as the health of the individual changes;CommentsClose CommentsPermalink
‘(II) the information needed for an individual or legal surrogate to make informed decisions regarding the completion of such an order; andCommentsClose CommentsPermalink
‘(III) the identification of resources that an individual may use to determine the requirements of the State in which such individual resides so that the treatment wishes of that individual will be carried out if the individual is unable to communicate those wishes, including requirements regarding the designation of a surrogate decisionmaker (also known as a health care proxy).CommentsClose CommentsPermalink
‘(ii) The Secretary may limit the requirement for explanations under clause (i) to consultations furnished in States, localities, or other geographic areas in which orders described in such clause have been widely adopted.CommentsClose CommentsPermalink
‘(2) A practitioner described in this paragraph is--CommentsClose CommentsPermalink
‘(A) a physician (as defined in subsection (r)(1)); andCommentsClose CommentsPermalink
‘(B) a nurse practitioner or physician’s assistant who has the authority under State law to sign orders for life sustaining treatments.CommentsClose CommentsPermalink
‘(3)(A) An initial preventive physical examination under subsection (ww), including any related discussion during such examination, shall not be considered an advance care planning consultation for purposes of applying the 5-year limitation under paragraph (1).CommentsClose CommentsPermalink
‘(B) An advance care planning consultation with respect to an individual shall be conducted more frequently than provided under paragraph (1) if there is a significant change in the health condition of the individual, including diagnosis of a chronic, progressive, life-limiting disease, a life-threatening or terminal diagnosis or life-threatening injury, or upon admission to a skilled nursing facility, a long-term care facility (as defined by the Secretary), or a hospice program.CommentsClose CommentsPermalink
‘(4) A consultation under this subsection may include the formulation of an order regarding life sustaining treatment or a similar order.CommentsClose CommentsPermalink
‘(5)(A) For purposes of this section, the term ‘order regarding life sustaining treatment’ means, with respect to an individual, an actionable medical order relating to the treatment of that individual that--CommentsClose CommentsPermalink
‘(i) is signed and dated by a physician (as defined in subsection (r)(1)) or another health care professional (as specified by the Secretary and who is acting within the scope of the professional’s authority under State law in signing such an order) and is in a form that permits it to stay with the patient and be followed by health care professionals and providers across the continuum of care, including home care, hospice, long-term care, community and assisted living residences, skilled nursing facilities, inpatient rehabilitation facilities, hospitals, and emergency medical services;CommentsClose CommentsPermalink
‘(ii) effectively communicates the individual’s preferences regarding life sustaining treatment, including an indication of the treatment and care desired by the individual;CommentsClose CommentsPermalink
‘(iii) is uniquely identifiable and standardized within a given locality, region, or State (as identified by the Secretary);CommentsClose CommentsPermalink
‘(iv) is portable across care settings; andCommentsClose CommentsPermalink
‘(v) may incorporate any advance directive (as defined in section 1866(f)(3)) if executed by the individual.CommentsClose CommentsPermalink
‘(B) The level of treatment indicated under subparagraph (A)(ii) may range from an indication for full treatment to an indication to limit some or all or specified interventions. Such indicated levels of treatment may include indications respecting, among other items--CommentsClose CommentsPermalink
‘(i) the intensity of medical intervention if the patient is pulseless, apneic, or has serious cardiac or pulmonary problems;CommentsClose CommentsPermalink
‘(ii) the individual’s desire regarding transfer to a hospital or remaining at the current care setting;CommentsClose CommentsPermalink
‘(iii) the use of antibiotics; andCommentsClose CommentsPermalink
‘(iv) the use of artificially administered nutrition and hydration.’.CommentsClose CommentsPermalink
(2) PAYMENT- Section 1848(j)(3) of the Social Security Act (
42 U.S.C. 1395w-4(j)(3) ) is amended by inserting ‘(2)(FF),’ after ‘(2)(EE),’.CommentsClose CommentsPermalink(3) FREQUENCY LIMITATION- Section 1862(a) of the Social Security Act (
42 U.S.C. 1395y(a)(1) ) is amended--CommentsClose CommentsPermalink
(A) in paragraph (1)--CommentsClose CommentsPermalink
(i) in subparagraph (N), by striking ‘and’ at the end;CommentsClose CommentsPermalink
(ii) in subparagraph (O) by striking the semicolon at the end and inserting ‘, and’; andCommentsClose CommentsPermalink
(iii) by adding at the end the following new subparagraph:CommentsClose CommentsPermalink
‘(P) in the case of advance care planning consultations (as defined in section 1861(hhh)(1)), which are performed more frequently than is covered under such section;’; andCommentsClose CommentsPermalink
(B) in paragraph (7), by striking ‘or (K)’ and inserting ‘(K), or (P)’.CommentsClose CommentsPermalink
(4) EFFECTIVE DATE- The amendments made by this subsection shall apply to consultations furnished on or after January 1, 2011.CommentsClose CommentsPermalink
