S 237 ISCommentsClose CommentsPermalink

113th CONGRESSCommentsClose CommentsPermalink

1st SessionCommentsClose CommentsPermalink

S. 237CommentsClose CommentsPermalink

To amend the Public Health Service Act to reauthorize and extend the Fetal Alcohol Syndrome prevention and services program, and for other purposes.CommentsClose CommentsPermalink

IN THE SENATE OF THE UNITED STATESCommentsClose CommentsPermalink

February 7, 2013CommentsClose CommentsPermalink

Ms. MURKOWSKI (for herself, Mr. JOHNSON of South Dakota, and Mr. BEGICH) introduced the following bill; which was read twice and referred to the Committee on Health, Education, Labor, and PensionsCommentsClose CommentsPermalink

A BILLCommentsClose CommentsPermalink

To amend the Public Health Service Act to reauthorize and extend the Fetal Alcohol Syndrome prevention and services program, and for other purposes.CommentsClose CommentsPermalink

Be it enacted by the Senate and House of Representatives of the United States of America in Congress assembled,CommentsClose CommentsPermalink

SECTION 1. SHORT TITLE.

This Act may be cited as the ‘Advancing FASD Research, Prevention, and Services Act’.CommentsClose CommentsPermalink

SEC. 2. FINDINGS.

Congress makes the following findings:CommentsClose CommentsPermalink





(1) Fetal Alcohol Spectrum Disorders (FASD) are the spectrum of serious, life-long disorders caused by prenatal exposure to alcohol, which include Fetal Alcohol Syndrome, Alcohol-Related Neurodevelopmental Disorder, and Alcohol-Related Birth Defects.CommentsClose CommentsPermalink





(2) In the decades that have passed since Fetal Alcohol Syndrome was first recognized in the United States, this fully preventable condition has continued to affect American children and families.CommentsClose CommentsPermalink





(3) Prenatal alcohol exposure can cause brain damage that produces cognitive and behavioral impairments. Prenatal alcohol exposure can cause intellectual disabilities or low IQ and difficulties with learning, memory, attention, and problem solving. It can also create problems with executive functioning and adaptive behavior that impairs mental health and social interaction. Prenatal alcohol exposure does not always result in below average IQ or visible birth defects, which makes Fetal Alcohol Spectrum Disorders difficult to identify, leading to improper treatment or denial of support services.CommentsClose CommentsPermalink





(4) Prenatal alcohol exposure also can cause growth retardation, birth defects involving the heart, kidney, vision and hearing, and a characteristic pattern of facial abnormalities. Prenatal alcohol exposure can also result in secondary behavioral characteristics that may include mental health disorders and learning and behavioral problems resulting in disrupted school experience, trouble with the law, incarceration, inappropriate sexual behavior, alcohol or drug problems, dependent living, and problems with employment.CommentsClose CommentsPermalink





(5) According to the Substance Abuse and Mental Health Services Administration, more than 1 in 5 women report drinking alcohol in the first trimester of pregnancy, 1 in 14 in the second trimester, and 1 in 20 in the third trimester, even though there is no known safe level of alcohol consumption during pregnancy.CommentsClose CommentsPermalink





(6) The incidence rate for all Fetal Alcohol Spectrum Disorders is estimated in a publication of the National Institute on Alcohol Abuse and Alcoholism to be about 10 out of 1,000 births (1 percent of births) or 40,000 newborns each year. It is estimated that as many as 2 per 1,000, or 20 percent of alcohol exposed newborns, have Fetal Alcohol Syndrome, the most serious and identifiable of the Fetal Alcohol Spectrum Disorders.CommentsClose CommentsPermalink





(7) As measured by the Fetal Alcohol Syndrome Surveillance Network, a partnership between the Centers for Disease Control and Prevention and 5 different States, prevalence of Fetal Alcohol Spectrum Disorders can be even higher in certain populations, such as American Indians and Alaska Natives, foster care children, adoptive children from the United States and from countries where alcohol consumption is more prevalent, and in certain areas, such as those characterized by low socioeconomic status.CommentsClose CommentsPermalink





(8) Fetal Alcohol Spectrum Disorders pose extraordinary financial costs to the Nation, including the cost of specialized health care, education, foster care, incarceration, job training, and general support services for individuals affected by Fetal Alcohol Spectrum Disorders.CommentsClose CommentsPermalink





(9) Lifetime health costs for an individual with Fetal Alcohol Syndrome ranges from $860,000 to $4,000,000. The cost of Fetal Alcohol Syndrome in the United States is estimated to be at least $6,000,000,000 in 2007. Total economic costs would be even higher for all Fetal Alcohol Spectrum Disorders.CommentsClose CommentsPermalink





(10) There is a great need for research, surveillance, prevention, treatment, and support services for individuals with Fetal Alcohol Spectrum Disorders and their families.CommentsClose CommentsPermalink





