H.R.5874 - National MS Disease Registry Act

To amend the Public Health Service Act to provide for the establishment of a permanent Multiple Sclerosis National Surveillance System. view all titles (2)

All Bill Titles

  • Official: To amend the Public Health Service Act to provide for the establishment of a permanent Multiple Sclerosis National Surveillance System. as introduced.
  • Short: National MS Disease Registry Act as introduced.

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Introduced
 
House
Passes
 
Senate
Passes
 
President
Signs
 

 
04/22/08
 
 
 
 
 
 
 

Official Summary

National MS Disease Registry Act - Amends the Public Health Service Act to require the Secretary of Health and Human Services, acting through the Director of the Agency for Toxic Substances and Disease Registry, to: (1) develop a system to collect data on multiple sclerosis (MS); and (2) es

Official Summary

National MS Disease Registry Act - Amends the Public Health Service Act to require the Secretary of Health and Human Services, acting through the Director of the Agency for Toxic Substances and Disease Registry, to:
(1) develop a system to collect data on multiple sclerosis (MS); and
(2) establish a national surveillance system for the collection and storage of such data, including a population-based registry of U.S. cases of MS.Requires the Secretary to establish the Advisory Committee on the MS National Surveillance System.Allows the Secretary to award grants to, and enter into contracts and cooperative agreements with, public or private nonprofit entities for the collection, analysis, and reporting of data on MS.Requires the Secretary to:
(1) identify, build upon, expand, and coordinate existing data and surveillance systems, surveys, registries, and other federal public health and environmental infrastructure wherever possible; and
(2) provide for research access to MS data.Requires the Secretary to ensure that epidemiological and other types of information collected are made available to agencies such as the National Institutes of Health (NIH), the Department of Veterans Affairs (VA), and the Department of Defense (DOD).

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