(b) Medicaid-CommentsClose CommentsPermalink
(1) MANDATORY BENEFIT- Section 1902(a)(10)(A) of the Social Security Act (
42 U.S.C. 1396a(a)(10)(A) ) is amended in the matter preceding clause (i) by striking ‘and (21)’ and inserting ‘, (21), and (28)’.CommentsClose CommentsPermalink(2) MEDICAL ASSISTANCE- Section 1905 of such Act (
42 U.S.C. 1396d ) is amended--CommentsClose CommentsPermalink
(A) in subsection (a)--CommentsClose CommentsPermalink
(i) in paragraph (27), by striking ‘and’ at the end;CommentsClose CommentsPermalink
(ii) by redesignating paragraph (28) as paragraph (29); andCommentsClose CommentsPermalink
(iii) by inserting after paragraph (27) the following new paragraph:CommentsClose CommentsPermalink
‘(28) advance care planning consultations (as defined in subsection (y));’; andCommentsClose CommentsPermalink
(B) by adding at the end the following:CommentsClose CommentsPermalink
‘(y)(1) For purposes of subsection (a)(28), the term ‘advance care planning consultation’ means a consultation between the individual and a practitioner described in paragraph (2) regarding advance care planning, if, subject to paragraph (3), the individual involved has not had such a consultation within the last 5 years. Such consultation shall include the following:CommentsClose CommentsPermalink
‘(A) An explanation by the practitioner of advance care planning, including key questions and considerations, important steps, and suggested people to talk to.CommentsClose CommentsPermalink
‘(B) An explanation by the practitioner of advance directives, including living wills and durable powers of attorney, and their uses.CommentsClose CommentsPermalink
‘(C) An explanation by the practitioner of the role and responsibilities of a health care proxy.CommentsClose CommentsPermalink
‘(D) The provision by the practitioner of a list of national and State-specific resources to assist consumers and their families with advance care planning, including the national toll-free hotline, the advance care planning clearinghouses, and State legal service organizations (including those funded through the Older Americans Act).CommentsClose CommentsPermalink
‘(E) An explanation by the practitioner of the continuum of end-of-life services and supports available, including palliative care and hospice, and benefits for such services and supports that are available under this title.CommentsClose CommentsPermalink
‘(F)(i) Subject to clause (ii), an explanation of orders for life sustaining treatments or similar orders, which shall include--CommentsClose CommentsPermalink
‘(I) the reasons why the development of such an order is beneficial to the individual and the individual’s family and the reasons why such an order should be updated periodically as the health of the individual changes;CommentsClose CommentsPermalink
‘(II) the information needed for an individual or legal surrogate to make informed decisions regarding the completion of such an order; andCommentsClose CommentsPermalink
‘(III) the identification of resources that an individual may use to determine the requirements of the State in which such individual resides so that the treatment wishes of that individual will be carried out if the individual is unable to communicate those wishes, including requirements regarding the designation of a surrogate decisionmaker (also known as a health care proxy).CommentsClose CommentsPermalink
‘(ii) The Secretary may limit the requirement for explanations under clause (i) to consultations furnished in States, localities, or other geographic areas in which orders described in such clause have been widely adopted.CommentsClose CommentsPermalink
‘(2) A practitioner described in this paragraph is--CommentsClose CommentsPermalink
‘(A) a physician (as defined in section 1861(r)(1)); andCommentsClose CommentsPermalink
‘(B) a nurse practitioner or physician’s assistant who has the authority under State law to sign orders for life sustaining treatments.CommentsClose CommentsPermalink
‘(3) An advance care planning consultation with respect to an individual shall be conducted more frequently than provided under paragraph (1) if there is a significant change in the health condition of the individual including diagnosis of a chronic, progressive, life-limiting disease, a life-threatening or terminal diagnosis or life-threatening injury, or upon admission to a nursing facility, a long-term care facility (as defined by the Secretary), or a hospice program.CommentsClose CommentsPermalink
‘(4) A consultation under this subsection may include the formulation of an order regarding life sustaining treatment or a similar order.CommentsClose CommentsPermalink
‘(5) For purposes of this subsection, the term ‘orders regarding life sustaining treatment’ has the meaning given that term in section 1861(hhh)(5).’.CommentsClose CommentsPermalink
(c) CHIP-CommentsClose CommentsPermalink
(1) CHILD HEALTH ASSISTANCE- Section 2110(a) of the Social Security Act (
42 U.S.C. 1397jj ) is amended--CommentsClose CommentsPermalink
(A) by redesignating paragraph (28) as paragraph (29); andCommentsClose CommentsPermalink
(B) by inserting after paragraph (27), the following:CommentsClose CommentsPermalink
‘(28) Advance care planning consultations (as defined in section 1905(y)).’.CommentsClose CommentsPermalink
(2) MANDATORY COVERAGE-CommentsClose CommentsPermalink
(A) IN GENERAL- Section 2103 of such Act (