(11) The National Institutes of Health, in coordination with other Federal agencies, the Interagency Coordinating Committee on Fetal Alcohol Syndrome, and the National Task Force on Fetal Alcohol Syndrome and Fetal Alcohol Effect, has an opportunity to advance research on Fetal Alcohol Spectrum Disorders in many areas, including the following:CommentsClose CommentsPermalink





(A) The identification of the mechanisms that produce the cognitive and behavioral problems associated with fetal alcohol exposure.CommentsClose CommentsPermalink





(B) The identification of a neurocognitive and neurobehavioral phenotype for prenatal alcohol-related conditions other than Fetal Alcohol Syndrome.CommentsClose CommentsPermalink





(C) The identification of biological markers that can be used to indicate fetal alcohol exposure.CommentsClose CommentsPermalink





(D) The identification of fetal and maternal risk factors that increase susceptibility to Fetal Alcohol Spectrum Disorders.CommentsClose CommentsPermalink





(E) The investigation of behavioral and pharmacotherapies for alcohol-dependent women to determine new approaches for sustaining recovery.CommentsClose CommentsPermalink





(F) The development of scientific-based pharmacologic and nutrient augmentation-based pre- and post-natal interventions to antagonize or mitigate the effects of prenatal alcohol exposure.CommentsClose CommentsPermalink





(G) The development of neurocognitive interventions to address deficits in neurocognitive function for individuals with Fetal Alcohol Spectrum Disorders.CommentsClose CommentsPermalink





(H) The development of standards for measuring, reporting, and analyzing alcohol consumption patterns in pregnant women.CommentsClose CommentsPermalink





(I) The development of enhanced technological approaches for the diagnosis of Fetal Alcohol Spectrum Disorders including investigation of prenatal ultrasound, non-invasive imaging, three-dimensional facial feature imaging and their application in telemedicine to aid in remote diagnosis.CommentsClose CommentsPermalink





(J) The evaluation of the role of alcohol in Sudden Infant Death Syndrome (SIDS), unexplained stillbirth, and premature birth.CommentsClose CommentsPermalink





(K) The collection and banking of biomaterials for future analyses to aid in the identification of genetic and other biological and environmental risk factors contributing in the development of Fetal Alcohol Spectrum Disorders.CommentsClose CommentsPermalink





(L) The identification of barriers to implementing alcohol screening in primary care and obstetric practice, and explore the acceptability of new screening technologies, such as computer assisted interviewing.CommentsClose CommentsPermalink





(M) The development of approaches for selected and indicated prevention, to decrease the potential for FASD births among the women at greatest risk for these disorders.CommentsClose CommentsPermalink

SEC. 3. PROGRAMS FOR FETAL ALCOHOL SPECTRUM DISORDERS.

Section 399H of the Public Health Service Act (42 U.S.C. 280f) is amended--CommentsClose CommentsPermalink





(1) by striking the section heading and inserting the following: ‘sec. 399h. programs for fetal alcohol spectrum disorders.’;CommentsClose CommentsPermalink





(2) by redesignating subsections (a) through (d) as subsections (h) through (k), respectively;CommentsClose CommentsPermalink





(3) by inserting after the section heading, the following:CommentsClose CommentsPermalink





‘(a) Research on FAS and Related Disorders-CommentsClose CommentsPermalink





‘(1) IN GENERAL- The Secretary, acting through the Director of the National Institutes of Health and in coordination with the Interagency Coordinating Committee on Fetal Alcohol Syndrome, shall--CommentsClose CommentsPermalink





‘(A) establish a research agenda for Fetal Alcohol Spectrum Disorders; andCommentsClose CommentsPermalink





‘(B) award grants, contracts, or cooperative agreements to public or private nonprofit entities to pay all or part of carrying out research under such agenda.CommentsClose CommentsPermalink





‘(2) TYPES OF RESEARCH- In carrying out paragraph (1), the Secretary, acting through the Director of the National Institute of Alcohol Abuse and Alcoholism, shall continue to conduct and expand national and international research in coordination with other Federal agencies that includes--CommentsClose CommentsPermalink





‘(A) the most promising avenues of research in Fetal Alcohol Spectrum Disorder diagnosis, intervention, and prevention;CommentsClose CommentsPermalink





‘(B) factors that may mitigate the effects of fetal alcohol exposure; andCommentsClose CommentsPermalink





‘(C) other research that the Director determines to be appropriate.CommentsClose CommentsPermalink





‘(3) AUTHORIZATION OF APPROPRIATIONS- There are authorized to be appropriated to carry out this subsection, such sums as may be necessary for each of fiscal years 2014 through 2018.CommentsClose CommentsPermalink





‘(b) Surveillance, Public Health Research, and Prevention Activities-CommentsClose CommentsPermalink





‘(1) IN GENERAL- The Secretary, acting through the Director of the National Center on Birth Defects and Developmental Disabilities, shall facilitate surveillance, public health research, and prevention of Fetal Alcohol Spectrum Disorders as provided for in this subsection.CommentsClose CommentsPermalink





