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  <title>Open Congress : Major Bill Actions in Hereditary and development disorders</title>
  <link href="http://www.opencongress.org/issues/atom/8770_hereditary_and_development_disorders" rel="self"/>
  <link href="http://www.opencongress.org/issues/show/8770_hereditary_and_development_disorders" rel="alternate"/>
  <updated>2013-04-24T20:00:00Z</updated>
  <author>
    <name>opencongress.org</name>
  </author>
  <id>tag:opencongress.org,2007:/issue_feed/8770</id>
  <entry>
    <title>Bill Introduced: S.832 Improving the Lives of Children with Spina Bifida Act of 2013</title>
    <link href="http://www.opencongress.org/bill/113-s832/show" rel="alternate"/>
    <id>tag:opencongress.org,2013-04-24:/action/356861</id>
    <updated>2013-04-24T20:00:00Z</updated>
    <content type="html">
A bill to require the Secretary of Veterans Affairs to carry out pilot programs on furnishing case management services and assisted living to children of Vietnam veterans and certain Korea service veterans born with spina bifida and children of women Vietnam veterans born with certain birth defects, and for other purposes.&lt;br /&gt;&lt;br /&gt;    </content>
  </entry>
  <entry>
    <title>Bill Introduced: S.735 Survivor Benefits Improvement Act of 2013</title>
    <link href="http://www.opencongress.org/bill/113-s735/show" rel="alternate"/>
    <id>tag:opencongress.org,2013-04-15:/action/355645</id>
    <updated>2013-04-15T20:00:00Z</updated>
    <content type="html">
A bill to amend title 38, United States Code, to improve benefits and assistance provided to surviving spouses of veterans under laws administered by the Secretary of Veterans Affairs, and for other purposes.&lt;br /&gt;&lt;br /&gt;    </content>
  </entry>
  <entry>
    <title>Bill Introduced: S.723 Huntington's Disease Parity Act of 2013</title>
    <link href="http://www.opencongress.org/bill/113-s723/show" rel="alternate"/>
    <id>tag:opencongress.org,2013-04-14:/action/355515</id>
    <updated>2013-04-14T20:00:00Z</updated>
    <content type="html">
A bill to require the Commissioner of Social Security to revise the medical and evaluation criteria for determining disability in a person diagnosed with Huntington's Disease and to waive the 24-month waiting period for Medicare eligibility for individuals disabled by Huntington's Disease.&lt;br /&gt;&lt;br /&gt;    </content>
  </entry>
  <entry>
    <title>Bill Introduced: H.R.1281 Newborn Screening Saves Lives Reauthorization Act of 2013</title>
    <link href="http://www.opencongress.org/bill/113-h1281/show" rel="alternate"/>
    <id>tag:opencongress.org,2013-03-19:/action/353616</id>
    <updated>2013-03-19T20:00:00Z</updated>
    <content type="html">
To amend the Public Health Service Act to reauthorize programs under part A of title XI of such Act.&lt;br /&gt;&lt;br /&gt;    </content>
  </entry>
  <entry>
    <title>Bill Introduced: H.R.1015 Huntington's Disease Parity Act of 2013</title>
    <link href="http://www.opencongress.org/bill/113-h1015/show" rel="alternate"/>
    <id>tag:opencongress.org,2013-03-05:/action/351794</id>
    <updated>2013-03-05T19:00:00Z</updated>
    <content type="html">
To require the Commissioner of Social Security to revise the medical and evaluation criteria for determining disability in a person diagnosed with Huntington's Disease and to waive the 24-month waiting period for Medicare eligibility for individuals disabled by Huntington's Disease.&lt;br /&gt;&lt;br /&gt;    </content>
  </entry>
  <entry>
    <title>Bill Introduced: H.Res.91 Expressing support for designation of February 28, 2013, as Rare Disease Day.</title>
    <link href="http://www.opencongress.org/bill/113-hr91/show" rel="alternate"/>
    <id>tag:opencongress.org,2013-02-27:/action/351274</id>
    <updated>2013-02-27T19:00:00Z</updated>
    <content type="html">
Expressing support for designation of February 28, 2013, as Rare Disease Day.&lt;br /&gt;&lt;br /&gt;    </content>