42 U.S.C. 1397cc ), is amended--CommentsClose CommentsPermalink
(i) in subsection (a), in the matter preceding paragraph (1), by striking ‘and (7)’ and inserting ‘(7), and (9)’; andCommentsClose CommentsPermalink
(ii) in subsection (c), by adding at the end the following:CommentsClose CommentsPermalink
‘(9) END-OF-LIFE CARE- The child health assistance provided to a targeted low-income child shall include coverage of advance care planning consultations (as defined in section 1905(y) and at the same payment rate as the rate that would apply to such a consultation under the State plan under title XIX).’.CommentsClose CommentsPermalink
(B) CONFORMING AMENDMENT- Section 2102(a)(7)(B) of such Act (
42 U.S.C. 1397bb(a)(7)(B) ) is amended by striking ‘section 2103(c)(5)’ and inserting ‘paragraphs (5) and (9) of section 2103(c)’.CommentsClose CommentsPermalink(d) Definition of Advance Directive Under Medicare, Medicaid, and CHIP-CommentsClose CommentsPermalink
(1) MEDICARE- Section 1866(f)(3) of the Social Security Act (
42 U.S.C. 1395cc(f)(3) ) is amended by striking ‘means’ and all that follows through the period and inserting ‘means a living will, medical directive, health care power of attorney, durable power of attorney, or other written statement by a competent individual that is recognized under State law and indicates the individual’s wishes regarding medical treatment in the event of future incompetence. Such term includes an advance health care directive and a health care directive recognized under State law.’.CommentsClose CommentsPermalink(2) MEDICAID AND CHIP- Section 1902(w)(4) of such Act (
42 U.S.C. 1396a(w)(4) ) is amended by striking ‘means’ and all that follows through the period and inserting ‘means a living will, medical directive, health care power of attorney, durable power of attorney, or other written statement by a competent individual that is recognized under State law and indicates the individual’s wishes regarding medical treatment in the event of future incompetence. Such term includes an advance health care directive and a health care directive recognized under State law.’.CommentsClose CommentsPermalink(e) Effective Date- The amendments made by this section take effect January 1, 2010.CommentsClose CommentsPermalink
PART II--HOSPICE
SEC. 221. ADOPTION OF MEDPAC HOSPICE PAYMENT METHODOLOGY RECOMMENDATIONS.
Section 1814(i) of the Social Security Act (
‘(6)(A) The Secretary shall conduct an evaluation of the recommendations of the Medicare Payment Commission for reforming the hospice care benefit under this title that are contained in chapter 6 of the Commission’s report entitled ‘Report to Congress: Medicare Payment Policy (March 2009)’, including the impact that such recommendations if implemented would have on access to care and the quality of care. In conducting such evaluation, the Secretary shall take into account data collected in accordance with section 263(b) of the Advance Planning and Compassionate Care Act of 2009.CommentsClose CommentsPermalink
‘(B) Based on the results of the examination conducted under subparagraph (A), the Secretary shall make appropriate refinements to the recommendations described in subparagraph (A). Such refinements shall take into account--CommentsClose CommentsPermalink
‘(i) the impact on patient populations with longer that average lengths of stay;CommentsClose CommentsPermalink
‘(ii) the impact on populations with shorter that average lengths of stay; andCommentsClose CommentsPermalink
‘(iii) the utilization patterns of hospice providers in underserved areas, including rural hospices.CommentsClose CommentsPermalink
‘(C) Not later than January 1, 2013, the Secretary shall submit to Congress a report that contains a detailed description of--CommentsClose CommentsPermalink
‘(i) the refinements determined appropriate by the Secretary under subparagraph (B);CommentsClose CommentsPermalink
‘(ii) the revisions that the Secretary will implement through regulation under this title pursuant to subparagraph (D); andCommentsClose CommentsPermalink
‘(iii) the revisions that the Secretary determines require additional legislative action by Congress.CommentsClose CommentsPermalink
‘(D)(i) The Secretary shall implement the recommendations described in subparagraph (A), as refined under subparagraph (B).CommentsClose CommentsPermalink
‘(ii) Subject to clause (iii), the implementation of such recommendations shall apply to hospice care furnished on or after January 1, 2014.CommentsClose CommentsPermalink
‘(iii) The Secretary shall establish an appropriate transition to the implementation of such recommendations.CommentsClose CommentsPermalink
‘(E) For purposes of carrying out the provisions of this paragraph, the Secretary shall provide for the transfer, from the Federal Hospital Insurance Trust Fund under section 1817, of such sums as may be necessary to the Centers for Medicare & Medicaid Services Program Management Account.’.CommentsClose CommentsPermalink
SEC. 222. REMOVING HOSPICE INPATIENT DAYS IN SETTING PER DIEM RATES FOR CRITICAL ACCESS HOSPITALS.
Section 1814(l) of the Social Security Act (
‘(6) For cost reporting periods beginning on or after January 1, 2011, the Secretary shall remove Medicare-certified hospice inpatient days from the calculation of per diem rates for inpatient critical access hospital services.’.CommentsClose CommentsPermalink
SEC. 223. HOSPICE PAYMENTS FOR DUAL ELIGIBLE INDIVIDUALS RESIDING IN LONG-TERM CARE FACILITIES.