‘(2) SURVEILLANCE, PUBLIC HEALTH RESEARCH, AND PREVENTION- In carrying out this subsection, the Secretary shall--CommentsClose CommentsPermalink





‘(A) integrate into clinical practice the standard case definition for diagnosis of Fetal Alcohol Syndrome and, in collaboration with the National Institute on Alcohol Abuse and Alcoholism, the Centers for Disease Control and Prevention, researchers, and experts in the field, develop a standard clinical case definition for diagnostic guidelines and criteria for prenatal alcohol-related conditions other than Fetal Alcohol Syndrome;CommentsClose CommentsPermalink





‘(B) conduct applied public health prevention research to identify evidence-based strategies for reducing alcohol-exposed pregnancies in women at high risk for alcohol-exposed pregnancies;CommentsClose CommentsPermalink





‘(C) disseminate and provide the necessary training and support to implement evidence-based strategies developed under subparagraph (A) to--CommentsClose CommentsPermalink





‘(i) hospitals, federally qualified health centers, outpatient programs, and other appropriate health care providers;CommentsClose CommentsPermalink





‘(ii) incarceration, detainment facilities, and other judicial systems for juveniles and adults;CommentsClose CommentsPermalink





‘(iii) educational settings;CommentsClose CommentsPermalink





‘(iv) social work and child welfare offices;CommentsClose CommentsPermalink





‘(v) foster care providers and adoption agencies;CommentsClose CommentsPermalink





‘(vi) State offices and others providing services to individuals with disabilities;CommentsClose CommentsPermalink





‘(vii) alcoholism treatment facilities; andCommentsClose CommentsPermalink





‘(viii) other entities that the Secretary determines to be appropriate;CommentsClose CommentsPermalink





‘(D) conduct activities related to risk factor surveillance including the biannual monitoring and reporting of alcohol consumption among pregnant women and women of child bearing age; andCommentsClose CommentsPermalink





‘(E) disseminate and evaluate brief behavioral intervention strategies aimed at preventing alcohol-exposed pregnancies among women of childbearing age in special settings, including clinical primary health centers, outpatient clinics, and jail and recovery campuses.CommentsClose CommentsPermalink





‘(3) AUTHORIZATION OF APPROPRIATIONS- There are authorized to be appropriated to carry out this subsection, such sums as may be necessary for each of fiscal years 2014 through 2018.CommentsClose CommentsPermalink





‘(c) Building State FASD Systems-CommentsClose CommentsPermalink





‘(1) IN GENERAL- The Secretary, acting through the Administrator of the Substance Abuse and Mental Health Services Administration, shall award grants, contracts, or cooperative agreements to States for the purpose of establishing or expanding statewide programs of surveillance, prevention, and clinical intervention for individuals with Fetal Alcohol Spectrum Disorders.CommentsClose CommentsPermalink





‘(2) ELIGIBILITY- To be eligible to receive a grant, contract, or cooperative agreement under paragraph (1) a State shall--CommentsClose CommentsPermalink





‘(A) prepare and submit to the Secretary an application at such time, in such manner, and containing such information as the Secretary may reasonably require;CommentsClose CommentsPermalink





‘(B) develop and implement a statewide strategic plan for preventing Fetal Alcohol Spectrum Disorders and clinical intervention for individuals with Fetal Alcohol Spectrum Disorders;CommentsClose CommentsPermalink





‘(C) consult with public and private non-profit entities with relevant expertise on Fetal Alcohol Spectrum Disorders within the State, including--CommentsClose CommentsPermalink





‘(i) parent-led groups and other organizations that support and advocate for individuals with Fetal Alcohol Spectrum Disorders; andCommentsClose CommentsPermalink





‘(ii) Indian tribes and tribal organizations; andCommentsClose CommentsPermalink





‘(D) designate an individual to serve as the coordinator of the State’s Fetal Alcohol Spectrum Disorders program.CommentsClose CommentsPermalink





‘(3) STRATEGIC PLAN- The statewide strategic plan prepared under paragraph (2)(B) shall include--CommentsClose CommentsPermalink





‘(A) the identification of existing State programs and systems that could be used to identify and assist individuals with Fetal Alcohol Spectrum Disorders and prevent alcohol consumption during pregnancy, such as--CommentsClose CommentsPermalink





‘(i) programs for the developmentally disabled, the mentally ill, and individuals with alcohol dependency;CommentsClose CommentsPermalink





‘(ii) educational settings;CommentsClose CommentsPermalink





‘(iii) incarceration, detention centers, and judicial systems for juveniles and adults;CommentsClose CommentsPermalink





‘(iv) child welfare programs and social service programs; andCommentsClose CommentsPermalink





‘(v) other programs or systems the State determines to be appropriate;CommentsClose CommentsPermalink





‘(B) the identification of any barriers for individuals with Fetal Alcohol Spectrum Disorders or women at risk for alcohol consumption during pregnancy to access the programs identified under subparagraph (A); andCommentsClose CommentsPermalink





