S.1463 - Everson Walls and Ron Springs Gift for Life Act of 2009

A bill to amend the Public Health Service Act to establish a National Organ and Tissue Donor Registry Resource Center, to authorize grants for State organ and tissue donor registries, and for other purposes. view all titles (2)

All Bill Titles

  • Official: A bill to amend the Public Health Service Act to establish a National Organ and Tissue Donor Registry Resource Center, to authorize grants for State organ and tissue donor registries, and for other purposes. as introduced.
  • Short: Everson Walls and Ron Springs Gift for Life Act of 2009 as introduced.

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Introduced
 
Senate
Passes
 
House
Passes
 
President
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07/16/09
 
 
 
 
 
 
 

Official Summary

Everson Walls and Ron Springs Gift for Life Act of 2009 - Amends the Public Health Service Act to direct the Secretary of Health and Human Services (HHS), acting through the Administrator of the Health Resources and Services Administration, to establish a National Organ and Tissue Donor Reg

Official Summary

Everson Walls and Ron Springs Gift for Life Act of 2009 - Amends the Public Health Service Act to direct the Secretary of Health and Human Services (HHS), acting through the Administrator of the Health Resources and Services Administration, to establish a National Organ and Tissue Donor Registry Resource Center, which shall:
(1) advance the development, expansion, and evaluation of state organ and tissue donor registries;
(2) facilitate timely access to, and the exchange of accurate donor information between, such registries;
(3) ensure that registries funded through this Act comply with applicable requirements;
(4) provide technical assistance to states for such registries; and
(5) maintain a registry information clearinghouse to collect, synthesize, and disseminate best practices information. Requires the Secretary to award grants or cooperative agreements to states for the development, enhancement, expansion, and evaluation of organ and tissue donor registries. Sets forth requirements for registries, including that such registries:
(1) allow a donor to include a statement or symbol that the donor has made, amended, or revoked an anatomical gift;
(2) allow organ procurement organizations to access that information, at or near the donor's death; and
(3) bar the use or disclosure of personally identifiable information for any other purpose without the donor's consent. Directs the Comptroller General to report to Congress on the feasibility of establishing a living donor database to track health effects for donors associated with living organ donation.

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