(a) In General- Section 1888 of the Social Security Act (
‘(f) Payments for Dual Eligible Individuals Residing in Long-Term Care Facilities- For cost reporting periods beginning on or after January 1, 2011, the Secretary, acting through the Administrator of the Centers for Medicare & Medicaid Services, shall establish procedures under which payments for room and board under the State Medicaid plan with respect to an applicable individual are made directly to the long-term care facility (as defined by the Secretary for purposes of title XIX) the individual is a resident of. For purposes of the preceding sentence, the term ‘applicable individual’ means an individual who is entitled to or enrolled for benefits under part A or enrolled for benefits under part B and is eligible for medical assistance for hospice care under a State plan under title XIX.’.CommentsClose CommentsPermalink
(b) State Plan Requirement-CommentsClose CommentsPermalink
(1) IN GENERAL- Section 1902(a) of the Social Security Act (
(A) in paragraph (72), by striking ‘and’ at the end;CommentsClose CommentsPermalink
(B) in paragraph (73), by striking the period at the end and inserting ‘; and’; andCommentsClose CommentsPermalink
(C) by inserting after paragraph (73) the following new paragraph:CommentsClose CommentsPermalink
‘(74) provide that the State will make payments for room and board with respect to applicable individuals in accordance with section 1888(f).’.CommentsClose CommentsPermalink
(2) EFFECTIVE DATE-CommentsClose CommentsPermalink
(A) IN GENERAL- Except as provided in subparagraph (B), the amendments made by paragraph (1) take effect on January 1, 2011.CommentsClose CommentsPermalink
(B) EXTENSION OF EFFECTIVE DATE FOR STATE LAW AMENDMENT- In the case of a State plan under title XIX of the Social Security Act (
SEC. 224. DELINEATION OF RESPECTIVE CARE RESPONSIBILITIES OF HOSPICE PROGRAMS AND LONG-TERM CARE FACILITIES.
Section 1888 of the Social Security Act (
‘(g) Delineation of Respective Care Responsibilities of Hospice Programs and Long-Term Care Facilities- Not later than July 1, 2011, the Secretary, acting through the Administrator of the Centers for Medicare & Medicaid Services, shall delineate and enforce the respective care responsibilities of hospice programs and long-term care facilities (as defined by the Secretary for purposes of title XIX) with respect to individuals residing in such facilities who are furnished hospice care.’.CommentsClose CommentsPermalink
SEC. 225. ADOPTION OF MEDPAC HOSPICE PROGRAM ELIGIBILITY CERTIFICATION AND RECERTIFICATION RECOMMENDATIONS.
In accordance with the recommendations of the Medicare Payment Advisory Commission contained in the March 2009 report entitled ‘Report to Congress: Medicare Payment Policy’, section 1814(a)(7) of the Social Security Act (
(1) in subparagraph (B), by striking ‘and’ at the end; andCommentsClose CommentsPermalink
(2) by adding at the end the following new subparagraph:CommentsClose CommentsPermalink
‘(D) on or after January 1, 2011--CommentsClose CommentsPermalink
‘(i) a hospice physician or advance practice nurse visits the individual to determine continued eligibility of the individual for hospice care prior to the 180th-day recertification and each subsequent recertification under subparagraph (A)(ii) and attests that such visit took place (in accordance with procedures established by the Secretary, in consultation with the Administrator of the Centers for Medicare & Medicaid Services); andCommentsClose CommentsPermalink
‘(ii) any certification or recertification under subparagraph (A) includes a brief narrative describing the clinical basis for the individual’s prognosis (in accordance with procedures established by the Secretary, in consultation with the Administrator of the Centers for Medicare & Medicaid Services); and’.CommentsClose CommentsPermalink
SEC. 226. CONCURRENT CARE FOR CHILDREN.
(a) Permitting Medicare Hospice Beneficiaries 18 Years of Age or Younger To Receive Curative Care-CommentsClose CommentsPermalink
(1) IN GENERAL- Section 1812 of the Social Security Act (
(A) in subsection (a)(4), by inserting ‘(subject to the second sentence of subsection (d)(2)(A))’ after ‘in lieu of certain other benefits’; andCommentsClose CommentsPermalink
(B) in subsection (d)--CommentsClose CommentsPermalink
(i) in paragraph (1), by inserting ‘ , subject to the second sentence of paragraph (2)(A),’ after ‘instead’; andCommentsClose CommentsPermalink
(ii) in paragraph (2)(A), by adding at the end the following new sentence: ‘Clause (ii)(I) shall not apply to an individual who is 18 years of age or younger.’CommentsClose CommentsPermalink
(2) CONFORMING AMENDMENT- Section 1862(a)(1)(C) of the Social Security Act (
(b) Application to Medicaid and CHIP-CommentsClose CommentsPermalink
(1) MEDICAID- Section 1905(o)(1)(A) of the Social Security Act (
(2) CHIP- Section 2110(a)(23) of the Social Security Act (
(c) Effective Date- The amendments made by this section shall apply to items and services furnished on or after January 1, 2011.CommentsClose CommentsPermalink
SEC. 227. MAKING HOSPICE A REQUIRED BENEFIT UNDER MEDICAID AND CHIP.