‘(C) proposals to eliminate barriers to prevention and treatment programs and coordinate the activities of such programs.CommentsClose CommentsPermalink





‘(4) USE OF FUNDS- Amounts received under a grant, contract, or cooperative agreement under paragraph (1) shall be used for 1 or more of the following activities:CommentsClose CommentsPermalink





‘(A) Establishing a statewide surveillance system.CommentsClose CommentsPermalink





‘(B) Collecting, analyzing, and interpreting data.CommentsClose CommentsPermalink





‘(C) Establishing a diagnostic center.CommentsClose CommentsPermalink





‘(D) Developing, implementing, and evaluating population-based and targeted prevention programs for Fetal Alcohol Spectrum Disorders, including public awareness campaigns.CommentsClose CommentsPermalink





‘(E) Referring individuals with Fetal Alcohol Spectrum Disorders to appropriate support services.CommentsClose CommentsPermalink





‘(F) Implementing recommendations from relevant agencies and organizations on the identification and prevention of Fetal Alcohol Spectrum Disorders, and clinical intervention for individuals with Fetal Alcohol Spectrum Disorders.CommentsClose CommentsPermalink





‘(G) Providing training to health care providers on the prevention, identification, and treatment of Fetal Alcohol Spectrum Disorders.CommentsClose CommentsPermalink





‘(H) Disseminating information about Fetal Alcohol Spectrum Disorders and the availability of support services to families of individuals with Fetal Alcohol Spectrum Disorders.CommentsClose CommentsPermalink





‘(I) Other activities determined appropriate by the Secretary.CommentsClose CommentsPermalink





‘(5) MULTI-STATE PROGRAMS- The Secretary shall permit the formation of multi-State Fetal Alcohol Spectrum Disorders programs under this subsection.CommentsClose CommentsPermalink





‘(6) OTHER CONTRACTS AND AGREEMENTS- A State may carry out activities under paragraph (4) through contracts or cooperative agreements with public and private non-profit entities with a demonstrated expertise in Fetal Alcohol Spectrum Disorders.CommentsClose CommentsPermalink





‘(7) AUTHORIZATION OF APPROPRIATIONS- There are authorized to be appropriated to carry out this subsection, such sums as may be necessary for fiscal years 2014 through 2018.CommentsClose CommentsPermalink





‘(d) Promoting Community Partnerships-CommentsClose CommentsPermalink





‘(1) IN GENERAL- The Secretary shall award grants, contracts, or cooperative agreements to eligible entities to enable such entities to establish, enhance, or improve community partnerships for the purpose of collaborating on common objectives and integrating the services available to individuals with Fetal Alcohol Spectrum Disorders, such as surveillance, prevention, treatment, and provision of support services.CommentsClose CommentsPermalink





‘(2) ELIGIBLE ENTITIES- To be eligible to receive a grant, contract, or cooperative agreement under paragraph (1), an entity shall--CommentsClose CommentsPermalink





‘(A) be a public or private nonprofit entity, including--CommentsClose CommentsPermalink





‘(i) a health care provider or health professional;CommentsClose CommentsPermalink





‘(ii) a primary or secondary school;CommentsClose CommentsPermalink





‘(iii) a social work or child welfare office;CommentsClose CommentsPermalink





‘(iv) an incarceration, detainment facility, or judicial systems for juveniles and adults;CommentsClose CommentsPermalink





‘(v) a parent-led group or other organization that supports and advocates for individuals with Fetal Alcohol Spectrum Disorders;CommentsClose CommentsPermalink





‘(vi) an Indian tribe or tribal organization;CommentsClose CommentsPermalink





‘(vii) any other entity the Secretary determines to be appropriate; orCommentsClose CommentsPermalink





‘(viii) a consortium of any of the entities described in clauses (i) through (vii); andCommentsClose CommentsPermalink





‘(B) prepare and submit to the Secretary an application at such time, in such manner, and containing such information as the Secretary may reasonably require, including assurances that the entity submitting the application does, at the time of application, or will, within a reasonable amount of time from the date of application, include substantive participation of a broad range of entities that work with or provide services for individuals with Fetal Alcohol Spectrum Disorders.CommentsClose CommentsPermalink





‘(3) ACTIVITIES- An eligible entity shall use amounts received under a grant, contract, or cooperative agreement under this subsection shall carry out 1 or more of the following activities:CommentsClose CommentsPermalink





‘(A) Integrating Fetal Alcohol Spectrum Disorders services into existing programs and services available in the community.CommentsClose CommentsPermalink





‘(B) Conducting a needs assessment to identify services that are not available in a community.CommentsClose CommentsPermalink





‘(C) Developing and implementing community-based initiatives to prevent, diagnose, treat, and provide support services to individuals with Fetal Alcohol Spectrum Disorders.CommentsClose CommentsPermalink





‘(D) Disseminating information about Fetal Alcohol Spectrum Disorders and the availability of support services.CommentsClose CommentsPermalink





‘(E) Developing and implementing a community-wide public awareness and outreach campaign focusing on the dangers of drinking alcohol while pregnant.CommentsClose CommentsPermalink





