S.3461 - National Pediatric Research Network Act of 2012

A bill to amend title IV of the Public Health Service Act to provide for a National Pediatric Research Network, including with respect to pediatric rare diseases or conditions. view all titles (2)

All Bill Titles

  • Official: A bill to amend title IV of the Public Health Service Act to provide for a National Pediatric Research Network, including with respect to pediatric rare diseases or conditions. as introduced.
  • Short: National Pediatric Research Network Act of 2012 as introduced.

This Bill currently has no wiki content. If you would like to create a wiki entry for this bill, please Login, and then select the wiki tab to create it.

Bill’s Views

  • Today: 1
  • Past Seven Days: 1
  • All-Time: 721
 
Introduced
 
Senate
Passes
 
House
Passes
 
President
Signs
 

 
07/31/12
 
 
 
 
 
 
 

Official Summary

National Pediatric Research Network Act of 2012 - Amends the Public Health Service Act to authorize the Director of the National Institutes of Health (NIH), in carrying out the Pediatric Research Initiative, to act through the Director of the Eunice Kennedy Shriver National Institute of Chi

Official Summary

National Pediatric Research Network Act of 2012 - Amends the Public Health Service Act to authorize the Director of the National Institutes of Health (NIH), in carrying out the Pediatric Research Initiative, to act through the Director of the Eunice Kennedy Shriver National Institute of Child Health and Human Development and in collaboration with other appropriate national research institutes and national centers that carry out activities involving pediatric research to provide for the establishment of a National Pediatric Research Network. Authorizes the Director of the Institute to award cooperative agreements and grants to public or private nonprofit entities for:
(1) planning, establishing, or strengthening pediatric research consortia; and
(2) providing basic operating support for such consortia, including for pediatric research needs and training. Authorizes the Director to make awards for not more than 20 pediatric research consortia. Requires the Director to provide for the coordination of activities among the consortia and to require the periodic preparation and submission of reports on their activities. Requires the Director of NIH to ensure that an appropriate number of such awards are awarded to consortia that agree to:
(1) focus primarily on pediatric rare diseases or conditions;
(2) conduct or coordinate multi-site clinical trials of therapies for, or approaches to, the prevention, diagnosis, or treatment of pediatric rare diseases or conditions; and
(3) disseminate trial findings. Requires the Director of NIH to establish a data coordinating center to:
(1) distribute such findings;
(2) provide assistance in the design and conduct of collaborative research projects and the management, analysis, and storage of data associated with such projects;
(3) organize and conduct multi-site monitoring activities;
(4) provide assistance to the Centers for Disease Control and Prevention (CDC) in the establishment of patient registries; and
(5) report regularly on consortia research.

...Read the Rest




Vote on This Bill

-% Users Support Bill

0 in favor / 0 opposed
 

Send Your Senator a Letter

about this bill Support Oppose Tracking
Track with MyOC