U.S. Congress - H.R.2123 Hereditary Hemorrhagic Telangiectasia Diagnosis and Treatment Act of 2011
H.R.2123 - Hereditary Hemorrhagic Telangiectasia Diagnosis and Treatment Act of 2011
To amend the Public Health Service Act to improve the diagnosis and treatment of hereditary hemorrhagic telangiectasia, and for other purposes. view all titles (3)
All Bill Titles
- Official: To amend the Public Health Service Act to improve the diagnosis and treatment of hereditary hemorrhagic telangiectasia, and for other purposes. as introduced.
- Short: Hereditary Hemorrhagic Telangiectasia Diagnosis and Treatment Act of 2011 as introduced.
- Official: Hereditary Hemorrhagic Telangiectasia Diagnosis and Treatment Act of 2011 as introduced.
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Official Summary
6/3/2011--Introduced.Hereditary Hemorrhagic Telangiectasia Diagnosis and Treatment Act of 2011 - Amends the Public Health Service Act to require the Secretary of Health and Human Services (HHS) to establish and implement a hereditary hemorrhagic telangiectasia (HHT, a vascular genetic bleeOfficial Summary
6/3/2011--Introduced.Hereditary Hemorrhagic Telangiectasia Diagnosis and Treatment Act of 2011 - Amends the Public Health Service Act to require the Secretary of Health and Human Services (HHS) to establish and implement a hereditary hemorrhagic telangiectasia (HHT, a vascular genetic bleeding disorder that causes abnormalities of the blood vessels) initiative to assist in coordinating activities to improve early detection, screening, and treatment of people who suffer from HHT, focusing on advancing research on the causes, diagnosis, and treatment of HHT and increasing physician and public awareness of HHT. Directs the Secretary to establish the HHT Coordinating Committee to develop and coordinate implementation of a plan to advance research and understanding of HHT, including by:(1) conducting or supporting research across relevant National Institutes of Health (NIH) institutes, and
(2) conducting evaluations and making recommendations regarding the prioritization and award of NIH research grants relating to HHT. Requires the Director of the Centers for Disease Control and Prevention (CDC) to carry out activities with respect to HHT, including conducting population screening and establishing an HHT resource center to provide comprehensive education on, and disseminate information about, HHT to health professionals, patients, industry, and the public. Sets forth requirements for HHT population screening, including requiring the Director of CDC to designate and provide funding for HHT Treatment Centers of Excellence. Requires the Administrator of the Centers for Medicare & Medicaid Services (CMS) to award grants for:
(1) an analysis of the Medicare Provider Analysis and Review (MEDPAR) file to develop preliminary estimates on the totals costs to Medicare for items, services, and treatments for HHT; and
(2) recommendations regarding an enhanced data collection protocol to permit a more precise determination of such costs.
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Latest Letters to Congress
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H.R.2123 Hereditary Hemorrhagic Telangiectasia Diagnosis and Treatment Act of 2011
tahuff01
August 24, 2011
I am writing as your constituent in the 3rd Congressional district of Kentucky. I support H.R.2123 - Hereditary Hemorrhagic Telangiectasia Diagnosis and Treatment Act of 2011, and am tracking it using OpenCongress.org, the free public resource website for government transparency and accountability. I support this legislation because I suffer from this disease. This disease weakens my blood vessels to the point that my capillaries in my nose, lungs, and possibly other internal organs break ...
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H.R.2123 Hereditary Hemorrhagic Telangiectasia Diagnosis and Treatment Act of 2011
taylor123
August 24, 2011
I am writing as your constituent in the 4th Congressional district of Louisiana. I support H.R.2123 - Hereditary Hemorrhagic Telangiectasia Diagnosis and Treatment Act of 2011, and am tracking it using OpenCongress.org, the free public resource website for government transparency and accountability.
I have a friend at work dealing with this for his three children. It is not something that many of us would think about everyday. It is devasting news for a parent and hard battle to fight thr... -
H.R.2123 Hereditary Hemorrhagic Telangiectasia Diagnosis and Treatment Act of 2011
millerglor
August 24, 2011
I am writing as your constituent in the 4th Congressional district of Louisiana. I am writing as your constituent in the 4th Congressional district of Louisiana. I support H.R.2123 - Hereditary Hemorrhagic Telangiectasia Diagnosis and Treatment Act of 2011, and am tracking it using OpenCongress.org, the free public resource website for government transparency and accountability.
Sincerely,
Gloria Miller
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