‘(F) Providing mentoring or other support to families of individuals with Fetal Alcohol Spectrum Disorders.CommentsClose CommentsPermalink





‘(G) Other activities determined appropriate by the Secretary.CommentsClose CommentsPermalink





‘(4) AUTHORIZATION OF APPROPRIATIONS- There are authorized to be appropriated to carry out this subsection, such sums as may be necessary for each of fiscal years 2014 through 2018.CommentsClose CommentsPermalink





‘(e) Development of Best Practices-CommentsClose CommentsPermalink





‘(1) IN GENERAL- The Secretary, in coordination with the Administrator of the Substance Abuse and Mental Health Services Administration, shall award grants to States, Indian tribes and tribal organizations, and nongovernmental organizations for the establishment of pilot projects to identify and implement best practices for--CommentsClose CommentsPermalink





‘(A) educating children with fetal alcohol spectrum disorders, including--CommentsClose CommentsPermalink





‘(i) activities and programs designed specifically for the identification, treatment, and education of such children; andCommentsClose CommentsPermalink





‘(ii) curricula development and credentialing of teachers, administrators, and social workers who implement such programs;CommentsClose CommentsPermalink





‘(B) educating judges, attorneys, probation officers, child advocates, law enforcement officers, prison wardens, alternative incarceration administrators, and incarceration officials on how to treat and support individuals suffering from Fetal Alcohol Spectrum Disorders within the criminal justice system, including--CommentsClose CommentsPermalink





‘(i) programs designed specifically for the identification, treatment, and education of those with Fetal Alcohol Spectrum Disorders; andCommentsClose CommentsPermalink





‘(ii) curricula development and credentialing within the justice system for individuals who implement such programs; andCommentsClose CommentsPermalink





‘(C) educating adoption or foster care agency officials about available and necessary services for children with Fetal Alcohol Spectrum Disorders, including--CommentsClose CommentsPermalink





‘(i) programs designed specifically for the identification, treatment, and education of those with Fetal Alcohol Spectrum Disorders; andCommentsClose CommentsPermalink





‘(ii) education and training for potential parents of an adopted child with Fetal Alcohol Spectrum Disorders.CommentsClose CommentsPermalink





‘(2) APPLICATION- To be eligible for a grant under paragraph (1), an entity shall prepare and submit to the Secretary an application at such time, in such manner, and containing such information as the Secretary may reasonably require.CommentsClose CommentsPermalink





‘(3) AUTHORIZATION OF APPROPRIATIONS- There are authorized to be appropriated to carry out this subsection, such sums as may be necessary for each of fiscal years 2014 through 2018.CommentsClose CommentsPermalink





‘(f) Transitional Services-CommentsClose CommentsPermalink





‘(1) IN GENERAL- The Secretary shall award demonstration grants, contracts, and cooperative agreements to States, Indian tribes and tribal organizations, and nongovernmental organizations for the purpose of establishing integrated systems for providing transitional services for those affected by prenatal alcohol exposure and evaluating their effectiveness.CommentsClose CommentsPermalink





‘(2) APPLICATION- To be eligible for a grant, contract, or cooperative agreement under paragraph (1), an entity shall prepare and submit to the Secretary an application at such time, in such manner, and containing such information as the Secretary may reasonably require, including specific credentials relating to education, skills, training, and continuing educational requirements relating to Fetal Alcohol Spectrum Disorders.CommentsClose CommentsPermalink





‘(3) ALLOWABLE USES- An entity shall use amounts received under a grant, contract, or cooperative agreement under paragraph (1) to--CommentsClose CommentsPermalink





‘(A) provide housing assistance to, or specialized housing for, adults with Fetal Alcohol Spectrum Disorders;CommentsClose CommentsPermalink





‘(B) provide vocational training and placement services for adults with Fetal Alcohol Spectrum Disorders;CommentsClose CommentsPermalink





‘(C) provide medication monitoring services for adults with Fetal Alcohol Spectrum Disorders;CommentsClose CommentsPermalink





‘(D) provide training and support to organizations providing family services or mental health programs and other organizations that work with adults with Fetal Alcohol Spectrum Disorders; andCommentsClose CommentsPermalink





‘(E) establish and evaluate housing models specially designed for adults with Fetal Alcohol Spectrum Disorders.CommentsClose CommentsPermalink





‘(4) AUTHORIZATION OF APPROPRIATIONS- There are authorized to be appropriated to carry out this subsection, such sums as may be necessary for each of fiscal years 2014 through 2018.CommentsClose CommentsPermalink





‘(g) Federally Qualified Health Center Initiative-CommentsClose CommentsPermalink





‘(1) IN GENERAL- The Secretary, acting through the Administrator of the Health Resources and Services Administration, shall award grants to federally qualified health centers acting in collaboration with States, Indian tribes, tribal organizations, and nongovernmental organizations, for the establishment of a 5-year demonstration program to implement and evaluate a program to increase the awareness and identification of Fetal Alcohol Spectrum Disorders in federally qualified health centers and to refer affected individuals to appropriate support services.CommentsClose CommentsPermalink