(a) Mandatory Benefit-CommentsClose CommentsPermalink
(1) MEDICAID-CommentsClose CommentsPermalink
(A) IN GENERAL- Section 1902(a)(10)(A) of the Social Security Act (
(B) CONFORMING AMENDMENT- Section 1902(a)(10)(C) of such Act (
(i) in clause (iii)--CommentsClose CommentsPermalink
(I) in subclause (I), by inserting ‘and hospice care’ after ‘ambulatory services’; andCommentsClose CommentsPermalink
(II) in subclause (II), by inserting ‘and hospice care’ after ‘delivery services’; andCommentsClose CommentsPermalink
(ii) in clause (iv), by inserting ‘and (18)’ after ‘(17)’.CommentsClose CommentsPermalink
(2) CHIP- Section 2103(c)(9) of such Act (
(b) Effective Date- The amendments made subsection (a) take effect on January 1, 2011.CommentsClose CommentsPermalink
SEC. 228. MEDICARE HOSPICE PAYMENT MODEL DEMONSTRATION PROJECTS.
(a) Establishment- Not later than July 1, 2012, the Secretary, acting through the Administrator of the Centers for Medicare & Medicaid Services and the Director of the Agency for Healthcare Research and Quality, shall conduct demonstration projects to examine ways to improve how the Medicare hospice care benefit predicts disease trajectory. Projects shall include the following models:CommentsClose CommentsPermalink
(1) Models that better and more appropriately care for, and transition as needed, patients in their last years of life who need palliative care, but do not qualify for hospice care under the Medicare hospice eligibility criteria.CommentsClose CommentsPermalink
(2) Models that better and more appropriately care for long-term patients who are not recertified in hospice but still need palliative care.CommentsClose CommentsPermalink
(3) Any other models determined appropriate by the Secretary.CommentsClose CommentsPermalink
(b) Waiver Authority- The Secretary may waive compliance of such requirements of titles XI and XVIII of the Social Security Act as the Secretary determines necessary to conduct the demonstration projects under this section.CommentsClose CommentsPermalink
(c) Reports- The Secretary shall submit to Congress periodic reports on the demonstration projects conducted under this section.CommentsClose CommentsPermalink
SEC. 229. MEDPAC STUDIES AND REPORTS.
(a) Study and Report Regarding an Alternative Payment Methodology for Hospice Care Under the Medicare Program-CommentsClose CommentsPermalink
(1) STUDY- The Medicare Payment Advisory Commission (in this section referred to as the ‘Commission’) shall conduct a study on the establishment of a reimbursement system for hospice care furnished under the Medicare program that is based on diagnoses. In conducting such study, the Commission shall use data collected under new provider data requirements. Such study shall include an analysis of the following:CommentsClose CommentsPermalink
(A) Whether such a reimbursement system better meets patient needs and better corresponds with provider resource expenditures than the current system.CommentsClose CommentsPermalink
(B) Whether such a reimbursement system improves quality, including facilitating standardization of care toward best practices and diagnoses-specific clinical pathways in hospice.CommentsClose CommentsPermalink
(C) Whether such a reimbursement system could address concerns about the blanket 6-month terminal prognosis requirement in hospice.CommentsClose CommentsPermalink
(D) Whether such a reimbursement system is more cost effective than the current system.CommentsClose CommentsPermalink
(E) Any other areas determined appropriate by the Commission.CommentsClose CommentsPermalink
(2) REPORT- Not later than June 15, 2013, the Commission shall submit to Congress a report on the study conducted under subsection (a) together with recommendations for such legislation and administrative action as the Commission determines appropriate.CommentsClose CommentsPermalink
(b) Study and Report Regarding Rural Hospice Transportation Costs Under the Medicare Program-CommentsClose CommentsPermalink
(1) STUDY- The Commission shall conduct a study on rural Medicare hospice transportation mileage to determine potential Medicare reimbursement changes to account for potential higher costs.CommentsClose CommentsPermalink
(2) REPORT- Not later than June 15, 2013, the Commission shall submit to Congress a report on the study conducted under subsection (a) together with recommendations for such legislation and administrative action as the Commission determines appropriate.CommentsClose CommentsPermalink
(c) Evaluation of Reimbursement Disincentives To Elect Medicare Hospice Within the Medicare Skilled Nursing Facility Benefit-CommentsClose CommentsPermalink
(1) STUDY- The Commission shall conduct a study to determine potential Medicare reimbursement changes to remove Medicare reimbursement disincentives for patients in a skilled nursing facility who want to elect hospice.CommentsClose CommentsPermalink
(2) REPORT- Not later than June 15, 2013, the Commission shall submit to Congress a report on the study conducted under subsection (a) together with recommendations for such legislation and administrative action as the Commission determines appropriate.CommentsClose CommentsPermalink
SEC. 230. HHS EVALUATIONS.