  </entry>
  <entry>
    <title>Bill Introduced: S.424 A bill to amend title IV of the Public Health Service Act to provide for a National Pediatric Research Network, including with respect to pediatric rare diseases or conditions.</title>
    <link href="http://www.opencongress.org/bill/113-s424/show" rel="alternate"/>
    <id>tag:opencongress.org,2013-02-27:/action/351354</id>
    <updated>2013-02-27T19:00:00Z</updated>
    <content type="html">
A bill to amend title IV of the Public Health Service Act to provide for a National Pediatric Research Network, including with respect to pediatric rare diseases or conditions.&lt;br /&gt;&lt;br /&gt;    </content>
  </entry>
  <entry>
    <title>Bill Introduced: S.Res.57 A resolution designating February 28, 2013, as &quot;Rare Disease Day&quot;.</title>
    <link href="http://www.opencongress.org/bill/113-sr57/show" rel="alternate"/>
    <id>tag:opencongress.org,2013-02-25:/action/350742</id>
    <updated>2013-02-25T19:00:00Z</updated>
    <content type="html">
A resolution designating February 28, 2013, as &quot;Rare Disease Day&quot;.&lt;br /&gt;&lt;br /&gt;    </content>
  </entry>
  <entry>
    <title>Bill Introduced: S.237 Advancing FASD Research, Prevention, and Services Act</title>
    <link href="http://www.opencongress.org/bill/113-s237/show" rel="alternate"/>
    <id>tag:opencongress.org,2013-02-06:/action/349308</id>
    <updated>2013-02-06T19:00:00Z</updated>
    <content type="html">
A bill to amend the Public Health Service Act to reauthorize and extend the Fetal Alcohol Syndrome prevention and services program, and for other purposes.&lt;br /&gt;&lt;br /&gt;    </content>
  </entry>
  <entry>
    <title>Bill Introduced: H.R.225 National Pediatric Research Network Act of 2013</title>
    <link href="http://www.opencongress.org/bill/113-h225/show" rel="alternate"/>
    <id>tag:opencongress.org,2013-01-13:/action/347267</id>
    <updated>2013-01-13T19:00:00Z</updated>
    <content type="html">
To amend title IV of the Public Health Service Act to provide for a National Pediatric Research Network, including with respect to pediatric rare diseases or conditions.&lt;br /&gt;&lt;br /&gt;    </content>
  </entry>
  <entry>
    <title>Bill Signed by President: H.R.4310 Wartime Contracting Reform Act of 2012</title>
    <link href="http://www.opencongress.org/bill/112-h4310/show" rel="alternate"/>
    <id>tag:opencongress.org,2013-01-01:/action/346374</id>
    <updated>2013-01-01T19:00:00Z</updated>
    <content type="html">
To authorize appropriations for fiscal year 2013 for military activities of the Department of Defense, to prescribe military personnel strengths for fiscal year 2013, and for other purposes.&lt;br /&gt;&lt;br /&gt;January 01, 2013: Signed by President.    </content>
  </entry>
  <entry>
    <title>Bill Sent To President: H.R.1845 Medicare IVIG Access Act</title>
    <link href="http://www.opencongress.org/bill/112-h1845/show" rel="alternate"/>
    <id>tag:opencongress.org,2012-12-30:/action/346185</id>
    <updated>2012-12-30T19:00:00Z</updated>
    <content type="html">
To provide a demonstration project providing Medicare coverage for in-home administration of intravenous immune globulin (IVIG) and to amend title XVIII of the Social Security Act with respect to the application of Medicare secondary payer rules for certain claims.&lt;br /&gt;&lt;br /&gt;December 30, 2012: Presented to President.    </content>
  </entry>
  <entry>
    <title>Bill Sent To President: H.R.4310 Wartime Contracting Reform Act of 2012</title>
    <link href="http://www.opencongress.org/bill/112-h4310/show" rel="alternate"/>
    <id>tag:opencongress.org,2012-12-29:/action/346075</id>
    <updated>2012-12-29T19:00:00Z</updated>
    <content type="html">
To authorize appropriations for fiscal year 2013 for military activities of the Department of Defense, to prescribe military personnel strengths for fiscal year 2013, and for other purposes.&lt;br /&gt;&lt;br /&gt;December 29, 2012: Presented to President.    </content>