‘(2) APPLICATION- To be eligible to receive a grant under paragraph (1), a federally qualified health center, or a State, Indian tribe, tribal organization, or nongovernment organization with a demonstrated record of implementing Fetal Alcohol Spectrum Disorders programming in federally qualified health centers, shall prepare and submit to the Administrator an application at such time, in such manner, and containing such information as the Administrator may reasonably require.CommentsClose CommentsPermalink





‘(3) ACTIVITIES- A federally qualified health center, or other eligible entity, shall use amounts received under a grant under paragraph (1) to--CommentsClose CommentsPermalink





‘(A) provide training for health care providers on identifying and educating women who are at risk for alcohol consumption during pregnancy;CommentsClose CommentsPermalink





‘(B) provide training for health care providers on screening children for Fetal Alcohol Spectrum Disorders;CommentsClose CommentsPermalink





‘(C) educate health care providers and other relevant federally qualified health center workers on the support services available for those with Fetal Alcohol Spectrum Disorders and treatment services available for women at risk for alcohol consumption during pregnancy; andCommentsClose CommentsPermalink





‘(D) implement a tracking system that can identify the rates of Fetal Alcohol Spectrum Disorders by racial, ethnic, and economic backgrounds.CommentsClose CommentsPermalink





‘(4) SELECTION OF PARTICIPANTS- The Administrator shall determine the number of federally qualified health centers that will participate in the demonstration program under this subsection and shall select participants, to the extent practicable, that are located in different regions of the United States and that serve a racially and ethnically diverse population.CommentsClose CommentsPermalink





‘(5) AUTHORIZATION OF APPROPRIATIONS- There are authorized to be appropriated to carry out this subsection, such sums as may be necessary for each of fiscal years 2014 through 2018.CommentsClose CommentsPermalink





‘(6) REPORT TO CONGRESS- Not later than 1 year after completion of the demonstration program under this subsection, the Administrator shall prepare and submit to Congress a report on the results of the demonstration program, including--CommentsClose CommentsPermalink





‘(A) changes in the number of women screened for and identified as at risk for alcohol consumption during pregnancy;CommentsClose CommentsPermalink





‘(B) changes in the number of individuals identified as having a Fetal Alcohol Spectrum Disorder; andCommentsClose CommentsPermalink





‘(C) changes in the number of alcohol-consuming pregnant women and individuals with Fetal Alcohol Spectrum Disorders who were referred to appropriate services.’;CommentsClose CommentsPermalink





(4) in subsection (h)(1) (as so redesignated)--CommentsClose CommentsPermalink





(A) in subparagraph (C), by striking ‘and’ after the semicolon;CommentsClose CommentsPermalink





(B) in subparagraph (D), by adding ‘and’ after the semicolon; andCommentsClose CommentsPermalink





(C) by adding at the end the following:CommentsClose CommentsPermalink





‘(E) national public service announcements to raise public awareness of the risks associated with alcohol consumption during pregnancy with the purpose of reducing the prevalence of Fetal Alcohol Spectrum Disorders, that shall--CommentsClose CommentsPermalink





‘(i) be developed, conducted, and evaluated prior to broadcast by relevant Federal agencies with the advice of the Interagency Coordinating Committee on Fetal Alcohol Syndrome taking into consideration the expertise and experience of other relevant Federal agencies;CommentsClose CommentsPermalink





‘(ii) be broadcast through appropriate media outlets, including the Internet, television or radio, in a manner intended to reach women at risk of alcohol consumption during pregnancy; andCommentsClose CommentsPermalink





‘(iii) be measured prior to broadcast of the national public service announcements to provide baseline data that will be used to evaluate the effectiveness of the announcements.’; andCommentsClose CommentsPermalink





(5) in subsection (k) (as so redesignated)--CommentsClose CommentsPermalink





(A) in paragraph (1), by striking ‘National Task Force on Fetal Alcohol Syndrome and Fetal Alcohol Effect’ and inserting ‘National Task Force on Fetal Alcohol Spectrum Disorders’;CommentsClose CommentsPermalink





(B) in paragraph (3)--CommentsClose CommentsPermalink





(i) in subparagraph (B), by striking ‘and’ after the semicolon;CommentsClose CommentsPermalink





(ii) in subparagraph (C), by striking the period and inserting a semicolon; andCommentsClose CommentsPermalink





(iii) by adding at the end the following:CommentsClose CommentsPermalink





‘(D) explore the feasibility of whether Fetal Alcohol Syndrome and other prenatal alcohol disorders, or a subset of these disorders, should be included in the Diagnostic and Statistic Manual of Mental Disorders; andCommentsClose CommentsPermalink





‘(E) in collaboration with the National Institute on Alcohol Abuse and Alcoholism, the Centers for Disease Control and Prevention, researchers, and experts in the field, develop a standard clinical case definition for diagnostic guideline and criteria for prenatal alcohol-related conditions other than Fetal Alcohol Syndrome.’; andCommentsClose CommentsPermalink





(C) by striking ‘Fetal Alcohol Syndrome and Fetal Alcohol Effect’ each place that such appears and inserting ‘Fetal Alcohol Spectrum Disorders’.CommentsClose CommentsPermalink

SEC. 4. COORDINATION AMONG FEDERAL ENTITIES.