(a) Evaluation of Access to Hospice and Hospital-Based Palliative Care-CommentsClose CommentsPermalink
(1) EVALUATION- The Secretary, acting through the Administrator of the Health Resources and Services Administration, shall conduct an evaluation of geographic areas and populations underserved by hospice and hospital-based palliative care to identify potential barriers to access.CommentsClose CommentsPermalink
(2) REPORT- Not later than December 31, 2012, the Secretary shall report to Congress, on the evaluation conducted under subsection (a) together with recommendations for such legislation and administrative action as the Secretary determines appropriate to address barriers to access to hospice and hospital-based palliative care.CommentsClose CommentsPermalink
(b) Evaluation of Awareness and Use of Hospice Respite Care Under Medicare, Medicaid, and CHIP-CommentsClose CommentsPermalink
(1) EVALUATION- The Secretary, acting through the Director of the Centers for Medicare and Medicaid Services, shall evaluate the awareness and use of hospice respite care by informal caregivers of beneficiaries under Medicare, Medicaid, and CHIP.CommentsClose CommentsPermalink
(2) REPORT- Not later than December 31, 2010, the Secretary shall report to Congress, on the evaluation conducted under subsection (a) together with recommendations for such legislation and administrative action as the Secretary determines appropriate to increase awareness or use of hospice respite care under Medicare, Medicaid, and CHIP.CommentsClose CommentsPermalink
Subtitle C--Quality ImprovementCommentsClose CommentsPermalink
Subtitle C--Quality ImprovementCommentsClose CommentsPermalink
SEC. 241. PATIENT SATISFACTION SURVEYS.
Not later than January 1, 2012, the Secretary, acting through the Administrator of the Centers for Medicare & Medicaid Services, shall establish a mechanism for--CommentsClose CommentsPermalink
(1) collecting information from patients (or their health care proxies or families members in the event patients are unable to speak for themselves) in relevant provider settings regarding their care at the end of life; andCommentsClose CommentsPermalink
(2) incorporating such information in a timely manner into mechanisms used by the Administrator to provide quality of care information to consumers, including the Hospital Compare and Nursing Home Compare websites maintained by the Administrator.CommentsClose CommentsPermalink
SEC. 242. DEVELOPMENT OF CORE END-OF-LIFE CARE QUALITY MEASURES ACROSS EACH RELEVANT PROVIDER SETTING.
(a) In General- The Secretary, acting through the Administrator of the Agency for Healthcare Research and Quality (in this section referred to as the ‘Administrator’) and in consultation with the Director of the National Institutes of Health, shall require specific end-of-life quality measures for each relevant provider setting, as identified by the Administrator, in accordance with the requirements of subsection (b).CommentsClose CommentsPermalink
(b) Requirements- For purposes of subsection (a), the requirements specified in this subsection are the following:CommentsClose CommentsPermalink
(1) Selection of the specific measure or measures for an identified provider setting shall be--CommentsClose CommentsPermalink
(A) based on an assessment of what is likely to have the greatest positive impact on quality of end-of-life care in that setting; andCommentsClose CommentsPermalink
(B) made in consultation with affected providers and public and private organizations, that have developed such measures.CommentsClose CommentsPermalink
(2) The measures may be structure-oriented, process-oriented, or outcome-oriented, as determined appropriate by the Administrator.CommentsClose CommentsPermalink
(3) The Administrator shall ensure that reporting requirements related to such measures are imposed consistent with other applicable laws and regulations, and in a manner that takes into account existing measures, the needs of patient populations, and the specific services provided.CommentsClose CommentsPermalink
(4) Not later than--CommentsClose CommentsPermalink
(A) April 1, 2011, the Secretary shall disseminate the reporting requirements to all affected providers; andCommentsClose CommentsPermalink
(B) April 1, 2012, initial reporting relating to the measures shall begin.CommentsClose CommentsPermalink
SEC. 243. ACCREDITATION OF HOSPITAL-BASED PALLIATIVE CARE PROGRAMS.
(a) In General- The Secretary, acting through the Director of the Agency for Healthcare Research and Quality, shall designate a public or private agency, entity, or organization to develop requirements, standards, and procedures for accreditation of hospital-based palliative care programs.CommentsClose CommentsPermalink
(b) Reporting- Not later than January 1, 2012, the Secretary shall prepare and submit a report to Congress on the proposed accreditation process for hospital-based palliative care programs.CommentsClose CommentsPermalink
(c) Accreditation- Not later than July 1, 2012, the Secretary shall--CommentsClose CommentsPermalink
(1) establish and promulgate standards and procedures for accreditation of hospital-based palliative care programs; andCommentsClose CommentsPermalink
(2) designate an agency, entity, or organization that shall be responsible for certifying such programs in accordance with the standards established under paragraph (1).CommentsClose CommentsPermalink
(d) Definitions- For the purposes of this section:CommentsClose CommentsPermalink
(1) The term ‘hospital-based palliative care program’ means a hospital-based program that is comprised of an interdisciplinary team that specializes in providing palliative care services and consultations in a variety of health care settings, including hospitals, nursing homes, and home and community-based services.CommentsClose CommentsPermalink
(2) The term ‘interdisciplinary team’ means a group of health care professionals (consisting of, at a minimum, a doctor, a nurse, and a social worker) that have received specialized training in palliative care.CommentsClose CommentsPermalink
SEC. 244. SURVEY AND DATA REQUIREMENTS FOR ALL MEDICARE PARTICIPATING HOSPICE PROGRAMS.