  </entry>
  <entry>
    <title>Bill Signed by President: H.R.3187 March of Dimes Commemorative Coin Act of 2012</title>
    <link href="http://www.opencongress.org/bill/112-h3187/show" rel="alternate"/>
    <id>tag:opencongress.org,2012-12-17:/action/345106</id>
    <updated>2012-12-17T19:00:00Z</updated>
    <content type="html">
To require the Secretary of the Treasury to mint coins in recognition and celebration of the 75th anniversary of the establishment of the March of Dimes Foundation.&lt;br /&gt;&lt;br /&gt;December 17, 2012: Signed by President.    </content>
  </entry>
  <entry>
    <title>Bill Enacted: H.R.3187 March of Dimes Commemorative Coin Act of 2012</title>
    <link href="http://www.opencongress.org/bill/112-h3187/show" rel="alternate"/>
    <id>tag:opencongress.org,2012-12-17:/action/345422</id>
    <updated>2012-12-17T19:00:00Z</updated>
    <content type="html">
To require the Secretary of the Treasury to mint coins in recognition and celebration of the 75th anniversary of the establishment of the March of Dimes Foundation.&lt;br /&gt;&lt;br /&gt;December 17, 2012: Became Public Law No: 112-209.    </content>
  </entry>
  <entry>
    <title>Bill Sent To President: H.R.3187 March of Dimes Commemorative Coin Act of 2012</title>
    <link href="http://www.opencongress.org/bill/112-h3187/show" rel="alternate"/>
    <id>tag:opencongress.org,2012-12-11:/action/344755</id>
    <updated>2012-12-11T19:00:00Z</updated>
    <content type="html">
To require the Secretary of the Treasury to mint coins in recognition and celebration of the 75th anniversary of the establishment of the March of Dimes Foundation.&lt;br /&gt;&lt;br /&gt;December 11, 2012: Presented to President.    </content>
  </entry>
  <entry>
    <title>Bill Introduced: S.Res.563 A resolution designating December 3, 2012, as &quot;National Phenylketonuria Awareness Day&quot;.</title>
    <link href="http://www.opencongress.org/bill/112-sr563/show" rel="alternate"/>
    <id>tag:opencongress.org,2012-09-18:/action/340837</id>
    <updated>2012-09-18T20:00:00Z</updated>
    <content type="html">
A resolution designating December 3, 2012, as &quot;National Phenylketonuria Awareness Day&quot;.&lt;br /&gt;&lt;br /&gt;    </content>
  </entry>
  <entry>
    <title>Bill Introduced: S.3461 National Pediatric Research Network Act of 2012</title>
    <link href="http://www.opencongress.org/bill/112-s3461/show" rel="alternate"/>
    <id>tag:opencongress.org,2012-07-30:/action/337801</id>
    <updated>2012-07-30T20:00:00Z</updated>
    <content type="html">
A bill to amend title IV of the Public Health Service Act to provide for a National Pediatric Research Network, including with respect to pediatric rare diseases or conditions.&lt;br /&gt;&lt;br /&gt;    </content>
  </entry>
  <entry>
    <title>Bill Introduced: H.R.6163 National Pediatric Research Network Act of 2012</title>
    <link href="http://www.opencongress.org/bill/112-h6163/show" rel="alternate"/>
    <id>tag:opencongress.org,2012-07-18:/action/336776</id>
    <updated>2012-07-18T20:00:00Z</updated>
    <content type="html">
To amend title IV of the Public Health Service Act to provide for a National Pediatric Research Network, including with respect to pediatric rare diseases or conditions.&lt;br /&gt;&lt;br /&gt;    </content>
  </entry>
  <entry>
    <title>Bill Introduced: S.3295 Department of Labor Appropriations Act, 2013</title>
    <link href="http://www.opencongress.org/bill/112-s3295/show" rel="alternate"/>
    <id>tag:opencongress.org,2012-06-13:/action/333693</id>
    <updated>2012-06-13T20:00:00Z</updated>
    <content type="html">
An original bill making appropriations for the Departments of Labor, Health and Human Services, and Education, and related agencies for the fiscal year ending September 30, 2013, and for other purposes.&lt;br /&gt;&lt;br /&gt;    </content>
  </entry>
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