Part O of title III of the Public Health Service Act (42 U.S.C. 280f et seq.) is amended by adding at the end the following:CommentsClose CommentsPermalink

‘SEC. 399K-1. COORDINATION AMONG FEDERAL ENTITIES.

‘(a) Interagency Coordinating Committee on Fetal Alcohol Syndrome- The Secretary, acting through the Director of the National Institute on Alcohol Abuse and Alcoholism, shall provide for the continuation of the Interagency Coordinating Committee on Fetal Alcohol Syndrome so that such Committee may--CommentsClose CommentsPermalink





‘(1) coordinate activities conducted by the Federal Government on Fetal Alcohol Spectrum Disorders, including convening meetings, establishing work groups, sharing information, and facilitating and promoting collaborative projects among Federal agencies; andCommentsClose CommentsPermalink





‘(2) develop, in consultation with the National Task Force on Fetal Alcohol Spectrum Disorders, priority areas for years 2013 through 2017 to guide Federal programs and activities related to Fetal Alcohol Spectrum Disorders.CommentsClose CommentsPermalink





‘(b) Coordination Among Federal Entities-CommentsClose CommentsPermalink





‘(1) IN GENERAL- The Comptroller General of the United States shall evaluate and make recommendations regarding the appropriate roles and responsibilities of Federal entities with respect to programs and activities related to Fetal Alcohol Spectrum Disorders.CommentsClose CommentsPermalink





‘(2) COVERED ENTITIES- The Federal entities under paragraph (1) shall include entities within the National Institutes of Health, the Centers for Disease Control and Prevention, the Substance Abuse and Mental Health Services Administration, the Health Resources and Services Administration, the Indian Health Service, the Agency for Healthcare Research and Quality, the Interagency Coordinating Committee on Fetal Alcohol Syndrome, the National Task Force on Fetal Alcohol Spectrum Disorders, as well as the Office of Special Education and Rehabilitative Services in the Department of Education and the Office of Juvenile Justice and Delinquency Prevention in the Department of Justice.CommentsClose CommentsPermalink





‘(3) EVALUATION- The evaluation conducted by the Comptroller General under paragraph (1) shall include--CommentsClose CommentsPermalink





‘(A) an assessment of the current roles and responsibilities of Federal entities with programs and activities related to Fetal Alcohol Spectrum Disorders; andCommentsClose CommentsPermalink





‘(B) an assessment of whether there is duplication in programs and activities, conflicting roles and responsibilities, or lack of coordination among Federal entities.CommentsClose CommentsPermalink





‘(4) RECOMMENDATION- The Comptroller General shall provide recommendations on the appropriate roles and responsibilities of the Federal entities described in paragraph (2) in order to maximize the effectiveness of Federal programs and activities related to Fetal Alcohol Spectrum Disorders.CommentsClose CommentsPermalink





‘(5) COMPLETION- Not later than 1 year after the date of enactment of the Advancing FASD Research, Prevention, and Services Act, the Comptroller General shall complete the evaluation and submit to Congress a report on the findings and recommendations made as a result of the evaluation.’.CommentsClose CommentsPermalink

SEC. 5. SERVICES FOR INDIVIDUALS WITH FETAL ALCOHOL SPECTRUM DISORDERS.

Section 519C(b) of the Public Health Service Act (42 U.S.C. 290bb-25c(b)) is amended--CommentsClose CommentsPermalink





(1) in paragraph (11), by striking ‘and’ after the semicolon;CommentsClose CommentsPermalink





(2) by redesignating paragraph (12) as paragraph (15); andCommentsClose CommentsPermalink





(3) by inserting after paragraph (11), the following:CommentsClose CommentsPermalink





‘(12) provide respite care for caretakers of individuals with Fetal Alcohol Syndrome and other prenatal alcohol-related disorders;CommentsClose CommentsPermalink





‘(13) recruit and train mentors for individuals with Fetal Alcohol Syndrome and other prenatal alcohol-related disorders;CommentsClose CommentsPermalink





‘(14) provide educational and supportive services to families of individuals with Fetal Alcohol Spectrum Disorders; and’.CommentsClose CommentsPermalink

SEC. 6. PREVENTION, INTERVENTION, AND SERVICES IN THE EDUCATION SYSTEM.