(a) Hospice Surveys- Section 1861(dd) of the Social Security Act (
‘(6) In accordance with the recommendations of the Medicare Payment Advisory Commission contained in the March 2009 report entitled ‘Report to Congress: Medicare Payment Policy’, the Secretary shall establish, effective July 1, 2010, the following survey requirements for hospice programs:CommentsClose CommentsPermalink
‘(A) Any hospice program seeking initial certification under this title on or after that date shall be subject to an initial survey by an appropriate State or local agency, or an approved accreditation agency, not later than 6 months after the program first seeks such certification.CommentsClose CommentsPermalink
‘(B) All hospice programs certified for participation under this title shall be subject to a standard survey by an appropriate State or local agency, or an approved accreditation agency, at least every 3 years after initially being so certified.’.CommentsClose CommentsPermalink
(b) Required Hospice Resource Inputs Data- Section 1861(dd) of the Social Security Act (
(1) in paragraph (3)--CommentsClose CommentsPermalink
(A) in subparagraph (F), by striking ‘and’ at the end;CommentsClose CommentsPermalink
(B) by redesignating subparagraph (G) as subparagraph (H); andCommentsClose CommentsPermalink
(C) by inserting after subparagraph (F) the following new subparagraph:CommentsClose CommentsPermalink
‘(G) to comply with the reporting requirements under paragraph (7); and’; andCommentsClose CommentsPermalink
(2) by adding at the end the following new paragraph:CommentsClose CommentsPermalink
‘(7)(A) In accordance with the recommendations of the Medicare Payment Advisory Commission for additional data (as contained in the March 2009 report entitled ‘Report to Congress: Medicare Payment Policy’), beginning January 1, 2011, a hospice program shall report to the Secretary, in such form and manner, and at such intervals, as the Secretary shall require, the following data with respect to each patient visit:CommentsClose CommentsPermalink
‘(i) Visit type (such as admission, routine, emergency, education for family, other).CommentsClose CommentsPermalink
‘(ii) Visit length.CommentsClose CommentsPermalink
‘(iii) Professional or paraprofessional disciplines involved in the visit, including nurse, social worker, home health aide, physician, nurse practitioner, chaplain or spiritual counselor, counselor, dietician, physical therapist, occupational therapist, speech language pathologist, music or art therapist, and including bereavement and support services provided to a family after a patient’s death.CommentsClose CommentsPermalink
‘(iv) Drugs and other therapeutic interventions provided.CommentsClose CommentsPermalink
‘(v) Home medical equipment and other medical supplies provided.CommentsClose CommentsPermalink
‘(B) In collecting the data required under subparagraph (A), the Secretary shall ensure that the data are reported in a manner that allows for summarized cross-tabulations of the data by patients’ terminal diagnoses, lengths of stay, age, sex, and race.’.CommentsClose CommentsPermalink
Subtitle D--Additional Reports, Research, and EvaluationsCommentsClose CommentsPermalink
Subtitle D--Additional Reports, Research, and EvaluationsCommentsClose CommentsPermalink
SEC. 251. NATIONAL CENTER ON PALLIATIVE AND END-OF-LIFE CARE.
Part E of title IV of the Public Health Service Act (
‘Subpart 7--National Center on Palliative and End-of-Life Care
‘SEC. 485J. NATIONAL CENTER ON PALLIATIVE AND END-OF-LIFE CARE.
‘(a) Establishment- Not later than July 1, 2011, there shall be established within the National Institutes of Health, a National Center on Palliative and End-of-Life Care (referred to in this section as the ‘Center’).CommentsClose CommentsPermalink
‘(b) Purpose- The general purpose of the Center is to conduct and support research relating to palliative and end-of-life care interventions and approaches.CommentsClose CommentsPermalink
‘(c) Activities- The Center shall--CommentsClose CommentsPermalink
‘(1) develop and continuously update a research agenda with the goal of--CommentsClose CommentsPermalink
‘(A) providing a better biomedical understanding of the end of life; andCommentsClose CommentsPermalink
‘(B) improving the quality of care and life at the end of life; andCommentsClose CommentsPermalink
‘(2) provide funding for peer-review-selected extra- and intra-mural research that includes the evaluation of existing, and the development of new, palliative and end-of-life care interventions and approaches.’.CommentsClose CommentsPermalink
SEC. 252. NATIONAL MORTALITY FOLLOWBACK SURVEY.
