s 57914 1242878400 false 1242878400 1158 268 111 300093

5/21/2009--Introduced.SMA Treatment Acceleration Act of 2009 - Amends the Public Health Service Act to require the Director of the National Institutes of Health (NIH) to establish a national clinical trials network for spinal muscular atrophy by upgrading and unifying spinal muscular atrophy clinical trial sites and recruiting new investigators and sites. Requires the Director to ensure that such network: (1) conducts coordinated, multisite, clinical trials of therapies and clinical approaches to the treatment of spinal muscular atrophy; and (2) rapidly and efficiently disseminates scientific findings to the field. Requires the Director to: (1) establish a data coordinating center with respect to spinal muscular atrophy; and (2) expand and intensify NIH programs with respect to preclinical translation research related to spinal muscular atrophy. Requires the Secretary of Health and Human Services, acting through the Director of the Centers for Disease Control and Prevention (CDC), to enhance and support a spinal muscular atrophy patient registry to provide for expanded epidemiological research towards improving awareness, management, treatment, and prevention of spinal muscular atrophy. Requires the Secretary to ensure the collection and analysis of longitudinal data related to individuals of all ages. Directs the Secretary to establish the Interagency Spinal Muscular Atrophy Research Coordinating Committee. Sets forth the duties of the Committee, including to develop a comprehensive strategy related to spinal muscular atrophy research and other related neurological diseases and disorders. Requires the Secretary to establish a program to provide information and education on spinal muscular atrophy to health professionals and the general public.

1242878400 2009-05-21 Wed Nov 04 05:39:45 -0600 2009 introduced 57914 'act':4 'sma':1 '2009':6 'acceler':3 'treatment':2 74156 false short introduced 57914 'bill':2 'activ':14 'human':10 'rapid':16 'advanc':17 'author':4 'diseas':24,28 'health':8 'purpos':32 'servic':11 'spinal':20 'atrophi':22 'conduct':13 'pediatr':27 'muscular':21 'secretari':6 'treatment':18 'neuromuscular':23 73768 false official action 57914 1242878400 Thu May 21 00:00:00 -0500 2009 196488 Read twice and referred to the Committee on Health, Education, Labor, and Pensions. S000770 1950-04-29 133 Hart Senate Office Building http://stabenow.senate.gov/email.htm 202-228-0325 Debbie Ann 'd':5 'mi':6 'ann':3,8,11 'sen':1 'debbi':2,7,10 'stabenow':4,9,12 F 300093 Stabenow Debbie_Stabenow Sen. Debbie Ann Stabenow [D, MI] N00004118 14377 Democrat 202-224-4822 United Methodist MI Debbie Ann Stabenow 2.85964912280702 http://stabenow.senate.gov/ SenatorStabenow B000944 1952-11-09 713 Hart Senate Office Building http://brown.senate.gov/contact/ 202-228-6321 Sherrod 'd':4 'oh':5 'sen':1 'brown':3,7,9 'sherrod':2,6,8 M 400050 Brown Sherrod_Brown Sen. Sherrod Brown [D, OH] N00003535 13189 Democrat 202-224-2315 Lutheran OH Sherrod Brown 3.57575757575758 http://brown.senate.gov/ SherrodBrownOhio B001135 1955-11-30 217 Russell Senate Office Building http://burr.senate.gov/public/index.cfm?FuseAction=Contact.ContactForm 202-228-2981 Richard 'r':4 'nc':5 'sen':1 'burr':3,7,9 'richard':2,6,8 M 400054 Burr Richard_Burr M. Sen. Richard Burr [R, NC] N00002221 11057 Republican 202-224-3154 Methodist NC Richard Burr 4.17307692307692 http://burr.senate.gov/public/ senatorrichardburr C000286 1943-11-10 416 Russell Senate Office Building http://chambliss.senate.gov/public/index.cfm?p=Email 202-224-0103 Saxby 'r':4 'ga':5 'sen':1 'saxbi':2,6,8 'chambliss':3,7,9 M 300021 Chambliss Saxby_Chambliss Sen. Saxby Chambliss [R, GA] N00002685 12835 Republican 202-224-3521 Episcopalian GA Saxby Chambliss 4.10344827586207 http://chambliss.senate.gov/public/index.cfm G000555 478 Russell Senate Office Building http://gillibrand.senate.gov/contact/ 202-225-1168 Kirsten 'd':4 'ny':5 'sen':1 'kirsten':2,6,8 'gillibrand':3,7,9 F 412223 Gillibrand Kirsten_Gillibrand E. Sen. Kirsten Gillibrand [D, NY] N00027658 12269 Democrat 202-224-4451 NY Kirsten Gillibrand 3.29411764705882 http://gillibrand.senate.gov H001049 1953-05-26 521 Dirksen Senate Office Building http://hagan.senate.gov/?p=contact 202-228-2563 Kay 'd':4 'nc':5 'kay':2,6,8 'sen':1 'hagan':3,7,9 F 412324 Hagan Sen. Kay Hagan [D, NC] N00029617 7074 Democrat 202-224-6342 NC Kay Hagan 2.62 http://hagan.senate.gov I000055 1944-12-28 120 Russell Senate Office Building http://isakson.senate.gov/contact.cfm 202-228-0724 John 'r':4 'ga':5 'sen':1 'john':2,6,9 'johnni':8 'isakson':3,7,10 M 400194 Isakson Johnny_Isakson H. Sen. John Isakson [R, GA] Johnny N00002593 10034 Republican 202-224-3643 Methodist GA Johnny John Isakson 3.86111111111111 http://isakson.senate.gov K000148 1943-12-11 218 Russell Senate Office Building http://kerry.senate.gov/contact/email.cfm 202-224-8525 John 'd':4 'ma':5 'sen':1 'john':2,6,8 'kerri':3,7,9 M 300060 Kerry John_Kerry Forbes Sen. John Kerry [D, MA] N00000245 13992 Democrat 202-224-2742 Roman Catholic MA John Kerry 2.64 http://kerry.senate.gov/ L000123 1924-01-23 324 Hart Senate Office Building http://lautenberg.senate.gov/contact/routing.cfm 202-228-4054 Frank 'd':4 'nj':5 'sen':1 'frank':2,6,8 'lautenberg':3,7,9 M 300064 Lautenberg Frank_Lautenberg R. Sen. Frank Lautenberg [D, NJ] N00000659 11419 Democrat 202-224-3224 Jewish NJ Frank Lautenberg 2.125 http://lautenberg.senate.gov/ franklautenberg M000639 1954-01-01 528 Hart Senate Office Building http://menendez.senate.gov/contact/contact.cfm 202-228-2197 Robert 'd':4 'nj':5 'bob':8 'sen':1 'robert':2,6,9 'menendez':10 'menéndez':3,7 M 400272 Menéndez Robert_Menendez Sen. Robert Menéndez [D, NJ] Bob N00000699 13696 Democrat 202-224-4744 Roman Catholic NJ Robert Menendez 2.11764705882353 http://menendez.senate.gov/ SenatorMenendezNJ M001111 1950-10-11 173 Russell Senate Office Building http://murray.senate.gov/email/index.cfm 202-224-0238 Patty 'd':4 'wa':5 'sen':1 'patti':2,6,8 'murray':3,7,9 F 300076 Murray Patty_Murray Sen. Patty Murray [D, WA] N00007876 10846 Democrat 202-224-2621 Roman Catholic WA Patty Murray 4.29230769230769 http://murray.senate.gov/ R000122 1949-11-12 728 Hart Senate Office Building http://reed.senate.gov/contact/contact-share.cfm 202-224-4680 John 'd':4 'ri':5 'sen':1 'jack':8 'john':2,6,9 'reed':3,7,10 M 300081 Reed Jack_Reed F. Sen. John Reed [D, RI] Jack N00000362 8763 Democrat 202-224-4642 Roman Catholic RI Jack John Reed 2.875 http://reed.senate.gov/ S000033 1941-09-08 332 Dirksen Senate Office Building http://sanders.senate.gov/comments/ 202-228-0776 Bernard 'vt':5 'sen':1 'berni':8 'sander':3,7,10 'bernard':2,6,9 M 400357 Sanders Bernard_Sanders Sen. Bernard Sanders [I, VT] Bernie N00000528 9386 Independent 202-224-5141 Jewish VT Bernie Bernard Sanders 6.6 http://sanders.senate.gov/ SenatorSanders S000709 1930-02-12 711 Hart Senate Office Building http://specter.senate.gov/public/index.cfm?FuseAction=Contact.ContactForm 202-228-1229 Arlen 'd':4 'pa':5 'sen':1 'arlen':2,6,8 'specter':3,7,9 M 300092 Specter Arlen_Specter Sen. Arlen Specter [D, PA] N00001604 18908 Democrat 202-224-4254 Jewish PA Arlen Specter 1.912 http://specter.senate.gov/ W000802 502 Hart Senate Office Building http://whitehouse.senate.gov/contact/ 202-228-6362 Sheldon 'd':4 'ri':5 'sen':1 'sheldon':2,6,8 'whitehous':3,7,9 M 412247 Whitehouse Sheldon_Whitehouse Sen. Sheldon Whitehouse [D, RI] N00027533 8894 Democrat 202-224-2921 RI Sheldon Whitehouse 3.5 http://whitehouse.senate.gov/ SenatorWhitehouse W000437 1951-07-05 487 Russell Senate Office Building http://wicker.senate.gov/public/index.cfm?FuseAction=Contact.EMailSenatorWicker 202-228-0378 Roger 'r':4 'ms':5 'sen':1 'roger':2,6,8 'wicker':3,7,9 M 400432 Wicker Roger_F._Wicker F. Sen. Roger Wicker [R, MS] N00003280 8355 Republican 202-224-6253 Southern Baptist MS Roger Wicker 3.83333333333333 http://wicker.senate.gov action 57914 1242878400 Thu May 21 00:00:00 -0500 2009 196488 Read twice and referred to the Committee on Health, Education, Labor, and Pensions. introduced 57914 1242878400 Thu May 21 00:00:00 -0500 2009 196487