(a) General Rule- The Secretary of Education shall be the lead Federal official with responsibility over education-related issues with respect to children with Fetal Alcohol Spectrum Disorders.CommentsClose CommentsPermalink





(b) Specific Responsibilities- The Secretary of Education shall direct the Office of Special Education and Rehabilitative Services to--CommentsClose CommentsPermalink





(1) conduct and disseminate training on a nationwide Fetal Alcohol Spectrum Disorders surveillance campaign to local education agencies and early childhood education providers in collaboration with the National Center on Birth Defects and Developmental Disabilities under section 399H(b) of the Public Health Service Act (as added by this Act);CommentsClose CommentsPermalink





(2) collect, collate, and disseminate (through the Internet Web site of the Department of Education, at teacher-to-teacher workshops, and through other means) evidence-based practices that are effective in the education and support of children with Fetal Alcohol Syndrome Disorders, including any special techniques on how to assist children with Fetal Alcohol Spectrum Disorders, in both special and traditional educational settings, such practices to incorporate information concerning the identification, behavioral supports, teaching, and learning associated with Fetal Alcohol Spectrum Disorders, to--CommentsClose CommentsPermalink





(A) education groups such as the National Association of School Boards, the National Education Association, the American Federation of Teachers, the National Association of Elementary School Principals, and the National Association of Secondary School Principals;CommentsClose CommentsPermalink





(B) 21st Century Community Learning Center program grantees and other after school program personnel; andCommentsClose CommentsPermalink





(C) Parent Teacher Associations, Parent Information and Training Centers, family aid programs, and other appropriate education organizations;CommentsClose CommentsPermalink





(3) ensure that, in administering the Individuals with Disabilities Education Act, parents, educators, and advocates for children with disabilities are aware that children with Fetal Alcohol Spectrum Disorders have the right to access general curriculum under the least restrictive environment;CommentsClose CommentsPermalink





(4) collaborate with other Federal agencies to include Fetal Alcohol Spectrum Disorders-related information or activities in programs related to maternal health, health education, and sex education;CommentsClose CommentsPermalink





(5) collaborate with the Secretary of Health and Human Services to ensure that Fetal Alcohol Spectrum Disorders prevention grants under section 399H of the Public Health Service Act include education concerning Fetal Alcohol Spectrum Disorders in the sexual and health education curricula of schools; andCommentsClose CommentsPermalink





(6) support efforts by peer advisory networks of adolescents in schools organized to discourage the use of alcohol while pregnant or considering getting pregnant.CommentsClose CommentsPermalink

SEC. 7. PREVENTION, INTERVENTION, AND SERVICES IN THE JUSTICE SYSTEM.

The Attorney General shall direct the Office of Juvenile Justice and Delinquency Prevention to--CommentsClose CommentsPermalink





(1) implement screening procedures and conduct training on a nationwide Fetal Alcohol Spectrum Disorders surveillance campaign for the Department of Justice in collaboration with the efforts of the National Center on Birth Defects and Developmental Disabilities under section 399H(b) of the Public Health Service Act (as added by this Act);CommentsClose CommentsPermalink





(2) introduce training curricula on how to most effectively identify and interact with individuals with Fetal Alcohol Spectrum Disorders in both the juvenile and adult justice systems, and investigate incorporating information about the identification, prevention, and treatment of the disorders into justice professionals’ credentialing requirements;CommentsClose CommentsPermalink





(3) promote the tracking of individuals entering the juvenile justice system with at-risk backgrounds that indicates them as high probability for having a Fetal Alcohol Spectrum Disorder, especially those individuals whose mothers have a record of heavy or binge drinking during pregnancy as reported by the appropriate child protection agency;CommentsClose CommentsPermalink





(4) educate judges, attorneys, probation officers, child advocates, law enforcement officers, prison wardens, alternative incarceration administrators, and incarceration officials on how to treat and support individuals suffering from Fetal Alcohol Spectrum Disorders within the juvenile and adult justice systems, including--CommentsClose CommentsPermalink





(A) programs designed specifically for the identification, treatment, and education of such children; andCommentsClose CommentsPermalink





(B) curricula development and credentialing of teachers, administrators, and social workers who implement such programs;CommentsClose CommentsPermalink





(5) conduct a study on the inadequacies of how the current system processes children with certain developmental delays and subsequently implement alternative methods of incarceration and treatment that are more effective for youth offenders identified to have a Fetal Alcohol Spectrum Disorder; andCommentsClose CommentsPermalink





(6) collaborate with Fetal Alcohol Spectrum Disorders professionals and implement transition programs for juveniles and adults with Fetal Alcohol Spectrum Disorders who are released from incarceration.CommentsClose CommentsPermalink

SEC. 8. MISCELLANEOUS PROVISIONS.

(a) Authorization of Appropriations- Section 399J of the Public Health Service Act (42 U.S.C. 280f-2) is amended by striking ‘the part’ and all that follows through the period and inserting ‘subsections (h) through (k) of section 399H, $27,000,000 for each of fiscal years 2014 through 2018’.CommentsClose CommentsPermalink





(b) Repeal of Sunset- Section 399K of the Public Health Service Act (42 U.S.C. 280f-3) is repealed.CommentsClose CommentsPermalink