(a) In General- Not later than December 31, 2010, and annually thereafter, the Secretary, acting through the Director of the Centers for Disease Control and Prevention, shall renew and conduct the National Mortality Followback Survey (referred to in this section as the ‘Survey’) to collect data on end-of-life care.CommentsClose CommentsPermalink
(b) Purpose- The purpose of the Survey shall be to gain a better understanding of current end-of-life care in the United States.CommentsClose CommentsPermalink
(c) Questions-CommentsClose CommentsPermalink
(1) IN GENERAL- In conducting the Survey, the Director of the Centers for Disease Control and Prevention shall, at a minimum, include the following questions with respect to the loved one of a respondent:CommentsClose CommentsPermalink
(A) Did he or she have an advance directive, and if so, when it was completed.CommentsClose CommentsPermalink
(B) Did he or she have an order for life-sustaining treatment, and if so, when was it completed.CommentsClose CommentsPermalink
(C) Did he or she have a durable power of attorney, and if so, when it was completed.CommentsClose CommentsPermalink
(D) Had he or she discussed his or her wishes with loved ones, and if so, when.CommentsClose CommentsPermalink
(E) Had he or she discussed his or her wishes with his or her physician, and if so, when.CommentsClose CommentsPermalink
(F) In the opinion of the respondent, was he or she satisfied with the care he or she received in the last year of life and in the last week of life.CommentsClose CommentsPermalink
(G) Was he or she cared for by hospice, and if so, when.CommentsClose CommentsPermalink
(H) Was he or she cared for by palliative care specialists, and if so, when.CommentsClose CommentsPermalink
(I) Did he or she receive effective pain management (if needed).CommentsClose CommentsPermalink
(J) What was the experience of the main caregiver (including if such caregiver was the respondent), and whether he or she received sufficient support in this role.CommentsClose CommentsPermalink
(2) ADDITIONAL QUESTIONS- Additional questions to be asked during the Survey shall be determined by the Director of the Centers for Disease Control and Prevention on an ongoing basis with input from relevant research entities.CommentsClose CommentsPermalink
SEC. 253. DEMONSTRATION PROJECTS FOR USE OF TELEMEDICINE SERVICES IN ADVANCE CARE PLANNING.
(a) In General- Not later than July 1, 2013, the Secretary shall establish a demonstration program to reimburse eligible entities for costs associated with the use of telemedicine services (including equipment and connection costs) to provide advance care planning consultations with geographically distant physicians and their patients.CommentsClose CommentsPermalink
(b) Duration- The demonstration project under this section shall be conducted for at least a 3-year period.CommentsClose CommentsPermalink
(c) Definitions- For purposes of this section:CommentsClose CommentsPermalink
(1) The term ‘eligible entity’ means a physician or an advance practice nurse who provides services pursuant to a hospital-based palliative care program (as defined in section 262(d)(1)).CommentsClose CommentsPermalink
(2) The term ‘geographically distant’ has the meaning given that term by the Secretary for purposes of conducting the demonstration program established under this section.CommentsClose CommentsPermalink
(3) The term ‘telemedicine services’ means a service or consultation provided via telecommunication equipment that allows an eligible entity to exchange or discuss medical information with a patient or a health care professional at a separate location through real-time videoconferencing, or a similar format, for the purpose of providing health care diagnosis and treatment.CommentsClose CommentsPermalink
(d) Funding- There are authorized to be appropriated to the Secretary such sums as may be necessary to carry out this section.CommentsClose CommentsPermalink
SEC. 254. INSPECTOR GENERAL INVESTIGATION OF FRAUD AND ABUSE.
In accordance with the recommendations of the Medicare Payment Advisory Commission for additional data (as contained in the March 2009 report entitled ‘Report to Congress: Medicare Payment Policy’), the Secretary shall direct the Office of the Inspector General of the Department of Health and Human Services to investigate, not later than January 1, 2012, the following with respect to hospice benefit under Medicare, Medicaid, and CHIP:CommentsClose CommentsPermalink
(1) The prevalence of financial relationships between hospices and long-term care facilities, such as nursing facilities and assisted living facilities, that may represent a conflict of interest and influence admissions to hospice.CommentsClose CommentsPermalink
(2) Differences in patterns of nursing home referrals to hospice.CommentsClose CommentsPermalink
(3) The appropriateness of enrollment practices for hospices with unusual utilization patterns (such as high frequency of very long stays, very short stays, or enrollment of patients discharged from other hospices).CommentsClose CommentsPermalink
(4) The appropriateness of hospice marketing materials and other admissions practices and potential correlations between length of stay and deficiencies in marketing or admissions practices.CommentsClose CommentsPermalink
SEC. 255. GAO STUDY AND REPORT ON PROVIDER ADHERENCE TO ADVANCE DIRECTIVES.
Not later than January 1, 2012, the Comptroller General of the United States shall conduct a study of the extent to which providers comply with advance directives under the Medicare and Medicaid programs and shall submit a report to Congress on the results of such study, together with such recommendations for administrative or legislative changes as the Comptroller General determines appropriate.CommentsClose CommentsPermalink
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U.S. Congress - Text of S.1150 as Introduced in Senate Advance Planning and Compassionate Care Act of 2009



